Patient partners play a vital role in research but face systemic barriers to fair pay. Institutions must match their equity commitments with action—transparent, equitable compensation is long overdue.

Patient partners aren't study subjects. Patient partner research has a compensation crisis.

We must do better to promote equity and ensure that patient partnerships are respected and compensated.

Important article below:

www.bmj.com/content/388/bmj.r381

#PPIE
#PatientsIncluded
#AMR

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I've said it a few times this week. The new #UNGA political declaration mentions participatory approaches, including patients

In the UK, we have the NIHR Involvement Guidance. This should be relevant in all countries

Check out their resources:
x.com/NIHRinvolvem...

#PPIE
#PatientsIncluded
#AMR

Have you heard about the new #TrinityChallenge on #AMR? This time looking for innovative solutions to improve stock control and reduce substandard and falsified oral antibiotics. Apply by 24 April 2025 for a chance to win up to £1 million: solve.mit.edu/challenges/t...

#AntibioticEmergency

Such a pleasure to join the Biocodex Foundation to share my story about surviving #AMR in November last year. Very interesting presentations around the microbiota and antibiotic resistance from fellow speakers

#theAMRnarrative

Microbiotalk: "Antimicrobial resistance: the microbiota at the heart of a silent pandemic"

Microbiotalk 1st edition on #AMR is online with talks by

Vanessa Carter
PhD. Elitsa Penkova
Prof. Etienne Ruppé
Prof. Søren J. Sørensen
Edith Odeh Pharma D.
Greatman A Owhor

In this conference series, experts share insights on #microbiota and this major health challenge

Watch👇
bit.ly/3QxLrU4

Not really, I think it comes down to their personal preferences and features on a platform. For example, TikTok grew at a massive rate among the youth because of the features it offered. I think, unfortunately, there's still a long way to go until we see BlueSky match X.

@bluesky is growing, but I'm worried we lose significant voices on other platforms like X when it comes to reaching patients and the public on matters around #AMR. X=700M users

I know SM is a tough battleground, but having a diverse presence is important to patients who are seeking information

Always a pleasure, @wiltonpark.bsky.social

Thanks so much for joining us, Vanessa.

CARB-X thanks Letícia de Oliveira Batista and Pernilla Rönnholm for sharing their sepsis survivor stories at the CARB-X PD Conference in 2024. Sharing patient stories is key to understanding #AMR and its impact on lives.

🔗 Learn more: SepsisSurvivorWeek.org

Honoured to have participated @wiltonpark.bsky.social

A gloved hand holds a petri dish containing antimicrobial susceptibility testing. Text reads: Upcoming event - reinvigorating the response to anti-microbial resistance (AMR): from aspiration to implementation

Antimicrobial Resistance (AMR) is a global health security threat.

🗓️ The fourth dialogue in our AMR series will convene key stakeholders with a focus on actionable steps addressing the health, social, and economic impacts of AMR.

🔗 www.wiltonpark.org.uk/event/reinvi...

#AMR #health

Sue Charles on LinkedIn: In Conversation with Vanessa Carter and Sue Charles #AMR is an important issue, close to my own heart. Like cancer, we all face antimicrobial resistance impacting us or someone close to us. But what can we do…

www.linkedin.com/posts/sue-ch...

#amr

New publication in @naturecomms.bsky.social with fantastic co-authors from the Fleming Initiative, @bsacandjac.bsky.social and AMR Narrative

Read the comment here: www.nature.com/articles/s41...

In Conversation with Vanessa Carter and Sue Charles Antimicrobial resistance remains a challenging and life-threatening global health problem, despite some progress in tackling the problem over the last decade. Listening to stories from patients who ha...

The WHO #AMR Survivor Task Force remind us: AMR infections don’t discriminate. Their stories are urgent calls for action: better diagnostics, smarter antibiotic use, global collaboration.
@vanessacarteramr.bsky.social
@theamrnarrative.bsky.social

www.insideprecisionmedicine.com/topics/preci...

Great to meet you! Would love to share views about this @lacrimosa1791.bsky.social

Patient voices are lacking in this area. Could you share your email in a DM? Or connect on LinkedIn: www.linkedin.com/in/vanessaca...

Which conferences or meetings do you think are worth attending this year for #AntimicrobialResistance?

Let's keep up the momentum after the UNGA.

I'm looking for recommendations as a patient survivor and advocate.

#AMR

"Participatory Approaches" as highlighted in the 2024 UN Political Declaration for #AMR matter - that includes listening to patients, carers, and the public.

Pleased to contribute to this article as an #AntimicrobialResistance survivor

👇

www.nature.com/articles/s41...

#theAMRnarrative
#PPIE

As this New Year begins, I'm pleased to feature in this Medscape CME resource as a patient with firsthand experience of #AntimicrobialResistance #AMR

Read more: www.medscape.org/viewarticle/...

#MedEd
#PatientsIncluded
#theAMRnarrative

How to detect more antimicrobial resistant bacteria in our waterways Antimicrobial resistance is hard to monitor because there’s no standard way to detect it. Here’s how it could be better identified in rivers, streams and seas.

#AMR in the environment - we need to know _a lot_ more

theconversation.com/how-to-detec...

My 1st post! As a member of the @who.int taskforce of #AMR survivors I am pleased to bring the #AMR threat to life through patient stories & lived experiences, to raise awareness & drive action. Wishing you health through the festive period & many happy & healthy years to come, free of infection.

In our first year as the @who.int Task Force of AMR Survivors, we extend our heartfelt gratitude to everyone who has recognised the importance of participatory approaches, by including the voices of patients, carers, and survivors, in addressing #AntimicrobialResistance #AMR

#AMRsurvivors

Dr. Thomas O’Brien, visionary who addressed dangers of antimicrobial resistance, dies at 95 - The Boston Globe A physician of endless curiosity and talents, Dr. O'Brien was “the most interesting person I’ve ever met,” said his son, TV talk show host Conan O'Brien, whose parents both died this week.

Endearing obit honoring Dr. Thomas O'Brien, who cofounded the #@WHO Collaborating Centre for Surveillance of Antimicrobial Resistance, among many other accomplishments. Also, father of Conan. www.bostonglobe.com/2024/12/12/m... #AMR @vanessacarteramr.bsky.social

Thank you so much, @janicemc.bsky.social - wow, it's been that long already since we last caught up. Hope you are well. I learned to advocate from the best 🥰

I met @vanessacarteramr.bsky.social at HIMSS about 10 years ago. I greatly admire how she has developed from a "helpless, uninformed patient" to a fierce and effective advocate for other patients via her #AntimicrobialResistance advocacy work. #epatients #AMR

Vanessa’s antimicrobial resistance story (AMR) YouTube video by World Health Organization (WHO)

Not realising what the term #AntibioticResistance meant, I was a helpless, uninformed patient who couldn't play an equal role

This #WAAW I was grateful to share my story as Chair of the @who.int Task Force of #AMR Survivors

youtu.be/GUw6fRhwt3Y?...

#AntimicrobialResistance

Ditto !! :)

Always, friend, always

@pfanderson.bsky.social

Thank you for the follow 🙏 😊 💗