Response to parliamentary debate this week about the role of grassroots charities Rainbow Trust Children's Charity provides emotional and practical support to families who have a child with life-threatening or terminal illness.

Following a parliamentary debate about the role of grassroots charities, @zbingley.bsky.social, Chief Executive, said:

"Charities must be recognised as partners in policy discussions and funding decisions, rather than treated as an afterthought."

Read more: www.rainbowtrust.org.uk/latest-news/...

Rainbow Trust responds to the Spring Statement The Spring Statement is an important opportunity to influence future government spending.

Speaking today, Chief Executive, @zbingley.bsky.social said: “The Spring Statement is an important opportunity to influence government spending: it presents an opportunity for Government to take a holistic approach to public spending that supports families."

www.rainbowtrust.org.uk/latest-news/...

Do have a scroll through our new Impact Report - it's really immersive, the visual storytelling, combined with facts and figures, show how much social palliative care is needed for families who have a child with a life-threatening or terminal illness impactreport25.rainbowtrust.org.uk

40 years. 40 miles. 40 days. Help Laura Bennett raise money to support Rainbow Trust Children's Charity

I’ve worked at @rainbowtrust.org.uk for two years, we provide brilliant support for families whose child has a life-threatening or terminal illness. It’s our 40th year, so I’m fundraising by walking 40 miles over 40 days. If you can give, even 40p or £4, thank you
www.justgiving.com/page/laura-b...

Rainbow Trust welcomes £10 million travel costs for children with cancer and calls for it to be extended to include other illnesses Rainbow Trust Children's Charity provides emotional and practical support to families who have a child with life-threatening or terminal illness.

"We welcome the Government’s announcement of £10 million to help families with the cost of travelling to cancer treatment. Any recognition of the financial pressure families face is positive," said our Chief Executive
@zbingley.bsky.social.

Read more: www.rainbowtrust.org.uk/latest-news/...

Vote for @rainbowtrust.org.uk's film, A Very Very Big Difference to win a Smiley Charity Film Award 2026. The film shows the difference Family Support Workers make to families who have a child with a life-threatening or terminal illness. Please vote here: smileycharityfilmawards.com/films/a-very...

Join our team - Rights of Women

Join our team! 🌟Rights of Women is seeking a Fundraising & Partnerships Manager to help build meaningful partnerships, deepen donor engagement and grow the sustainability of our work to advance women’s rights. Bring your ideas! www.rightsofwomen.org.uk/about-us/joi...

#jobs #recruitment

Family law shift hailed as victory for children facing domestic abuse ‘Groundbreaking’ repeal of presumption of parental involvement in England and Wales ‘will ensure courts place safety of children above all else’

We have long called for children’s welfare and survivors of domestic abuse to be prioritised in child contact cases in the family courts.

The Ministry of Justice announcement to repeal the presumption of parental involvement is a positive step forward.

www.theguardian.com/uk-news/2025...

A purple image stating: Donate between 8th and 15th October and your donation will be doubled.

Justice shouldn’t have a price tag.

Too many women face abuse & court alone.

@rightsofwomen.bsky.social gives free legal advice - a lifeline for survivors.
Until 15 Oct, your donation is matched by @biggive.bsky.social

💥 Donate now 👉
donate.biggive.org/campaign/a05...

#DoubleYourImpact

Policy and Public Affairs Volunteer Rainbow Trust Children's Charity provides emotional and practical support to families who have a child with life-threatening or terminal illness.

🌈 We’re looking for a Policy & Public Affairs Volunteer at
@rainbowtrust.org.uk Work with me to influence policy so families with a child with a life-threatening or terminal illness get the support they need.👉 www.rainbowtrust.org.uk/jobs/policy-...

Join our team - Rights of Women

We’re recruiting a new Chair. Could it be you?

If you’re a strategic leader with a strong commitment to women’s legal rights, this is your chance to make a real impact.

Find out more & apply:

www.rightsofwomen.org.uk/about-us/joi...

#LegalCharity #Leadership #EndVAWG #Governance #Trustee

Government Spending Review reaction - Rainbow Trust Children's Charity Parents’ voices supported by Rainbow Trust heard in Parliament.

Zillah Bingley, Rainbow Trust’s Chief Executive, said:
 
“While we welcome the government’s renewed investment in the NHS, for families with a child who has a life-threatening illness, funding must go beyond clinical care."
 
www.rainbowtrust.org.uk/latest-news/government-spending-review-reaction

Isolation and loneliness amongst families who have a child with a life-threatening or terminal illness Families caring for a seriously ill child often feel isolated and emotionally unsupported. Rainbow Trust's two new briefings share our findings.

Proud to share new @rainbowtrust.org.uk briefings for #MentalHealthAwarenessWeek, with its theme of community, on the #loneliness families of seriously ill children face, and what govt must do to help.
🔗 www.rainbowtrust.org.uk/policy-and-r...
#Community #YoungCarers #Carers #SocialPalliativeCare

This Mental Health Awareness Week is all about celebrating community, and how it supports our mental health and wellbeing.

We are the Lewy body community, we couldn't think of better people to be with.

#MentalHealthAwarenessWeek #ThisIsMyCommunity #dementiaawareness #lewybodydementia

Rainbow Trust's response to the Spring Statement Rainbow Trust's response to the Spring Statement

Rainbow Trust’s Chief Executive, Zillah Bingley, said:

“Today’s Spring Statement was a missed opportunity to recognise the daily pressures faced by families caring for a child with a terminal or life-threatening illness.”

www.rainbowtrust.org.uk/latest-news/...

Make a referral Rainbow Trust Children's Charity provides emotional and practical support to families who have a child with life-threatening or terminal illness.

Today is #YoungCarersActionDay

We see the challenges faced when a sibling is diagnosed with a serious illness. Our Family Support Workers provide practical and emotional support which can help these young carers cope. 💙   

rainbowtrust.org.uk/support-for-families/ask-for-support

#GiveMeABreak

Supporting siblings Rainbow Trust Children's Charity provides emotional and practical support to families who have a child with life-threatening or terminal illness.

On #YoungCarersActionDay I'm thinking of incredible young carers who juggle so much. At @rainbowtrust.org.uk our expert Family Support Workers provide fun activities & emotional support, which help siblings cope #GiveMeABreak. www.rainbowtrust.org.uk/support-for-...

Laura is wearing a red jumper and a Rainbow Trust badge, she is smiling at the camera.

♥️ A bit early for #ILCDay, but on 14th February, please join I Love Claims and other companies across the insurance claims industry in their fundraising for @rainbowtrust.org.uk. Get involved here: www.rainbowtrust.org.uk/get-involved...

Parents’ voices supported by Rainbow Trust heard in Parliament Parents’ voices supported by Rainbow Trust heard in Parliament.

Parents supported by Rainbow Trust were heard in Parliament yesterday!

Too many parents of children with a serious illness face an impossible choice between work and care.

Find out more here: rainbowtrust.org.uk/latest-news/parents-voices-supported-by-rainbow-trust-heard-in-parliament

Make a referral Rainbow Trust Children's Charity provides emotional and practical support to families who have a child with life-threatening or terminal illness.

I'm thinking of children and young people affected by life-threatening illness or terminal illness this #ChildrensMentalHealthWeek. @rainbowtrust.org.uk provides free emotional & practical support, do get in touch: www.rainbowtrust.org.uk/support-for-...

Sign the Petition Sign the Lewy List!

It’s nearly the end of #WorldLewyBodyDay, over 2,200 people have signed @lewybodysociety.bsky.social Lewy List petition to demand better rights for people with Lewy body dementia! It will only take you a second to sign. Please take action now, and sign the Lewy List! www.change.org/JoinTheLewyL...

Care Data Impact and Analytics Lead Rainbow Trust Children's Charity provides emotional and practical support to families who have a child with life-threatening or terminal illness.

Come and work with me at @rainbowtrust.org.uk! If you are v good at extracting data that we can learn from and tell stories with, then we need you! Happy to have an informal chat or put you in touch with the hiring manager, the ever ace @jenkenward.bsky.social www.rainbowtrust.org.uk/jobs/care-da...

#BlueMonday isn't real, but! If you feel like doing some good (which will help you feel good) then sign ✍🏻 this petition www.change.org/p/join-the-l... for @lewybodysociety.bsky.social PS We don't collect your email on this platform, so we won't spam you forever more for donations!

This campaign needs you now Join the Lewy List!

I'm proud to work with @lewybodysociety.bsky.social on the Lewy List campaign, calling for better care for people with Lewy body dementia.
We’re *so* close to our next milestone: 2,500 signatures! Can you help us get there? Sign & share: 👉 chng.it/FtmVJPKqVd
Every signature counts!

Now look, I don't usually give out two GEAotD in one day, but I shall make an exception. Thank you!

How lovely of you, thank you! Please accept my Good Egg Award of the Day🥚🏆PS if you haven't already added them, two more excellent charities I recommend are @lewybodysociety.bsky.social (full disclosure, I'm their freelance policy and public affairs) & @rightsofwomen.bsky.social (I'm a trustee)

Hallo 👋🏻. I'm not sure what happened there, try this one? bsky.app/profile/rain...

When I was in my late 20s or early 30s and raging/grumbling about why was it that individuals found it so hard to get what they needed, because of the system, and how it shouldn’t work like this, I first heard about this thing called “policy”. I gradually moved over to that.

I’ve also spent a lot of time trying to help/work alongside people so that their voices are heard by the people who make decisions (small & large). Big A and little a advocacy, I suppose.

I’ve spent a lot of time being law-adjacent, giving info on people’s rights, along with clarity on systems and processes. Helping people get access to treatment (or discharged from it), housing, benefits, services etc, and then moving to campaigning/influencing for changes to the law.