I understand why it's difficult--because then they'd be asked to promote everybody who wants to raise money. same with other charities. I am also reluctant to promote other fundraising things, for similar reasons.
BBC highlights criticism of claims from neurologist that Long COVID is psychosomatic; and debate over "functional somatic disorder" in Frontiers in Medicine
virology.ws/2026/04/21/t...
Oh, they do?? That's a change. Good to know!!
Well, it's now up to 27% of the goal, with 186 donations. So, it's moving along a bit. Thanks to all!!--https://crowdfund.berkeley.edu/project/49720
thanks, Andrew--I wish I knew.
Oh, thanks! sure, anything to help push it out there.
Berkeley's final crowdfunder for Trial By Error has almost reached 150 donations and 25% of the goal!!!
crowdfund.berkeley.edu/project/49720
When "biopsychosocial" researchers say people with ME/CFS and "persistent physical symptoms" etc "recover" from their interventions, it seems like something of a bait-and-switch:
virology.ws/2026/04/08/t...
fixed!!
Well, Berkeley's latest crowdfunding campaign for my Trial By Error has now launched: crowdfund.berkeley.edu/project/49720
yes, I just saw that. I'm taking it down till Berkeley can fix it.
Now Trudie Chalder says "recovery from CFS" through CBT doesn't mean absence of symptoms and getting back to regular life but is more about accepting and coming to terms with chronic illness. Huh??? Isn't that acknowledging that CBT doesn't really produce "recovery"? virology.ws/2026/04/03/t...
The biopsychosocial ideological brigades don't seem to understand that continuing to cite fraudulent research like PACE, as they do in a new paper in a Scandianvian primary care journal, makes it hard to take anything they write seriously. virology.ws/2026/04/01/t...
Always helpful summaries from @mecfsscience.org
Why does the University of Bristol website still list Professor Crawley, the ethically and methodologically challenged pediatrician and former grant magnet, as an active participant in a training program? Has she retired, or hasn't she?
virology.ws/2026/03/21/t...
Norwegian disability case reveals flaws of the draft guideline for "long-term fatigue--including ME/CFS." The government claims optimism and belief in recovery lead to recovery. Huh?? virology.ws/2026/03/13/t...
Why is the methodologically and ethically challenged Esther Crawley still listed as a member of COFFI's steering committee? Given her retirement, why hasn't COFFI bothered to update its site? Can an organization so lax on detail even be taken seriously? virology.ws/2026/03/12/t...
What's up with the GPs in Australia? They keep promoting GET as if the PACE trial were actually not a fraudulent, discredited piece of crap! virology.ws/2026/03/09/t...
The British Association of Clinicians in ME/CFS issued a "therapy guide" last year. Very unsatisfactory. Professor Jonathan Edwards and colleagues have responded in an open letter. I spoke with Professor Edwards about it. virology.ws/2026/02/20/t...
The book Invisible Illness has caused a bit of a stir among many patients. Here are some further thoughts on the controversy.
virology.ws/2026/02/16/t...
A few things I've read recently: Maryland supports Long Covid research, @anilvanderzee.bsky.social on CBT in the Netherlands, and thoughts on hope and chronic illness:
virology.ws/2026/02/11/t...
I do think there's a difference between US and UK on this. CBT is not the be-all and end-all in US. It seems in UK all talk therapy is called CBT. Here, we just talk about "therapy" as short hand for counseling, talk psychotherapy, etc. "I'm in therapy." No one asks about CBT.
Yes, I understand that that's what people with these diagnoses get. but that wasn't really what I was referring to, which was the sort of supportive CBT referenced in the 2021 NICE guidelines.
As I mentioned, I haven't read the whole book at this point and was only rsponding to the sections that involved me, so I could explain my role in that. I realize that concerns had been raised about the content overall.
Yes, I understand that. I meant regular coping CBT and not PACE-style CBT.
Here's my take on some of the debate over Invisible Illness, the new medical anthropology book that has triggered debates and controversy. This post examines the back and forth over the chapter that includes PACE and the history of the creation of the CFS construct.
virology.ws/2026/02/01/t...
I've taken three weeks of medical leave because of bruised ribs sustained in a fall on the pavement. I'm slowly trying to get back to work and catch up. Here's an insightful and moving piece someone sent me about living with severe ME.
virology.ws/2026/01/27/t...
This is an extremely disturbing situation. I am familiar with legal noises from this cohort of people. How awful. I've been totally out of commission with a back injury the last two weeks so just becoming aware of this mess...
What is this thing about the U.S. being "the hottest country in the world"? It's preposterous. What the fuck does that even mean? Hottest on what metric? By whose assessment other than Trump's??