Day 5 of #ProjectLead2025 with @nbccstopbc.bsky.social
The preso I’ve been waiting for! TY Sara Hurvitz from @fredhutch.bsky.social for laying out the good/bad/ugly of clinical trial design. Sh*tty Surrogate Endpoints, I’m coming for you! #metastaticbc #breastcancer
All items thrifted or gifted
Skirt: Missoni
Blouse: Parker
Sweater: Pistola
Jewelry: vintage
THE SHOE: vintage Cork Ease (saved from death by John’s Shoe Repair, Lansing)
Brief bsky pause to tie up loose ends in life! Today, a new chapter. Starting this AM with cell bio review next to open air fire and awaiting g start of #ProjectLEAD with @nbccstopbc.bsky.social
5 days of INTENSE science edu & advocacy. My idea of a good time! #mbc #breastcancer
#OOTD deets in 🧵
I’ll be there! Join me at People’s Town Hall 7th CD with special guest Sen. Elissa Slotkin midems.controlshift.app/events/7th-c...
Rep Ocasio-Cortez has not yet signed on to co-sponsor HR 2048: Metastatic Breast Cancer Access to Care Act, which now has over 60 bipartisan co-sponsors. I’m pressuring to my own Rep to sign on to this bill too. Until it passes every Rep should feel pressure:
www.govtrack.us/congress/bil...
Learned from the constituents, in person, at a breast cancer advocacy leadership conference this week in DC. I admire AOC in many ways, but I also think we can share raises concerns and I don’t apologize for asking all Reps to do more when it comes to breast cancer research and advocacy.
Didn’t say she was a failure. Just asked a question about how she is serving her constituencyShe’s not my rep so I am not in the disappointed group. I do think that constituents should be able to meet with their reps. And I do think that breast cancer research and access to care is an urgent issue
Except, is she serving her constituents well? This week at a major breast cancer advocate conference, I learned her constituents who are BC patients tried and failed to meet with her or anyone in her office. She promised to lunch with them later. Then when they followed up? Bubkus.
I know that feeling—I have yet to experience a SE profile that I wouldn’t tolerate for more time. It may come, but haven’t seen it yet. I am wishing for you that this line knocks you into a years-long durable remission
NEW: Fresh off announcing his departure for the University of Florida, outgoing University of Michigan President Santa Ono has had his name removed from the American Assoc of Colleges and Universities academic freedom letter he signed barely two weeks ago. talkingpointsmemo.com/edblog/outgo...
It was WONDERFUL to meet you and hang out!
Can’t wait to do it again 🥰
We just learned that Congresswoman Kristen McDonald Rivet is a YES! On #HR2408 Metastatic Breast Cancer Access to Care Act. Thank you, Congresswoman McDonald Rivet, for caring about the lives of patients with MBC.
#NBCCSummit #cansky #metastaticbc #breastcancer
@michigandems.bsky.social so proud to be represented by these powerful Congresswomen from Michigan. Thank you, @scholten.house.gov @reprashida.govpeeps.us @debbiedingell.house.gov @rephaleystevens.bsky.social for co-sponsoring #HR2408
#NBCCSummit
#OOTD hitting the Capitol to fight for passage of #HR2408 Metastatic Breast Cancer Access to Care Act, and preservation of Medicaid & cancer research $ with #NBCCSummit
With research dollars evaporating with every Sharpie stroke, we’re fighting for our lives.
#metastaticbc
#breastcancer
Important #NBCCSummit session: With America at an inflection point, we’re discussing how advocates can push back on threats to science and healthcare. #NBCContheHill
Right? Our proud tradition of standing up for what is right is gutted and the chief knife wielder is heading out only weeks after the shameful act. I guess that maybe Florida constituents will care less or be more numb to an erosion of rights? 🤷🏻♀️
#MarySueWhereAreYou?
Mitten Represent! A mighty team from across Michigan ready to rumble to end breast cancer #NBCCSummit
#OOTD at #NBCCSummit being interviewed by the amazing Rokia, who is the strategic brain behind @nbccstopbc.bsky.social. I LOVE that this org is spending resources gathering the voices and faces and lived experiences of BC patients, including me.
Pantsuit: Trina Turk
Scarf: vintage
This response is helpful esp. for Republican Reps who are looking to cut the required $880B from the budget and NOT touch Medicaid. It can't be done with cutting fraud or waste and abuse; it can only be done with cutting services, eligibility or reimbirsement--which will reduce provider access
Medicaid Warriors! Top tip from #NBCCSummit on responding to a Congressional reps who says: “I’ll not touch Medicaid”
“Show me your math: how will you do it w/out decreasing enrollment, decreasing coverage, or decreasing reimbursement to Drs? How do YOU make the numbers work?” Then wait.
Tuesday!! I’ll connect with the CO patient advocates and share your words!
The bias is especially likely when there is an uneven dropout btw. arms of a trial—information censoring.
#NBCCSummit Amazing talk by Dr. Ian Tannock on asking critical questions about clinical trials. What jumps to me is the increase in using progression-free survival as a clinical outcome instead of overall survival. Tannock argues that PFS is very vulnerable to bias. Why? Follow🧵1/2)
Absolutely!!
Thanks, friend!
White woman leaning on podium labeled “NBCC” All outfit items thrifted: Shoes: Converse Dress: Anthropologie Bracelet/nexklace: vintage Cardi: Theory Belt: Tracy Reese
AMAZING first day at #NBCCSummit. Deep dive on breast cancer mortality rates across 2 sessions drive home where research is heading—looking BOTH at genetic/biological factors as well as place-based factors to more effectively treat AND hopefully prevent BC. Thank you @nbccstopbc.bsky.social
#OOTD
@charlevo.bsky.social
Picture of Dr. Melissa Davis delivering a talk at the podium at NBCC conference
Here's a conundrum--her research uses public genetic data. AND 80% of the global pop. is represented in only 3% of public data.🤯
The BIG takeaway from her talk is "who you are and where you are matters" when it comes to surviving cancer AND equity in research is essential to better outcomes.
Dr. Melissa Davis's work on impact of ancestry at genetic level adds important level of complexity to the breast cancer disparity conversation between Black and White patients. Bottom line--its not ALL about SDH.Her team is looking at biological factors interacting with SD factors.
#NBCCSummit
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Don't miss the next ECLC webinar by Christine Desmedt, PhD on Opportunities of post-mortem tissue donation programs to advance metastatic cancer research - May 19th, 2025 - USA: 11:00 AM EDT | Europe: 17:00 PM CEST | Australia: 01:00 AM AEST - Register here us02web.zoom.us/webinar/regi...