Ian saw his GP twice but wasnāt taken seriously. He was eventually diagnosed with acute myeloid leukaemia (AML) at A&E.
Like Ian, 1 in 4 people with leukaemia face delays in diagnosis.
Add your name to end the delays: action.leukaemiauk.org.uk/end-the-delay
#AMLWorldAwarenessDay #CountUsIn
Posts by Leukaemia UK
No one should have to fight to be heard. But like Jade, 1 in 4 people with leukaemia face avoidable delays in their diagnosis. Itās time to end the delays.
Add your name and call on the Government to act: action.leukaemiauk.org.uk/end-the-delay
#CountUsIn
An orange graphic which reads, āNew treatment for chronic lymphocytic leukaemia in Scotland: Acalabrutinibā followed by āApprovedā with a green tick symbol.
š¢ A new treatment has been approved on the NHS in Scotland for chronic lymphocytic leukaemia (CLL).
Acalabrutinib, in combination with Venetoclax, has been approved by NICE for adults with previously untreated CLL.
We are so pleased to have supported in this process. š§”
Two blood bags hanging on a medical stand in a hospital setting with blurred surgical lights and staff in the background. The text reads, 'Fancy taking part in a study that could help to improve stem cell transplant services across the UK?'
š¢ Have you been diagnosed with, or are you supporting someone with, acute myeloid leukaemia (AML) or myelodysplastic syndrome (MDS)?
Would you be interested in taking part in a study which aims to improve access to stem cell transplants?
Find out more: www.birmingham.ac.uk/research/pro...
Even when treatment seems to work, some people relapse. A new study suggests why š
Doctors already track tiny traces of cancer (MRD), but this research shows genetic changes in remaining cells also matter. š¬
www.nature.com/articles/s41...
Exciting progress in blood cancer research! New AI tools are showing real promise in helping detect conditions like leukaemia more quickly and accurately from simple blood smears. š©ø
Read more about the research. š
www.nature.com/articles/s41...
Dr Simon Mitchell, the latest recipient of Leukaemia UKās John Goldman Fellowship Follow-Up Fund, is stood with his arms folded and wearing a white lab coat. The text reads, 'Could studying āvirtual tumoursā help to personalise treatment options?' with the Leukaemia UK logo.
Can you believe computer simulations can help to answer some of the questions behind why certain blood cancers relapse? š©ø
Dr Simon Mitchell @sussex.ac.uk, the latest recipient of our John Goldman Fellowship Follow-up Fund, is doing exactly this.
Read more: www.leukaemiauk.org.uk/research-and...
Raising awareness of leukaemia within the deaf and hard of hearing community. š§”
We teamed up with @signhealth.bsky.social to spread the word about leukaemia, and the common signs and symptoms, this #SignLanguageWeek.
Thanks to @leukaemiauk.bsky.social for helping to make it happen!
A graphic with icons of Big Ben and a hand holding a megaphone. The text reads, āFantastic news! Rare Cancers Bill passes Third Reading in House of Lordsā with the Leukaemia UK logo.
We were pleased to see The Rare Cancers Bill pass the Third Reading in the House of Lords last week.
The Bill will help those with leukaemia and other rare cancers benefit from research, clinical trials and new treatments. Thank you @drscottarthurmp.bsky.social for bringing it to the House.
Two women, a patient and a nurse, are looking at each other and smiling. The nurse has her hand on top of the patientās hand, in a comforting way. The text reads, āAre you a healthcare professional? Could your project idea help to improve treatment, care, and quality of life for leukaemia patients?ā
Weāre delighted to announce further funding for healthcare professionals to undertake projects to improve treatment, care and quality of life for leukaemia patients. š§”
Applications for our Patient Care Pioneer Award are now open.
Find out more & apply: www.leukaemiauk.org.uk/research-and...
Have you ever heard of Graft-versus-host disease (GvHD) - a complication that can happen after a stem cell transplant?
In our latest blog, we explore how and why it happens, how transplant teams try to reduce the risk, and how it can be treated. š
www.leukaemiauk.org.uk/stories/when...
Thank you @douglasmcallister.bsky.social for raising the issues of delays in diagnosing leukaemia. We are glad that @rthonwesstreeting.bsky.social recognises the issue and we're ready to work with the Government to ensure that the National Cancer Plan delivers for those affected by leukaemia.
š§¬The Labour Government's National Cancer Plan will address unacceptable delays in leukaemia diagnoses, with 1/4 patients facing avoidable delays in being diagnosed.
I asked the Minister how this will be implemented, with the historic introduction of genomic testing at birth.
@leukaemiauk.bsky.social
An orange graphic with icons of Cardiff castle and the flag of Wales. The text reads, āOur vision for Walesā and āDriving real, meaningful change for those affected by leukaemia in Wales.ā
Leukaemia patients in Wales face significant gaps in diagnosis, treatment and care. š“ó §ó ¢ó ·ó ¬ó ³ó æā ļø
The next Senedd MUST represent a moment of real change. Weāre ready to work with the Welsh Government to stop leukaemia devastating lives.
Read our report for Wales here: www.leukaemiauk.org.uk/app/uploads/...
An orange graphic with icons of the flag of Scotland, and a man wearing a kilt and playing the bagpipes. The text reads, āOur vision for Scotlandā and āTogether, we can turn ambition into progress for people with leukaemia in Scotland.ā
Scotland has the power to transform the future for people with leukaemia. We're ready to work with the Scottish Government to turn the ambitious vision of the Scottish Cancer Strategy into progress for leukaemia patients. š“ó §ó ¢ó ³ó £ó “ó æ
Read our report for Scotland here: www.leukaemiauk.org.uk/app/uploads/...
What does the Governmentās new National Cancer Plan mean for people with leukaemia?
In our latest blog, we take an in-depth look at the commitments that could transform diagnosis, treatment and care for leukaemia patients. š
www.leukaemiauk.org.uk/news/nationa...
Todayās National Cancer Plan marks a major breakthrough in improving early diagnosis for leukaemia, with a new metric aiming to reduce the number of cancers diagnosed in an emergency setting ā something we have campaigned for relentlessly. This is a major step forward for people with leukaemia and a huge testament to the strength of our communityās voices. We are now ready to work with Government to ensure this plan will deliver earlier diagnosis, improved survival and better quality of life for the thousands of people diagnosed with leukaemia every year. Together, we will stop leukaemia devastating lives. Fiona Hazell, Leukaemia UK CEO
š¢ A huge win for #WorldCancerDay!
The Government has announced a new metric to track early diagnosis for leukaemia, as part of the National Cancer Plan.
Weāve campaigned for this commitment & will work to ensure it delivers for leukaemia patients. š§”
With the National Cancer Plan set to be published tomorrow, our CEO Fiona Hazell sets out why the Government must urgently commit to earlier diagnosis targets for leukaemia - to improve outcomes and to save lives
healthcaretoday.com/article/comm...
This week, the Government will launch its National Cancer Plan for England.
Weāre keeping you updated with the latest developments - including a Ā£200m investment in local cancer care and greater access to trials for rare cancer patients - and our response. www.leukaemiauk.org.uk/news/latest-...
Red blood cells in the bloodstream. The text on top of the image reads, āResearchers develop new drug which could lead to more effective, targeted treatments for AMLā with the Leukaemia UK logo.
Could blocking a specific signalling pathway weaken AML cells and pave the way for new targeted treatments?
Researchers have developed a drug designed to block key proteins found in Interleukin-1 (IL-1) - a signalling pathway relied upon by AML cells.
š medicine.iu.edu/news/2026/01...
@houseoflords.parliament.uk
It was great to see the Rare Cancers Bill pass its Second Reading in the House of Lords last week. Thank you to Baroness Delyth Morgan for speaking about the poor survival rates for AML and raising the issues in leukaemia that the bill hopes to address. š¤
Dr Matthew Blunt, one of Leukaemia UKās John Goldman Fellows and follow-up fund recipients. The text reads, āNew paper: Leukaemia research reveals findings which could help to treat autoimmune diseasesā with the Leukaemia UK logo.
Congrats to Dr Matthew Blunt & team on their latest publication, revealing findings which could help to treat autoimmune disease. š
A great example of how discoveries in blood cancer research can drive progress across other areas of medicine! āØ
academic.oup.com/cei/advance-...
Weāre thrilled to hear that patients are already receiving Aucatzyl, a novel CAR-T therapy for B-ALL, less than a month after it was approved for use on the NHS.
Weāre proud to have advocated for its approval with @anthonynolan.bsky.social @leukaemiacare.bsky.social š§”
www.bbc.co.uk/news/article...
Just incredible! Did you know that umbilical cord blood is rich in stem cells, and can be used for stem cell transplants - a crucial treatment option for many leukaemia patients? š©ø
www.bbc.co.uk/news/article...
An image of red blood cells in the bloodstream. The text reads, āNew study brings us a step closer to understanding infant leukaemia - and why it is so difficult to treatā.
A fascinating study by our co-funded researcher, Dr Katrin Ottersbach @edinburgh-uni.bsky.social, brings us closer to understanding why infant leukaemia is so hard to treat - and how future therapies might better target the disease.
š www.exphem.org/article/S030...
An orange graphic which reads, āNew treatment for chronic lymphocytic leukaemia in England: Venetoclax with obinutuzumabā followed by āApprovedā with a green tick symbol.
A fantastic start to the year! Venetoclax with obinutuzumab has been approved on the NHS in England for people with untreated CLL, expanding access to a fixed-duration, targeted first-line treatment option. š
Three people are sat around a table in an office. They are pointing to a piece of paper and smiling. In the background, on the wall, the writing reads, āDiscoveries happen all the timeā. The text on the image reads, āWeāre hiring! Research Manager'.
Are you enthusiastic about research and its potential to improve our understanding of leukaemia, develop kinder treatments and enhance patient care?
Apply to be our next Research Manager š www.leukaemiauk.org.uk/about-us/wor...
A conference hall with signs and exhibition stands. The entrance sign reads, āAmerican Society of Hematologyā.
š¢ Gentler, smarter and more personalised therapies are reshaping the future of leukaemia treatment and care.
We took a deep dive into some of the key takeaways from this yearās American Society of Haematology (ASH) conference. 𩸠#ASH25 @ash.hematology.org
www.leukaemiauk.org.uk/stories/rese...