We are www.sedsconnective.org the pioneering grassroutes charity for hypermobility and neurodivergence. Can you help us 😊 #volunteers

Join us in making a difference! Taking part in any fundraising activities?

Think of SEDSConnective, the first Hypermobility (EDS, Mcas, POTS) and Neurodivergence user led Charity. Help us to share our cause with your network 🙏

• 🎯 Aged 18–25
• 🏫 Attended secondary school at least a year
• 🧠 Diagnosed Autistic and/or ADHD
• 🩺 Told by health professional you are likely to have hEDS/GJH or have a formal diagnosis
#neurodivergence
📩 Email or QR flyer l.r.tostevin@surrey.ac.uk or go to our website SEDSConnective.org

Transgender and Gender Expansive Autistic Health Survey Gender expansive/Trans and Autistic? Please take this anonymous 10 minute multiple-choice survey for a PhD dissertation.

USA
Identify as Autistic
Identify as a gender other than what was assigned at birth
Live in the U.S.A only
Able to complete an online survey in English
Survey:
Anonymous
Takes ~10 minutes
Multiple choice with one short answer
IRB approved
Link here :
www.surveymonkey.com/r/6TWP78T

Sounds very worthwhile. We’re not asking you as you are doing great work 😊, but we’re a completely voluntary disabled charity - no one gets paid- and wish some other group would support us like this !

If you want any speakers on this from our angle or children let us know!

🇺🇸 Participants:
18+
Identify as Autistic
Identify as a gender other than what was assigned at birth
Live in the U.S. only
Able to complete an online survey in English
IRB approved
Link here
surveymonkey.com/r/6TWP78T

Join us in making a difference! Taking part in any fundraising activities?

Think of SEDSConnective, the first Hypermobility (EDS, Mcas, POTS) and Neurodivergence user led Charity. Help us to share our cause with your network 🙏

Please watch @bendybrain.bsky.social chat with our chair @jgjanegreenmbe.bsky.social about pain, getting ill, being a ‘bad’ person, mother employee & how she crashed out & our charity was born as no one would talk about the connections
bit.ly/4cx4qtF
#Autism #ADHD #Dyspraxia #Dyslexia #Dyscalculia

Lovely photos from World Health Day event today at K2 Crawley 😊

Support the community
User-led charity making health & science make sense for neurodivergent and hypermobility communities

Together for Health
Stand with Science
Stand with SEDSConnective

Our next Mid-Sussex Support Meeting is tomorrow 7th April 2026 | 10am - 11:30am | The Brickworks, Burgess Hill, RH15 9LH | No diagnosis needed and no tickets needed!

View event on our website here: www.sedsconnective.org/event-details/support-me...

Happy Easter from all at SEDSConnective 💛

Join us in making a difference! Taking part in any fundraising activities?

Think of SEDSConnective, the first Hypermobility (EDS, Mcas, POTS) and Neurodivergence user led Charity. Help us to share our cause with your network 🙏

#AutismAcceptanceDay
April 2nd is about autism acceptance, except we also want awareness for the autism body health, including hypermobility.
#Autism #Autistic

No diagnosis or care ADHD and EDS it costs us and it costs society a lot more to put more barriers up for diagnosis and for pathways we often end up caring, losing employment or worse.

Yes it is a lot of money, we have helped people with CCI in the past but as we battle as a grassroutes charity to support all our members we try to use our specialists in rehab for the less severely affected by CCI and AAI but there should be a care pathway.

Methylphenidate Treatment and Risk of Psychotic Disorder This cohort study of a Finnish national multiyear birth cohort uses instrumental variable analysis to investigate whether methylphenidate alters the long-term risk of psychotic disorder in children wi...

A Finnish study found no risk of psychosis for #ADHD children taking Methylphenidate

jamanetwork.com/journals/jam...

Our newsletter is coming out soon! You can sign up here - www.sedsconnective.org 🙏

Fantastic he’s our patron and so glad we have so much in common. Our webinar with him is on our website :)

Probably not the only one ?

Our chair/founder @JGjanegreenmbe.bsky.social
was invited by ADHD360 clinic & Jo Platt MP for the #ADHD event raising awareness, lived experiences with Dr Ahmed Under Parliamentary Minister for Health Innovation and Safety at the HouseofCommons
March 26th
#neurodivergence #hypermobility

Join us in making a difference! Taking part in any fundraising activities?

Think of SEDSConnective, the first Hypermobility (EDS, Mcas, POTS) and Neurodivergence user led Charity. Help us to share our cause with your network 🙏

Join us in making a difference! Taking part in any fundraising activities?

Think of SEDSConnective, the first Hypermobility (EDS, Mcas, POTS) and Neurodivergence user led Charity. Help us to share our cause with your network 🙏

• 🎯 Aged 18–25
• 🏫 Attended secondary school at least a year
• 🧠 Diagnosed Autistic and/or ADHD
• 🩺 Told by health professional you are likely to have hEDS/GJH or have a formal diagnosis
#neurodivergence
📩 Email or QR flyer l.r.tostevin@surrey.ac.uk or go to our website SEDSConnective.org

Neurodivergent and disabled staff in schools. Probably more than 6 adjustments needed but at least it was a start and this is still useful

schoolsweek.co.uk/the-knowledg...

Please take a moment to watch Episode 3: Jane Green MBE – Founder of SEDSConnective on her Remarkable Journey. Our charity is mentioned in the episode and it’s a really inspiring conversation about Jane’s work and the growth of SEDSConnective.
👉 https://youtu.be/Pr2ZFJOYPYw?si=vrclZrZAcbi9A

Join us in making a difference! Taking part in any fundraising activities?

Think of SEDSConnective, the first Hypermobility (EDS, Mcas, POTS) and Neurodivergence user led Charity. Help us to share our cause with your network 🙏

Please take a moment to watch Episode 3: Jane Green MBE – Founder of SEDSConnective on her Remarkable Journey. Our charity is mentioned in the episode and it’s a really inspiring conversation about Jane’s work and the growth of SEDSConnective.
👉 https://youtu.be/Pr2ZFJOYPYw?si=vrclZrZAcbi9A

Our newsletter is coming out soon! You can sign up here - www.sedsconnective.org 🙏