Great to see this update has added perspectives « It builds up on a 2014 scoping review by our team and aims to enhance the usability, completeness, and transparency of NMA reporting for diverse audiences, including patients and the public. » @sporalliance.bsky.social

Why patients don’t have admin assistants Are patient partners in healthcare research and education appreciated as people with varied skills and life experiences? Dr. Dawn Richards says NO. @TO_dpr @tatterededge

Patients are the actual end users of medical research. Patient partners improve researcher understanding of the real life priorities and impact of their work.
myheartsisters.org/2021/08/01/u...

It’s never too late to join the fun! Ranking top 5 is up next.

How do patients feel about research ethics review? - Healthy Debate Research ethics reviews in Canada have come under the media spotlight, with claims the process is exploitative and calls for innovation or reform.

It's International #ClinicalTrials Day. Thanks to everyone who contributes to clinical trials 🙏.

And an article co-written with patients on the research ethics review in 🇨🇦 - our thoughts and hopes for the future - healthydebate.ca/2025/05/topi... @healthydebate.bsky.social

How about making it a family project? Kids doing The Kid’s Trial and adult family members doing thepeoplesreview.ir Great dinner table conversations!

Did you ever wonder what goes into conducting and sharing a systematic review? Everyone is welcome to this one! Topic: to be determined by the people!

@sporalliance.bsky.social @mcmasterforum.bsky.social @evidencecomm.bsky.social

Please consider joining us - evidence synthesis is for everyone! We’d love to hear your perspectives. @sevenworldscollide.bsky.social

Robert F Kennedy Jr’s proposal to remove public commentary from US health policy is a threat to science and public health With confidence and trust in science and public health already under pressure, we must double down on transparency and public participation in policy decisions, write Liz Salmi and colleagues Since ...

RFK Jr’s proposal to remove public commentary from US health policy is a threat to science & public health www.bmj.com/content/389/...

"The ability to participate in regulatory decision making is not a privilege: it’s a legal requirement and a fundamental right in a democratic society."

All the credit goes to INFORM RARE’s amazing youth advisory group! We are so proud to collaborate with them. I’m the lucky adult who had the honour of submitting it. Available in English & French on informrare.ca

Graphic promoting the publication, 'Cobuilding Patient and Public Capacity in Knowledge Synthesis: Designed and Delivered by Patient and Public Partners for Patient and Public Partners.'

New publication!

The SPOR Evidence Alliance published a paper describing the co-creation and evaluation of two capacity-building courses on knowledge synthesis for patient and public partners.

Read more: www.jclinepi.com/article/S089...

@andreatricco.bsky.social @ktprogram.bsky.social

Thanks Laurie. I hope you’re feeling better now. Looking forward to connecting in 2025! Sorry it’s taken so long to respond .. trying to figure out LinkedIn and Bluesky has done me in.

Happy news to share! I’m honoured. It’s wonderful to see people with lived experience at the governance table of our Canada Drug Agency.

Thank you Stuart. I’m honoured. It’s great to see people with lived experience at the governance table.

Two hands reaching out across the background of the sky.

"When Life Happens: Being Vulnerable About Your Reality as a Research Partner" by Rae Martens explores the often-unspoken challenges faced by patients and caregivers engaged in research partnerships. Rae candidly reflects on the realities of living with illness or caring for others, including /1

@stirlingbryan.bsky.social Stirling is on BlueSky! So far the only SPOR Unit on is @absporu.bsky.social - Alberta SPOR SUPPORT Unit. Let's get the rest on here!

What is The People's Review? YouTube video by The People's Review

Hello Bluesky 👋 #ThePeoplesReview is a citizen science project inviting the public to get involved in a systematic review about health!

Check out this video for more info about what The People’s Review is all about - youtu.be/4OoIjJY0tbE

We must tackle misinformation. Our youth’s health depends on it - Healthy Debate It's time to treat misinformation as the public health crisis it truly is, particularly among youth in marginalized Black, Indigenous and People of Colour communities.

We must tackle misinformation. Our youth’s health depends on it

healthydebate.ca/2024/11/topi...