On Monday 20 April, Madam Deputy Speaker, the UK Biobank charity informed the government that they had identified their data had been advertised for sale by several sellers on Ali Baba e-commerce platforms in China. Biobank told us that 3 listings that appear to sell UK Biobank participant data had been identified. At least one of these 3 datasets appears to contain data from all 500,000 UK Biobank volunteers. Additional listings offered support for applying for legitimate access to UK Biobank or analytical support for researchers who already have access to the data. I want to reassure the House up front however, that Biobank have advised that this data did not contain participants' names, addresses, contact details, or telephone numbers. The government has spoken to the vendor today and they do not believe that there were any purchases from the 3 listings before they were taken down.
Statement on the use of UK Biobank data, from DSIT minister Ian Murray MP www.gov.uk/government/s...
UK Biobank data security update www.ukbiobank.ac.uk/news/a-messa...
It'll all be fine, just keep emphasising that it's "de-identified" data …
#personaldata #datasharing #dataprotection