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Posts by Patient Voice 🇨🇦

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Jamie’s story Patient Voice spoke with Canadian sports broadcaster Jamie Campbell about his experience with pre-skin cancer and why he’s passionate about increasing conversation around sun safety.

Throwing it back to one of our favourite stories from 2024. Thanks to @bluejays.com broadcaster Jamie Campbell for sharing his pre-skin cancer story with us.

1 year ago 2 0 0 0
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Misshka’s story Patient Voice spoke to Misshka Gupta about the experience of being diagnosed with leukemia as a young adult, and how she’s learned to coexist with cancer.

Misshka's is the first of a series of five stories that our team collected and shot at Young Adult Cancer Canada's 2024 Survivor Conference. Stay tuned over the next few months as we share the stories of Logan, Jessie, Joel, and Dani.

1 year ago 3 0 0 0
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“Why not me?”: Many SMA patients left without access to disease-modifying medicines due to age, geography New therapies have been shown to potentially slow the progression of spinal muscular atrophy (SMA) — so why are many adult patients unable to access them?

Check out our original story with Jeremy here:

1 year ago 0 0 0 0
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A Manitoban is losing his ability to move his muscles. A drug might prevent that, but the province won't pay | CBC News At the age of 29, Jeremy Bray can no longer move his face, arms, hands or legs. The only thing that can stop or even reverse the weakening of his muscles is a treatment the Manitoba government is refu...

If you follow us on other platforms, you may remember our friend Jeremy, featured in a recent story about #Canadian adults living with #SMA who can't access potentially disease-modifying therapies due to where they live.

We were so pleased to see that Jeremy's story was picked up by CBC Manitoba:

1 year ago 1 0 1 0
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'You have cancer, my girl': Indigenous nurse and cancer survivor tackles healthcare barriers in community after being overlooked What started as a routine overnight trip to Edmonton in 2015 turned into a life-altering journey for Lianne Mantla-Look, a then 34-year-old nurse from Behchokǫ̀, N.W.T.

Excerpt: "Her own journey through #cancer and the #healthcaresystem has raised a troubling question: how often do Indigenous patients receive sub-par care, particularly when they're too afraid or unable to speak up?"

ca.news.yahoo.com/you-have-can...

1 year ago 3 2 0 0