Sounds great, but will Medicare pay for this test?

International Myeloma Foundation 5K fundraiser at Griffith Park done with my sole sister, Deborah. We power walked and finished in 50 minutes. Great to see MM warrior friends in person, not on a Zoom meeting! #MoreThanMyeloma

Eyes on ICE: Document and Record · Indivisible On 1/24/26, federal agents horrifically shot and killed 37-year-old Alex Pretti, an ICU nurse who cared for veterans, in the Eat Street neighborhood of south Minneapolis after brutally beating him in ...

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MM is very treatable. Over 36,000 diagnosed every year.

Please thank him for his service. This was my 3rd protest. 2 years since my MM diagnosis, and it will never stop me from saving democracy. My friend on the right is a Stage IV breast cancer warrior.

If you ever need patient data, please reach out.

The biggest barrier is that Medicare covers injections given at an infusion center under Part A/B, but not if self-administered. It is then considered Part D and becomes yet another financial burden for the patient, just like lenalidomide. Personally, I don't want to self-inject Darzalex or Velcade.

I am in complete response after stem cell transplant and a year of maintenance and I have high risk mutations. It's possible.

It's very treatable. Pet parents do exceptionally well because fur baby love keeps spirits high. You got this.

I take lenalidomide daily for multiple myeloma maintenance. It's a cousin of thalidomide and it's helping to keep me alive. Sorry about your brother.

Very treatable. More like a chronic disease.

It was lifelong. Took my first pregnancy to finally get a diagnosis through a bone marrow sample. I was crammed full of iron, cod liver oil, etc. all through childhood, none of which made a difference because it is not an iron-deficiency anemia, but a microcytic anemia.

No, but I have thalassemia, which can complicate things.

Super important issue, especially where viruses are concerned.

Who wrote this? Jeez.

He will be able to wear a mask both pre and post-op. During surgery the staff are all masked. I've had 3 surgeries, 2 during Covid protocol and one since my MM diagnosis. Wore a mask with all 3 except in surgery. I still mask everywhere in public. Stay proactive/stay safe. Hugs.

Sounds more like something other than myeloma if he had a tumor on his face, but at this point, I'll settle for anything.

Beyond sad to hear this. Fuck MM.

God, I hope not. I don't want anything in common with that MFer.

Such a doggone rotten disease. The animals, too?

Made my night. 🤣

Agree 💯 and he's got obvious medical issues that his handlers work hard to cover up. Heart failure? Diabetes? Cancer? Most likely several diagnoses which require IV infusions on a regular schedule. Tick tock . . .

Sorry you had to join the club, but it is very treatable, and some people are living for decades. Best advice I've gotten: Live your life! 🎸

Infusions of IVIG are quite common for myeloma patients as we deal with immunity compromised both by the cancer in our plasma cells (the body's immune factory) plus depleted blood counts especially neotropenia. I get these infusions monthly. Most of us don't require a port, so bruise at the IV site.

Myeloma isn't a bone cancer. It's a cancer of the plasma cells in the bone marrow.

Malcolm and Sally! ❤️

I had my SCT over a year ago. In my experience, it wasn't that bad. It deepened my response, and I'm still in technically a complete response (M-spike 0.010.) I have aggressive high risk IgG Kappa with several mutations, so throwing everything available at it from the jump makes perfect sense to me.

Oh hell, no! I don't want anything in common with him. 🤮

Me at Disneyland yesterday. MM sucks. However, I do save on having to buy lipstick and teeth whitening strips.