Call the four Rare Disease Caucus Co‑Chairs NOW and say, “Please reinstate the CEGIR & FCDGC grants at the April 22 NIH review.”
• Rep Bilirakis (FL) 202‑225‑5755
• Rep Matsui (CA) 202‑225‑7163
• Sen Wicker (MS) 202‑224‑6253
• Sen Klobuchar (MN) 202‑224‑3244

URGENT: The NIH just froze CEGIR—the only U.S. research network for eosinophilic GI disease—because of a minor administrative oversight, that had not previously been enforced. Trials, care, and hope for rare‑disease families could stop TODAY. We have 5 days to act.

It was cold but it was fun! I'm optimistic about FC Cincinnati.