You know that feeling when you're talking with someone & you realize, "They see me."? It’s increasingly rare for me as the diagnoses pile up. Illness is isolating. When humans reveal their humanity, we turn away. Not so for the folks at Portraits of Humanity.
substack.com/home/post/p-...
S2, E8: BOSTON KAREN
Did you know it’s possible to exit a 2-night hospital stay mostly unscathed? Neither did we! Not until Boston Karen came along, that is. Amy reflects on a rare positive care experience & we wonder at the difference a single provider can make.
podcasts.apple.com/us/podcast/b...
S2, E7: PARASOCIAL RELATIONSHIPS
Amy fesses up to her imaginary relationships & we consider whether she is totally nuts or simply engaged in parasocial relationships (or both?). We consider benefits of these relationships for people w/chronic illnesses, potential drawbacks, & look at the science.
Many thanks to Allaire Conte for including me in this piece for realtor.com on what's going on with non-parents today and how and WHY they put their resources where they do. Tons of great insights from @drjaychildfree.bsky.social in here too!
www.realtor.com/news/trends/...
We're thrilled to release the #LongCovid Treatment Guide! This is a collaboration with @rthm.bsky.social to help patients & providers explore treatment options together.
The guide focuses on 24 medications, but includes a few other interventions for breadth /1
For #LongCovid Awareness Day, we’re releasing the 2026 Long Covid Fact Sheet! This is a list of key statistics about LC, using recent data to reflect contemporary risks.
We hope this will be useful for journalists, policymakers, patients, & others! /1
It’s NEVERTHELESS, PERSISTING’s first guest post!
"Why I Can’t Talk To You, Mom
(It’s the Hypocrisy, Dummy)"
By Lance Blackstone
amyblackstonephd.substack.com/p/why-i-cant...
In 2023, I took "Creative Writing Through Chronic Illness" at @loftliterarycenter.bsky.social w/ @jayverasummer.bsky.social. Jay isn't responsible for the poor quality of this piece but I do want to thank her for helping me realize that while my writing may have changed, it and *I* are still here.
New episode!
TO MINNEAPOLIS, WITH LOVE
We reflect on our years in Minneapolis & the ways social trust has been key to building the strong community ties that took ICE by storm.
CITED IN EPISODE:
@kerryhowley.bsky.social
@amjpublichealth.bsky.social
shows.acast.com/nevertheless...