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Posts by MND Scotland

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❗Tomorrow is the last day to cast your vote for the Smiley Charity Film Awards 🏆The winners will be announced on Wednesday 29 April 2026 🤞

➡️ Vote for our Bereavement Support Services video here: https://bit.ly/4pySgol

#SmileyCFA #CharityFilmAwards #TheSmileys #FilmAwards #CharityFilm

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Charity Evening in Support of MND Scotland Join us for fantastic black-tie charity evening in support of MND Scotland!

A charity black‑tie fundraising evening will take place at the Royal College of Physicians in Edinburgh next month in support of MND Scotland. The night will include a casino, ceilidh, and silent auctions: https://bit.ly/4td4KUr

5 hours ago 0 0 0 0
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“It may just be a job to them, but it’s my life. They need to step up and stop hiding behind guidance and processes.” - Nicola's story: https://bit.ly/4vwMcjD

#MNDScotland #MakeTimeCount #MNDScotlandManifesto2026

2 days ago 1 0 0 0
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“No one thinks this will happen to them, but it could. People with MND do not have time to waste.” - Nicola's story: https://bit.ly/4cqy9ol

#MNDScotland #MakeTimeCount #MNDScotlandManifesto2026

2 days ago 3 0 1 0
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There's just 1 week to go until the Glasgow Kiltwalk! We can't wait to see you all 🥳
Sunday is sold out, but there may be last‑minute spaces for Saturday’s 14.5‑mile Big Stroll 🚶 Sign up today and walk in support of MND Scotland 💙
https://bit.ly/40va088

4 days ago 0 0 0 0
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❗ This is the last week to vote for our Bereavement Support Services video in the Smiley Charity Film Awards 🏆 Thank you to everyone who has already voted for us - we appreciate your support 💙

➡️ Vote now: https://bit.ly/4pySgol

#SmileyCFA #CharityFilmAwards #TheSmileys #FilmAwards #CharityFilm

5 days ago 0 0 0 0
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A huge thanks to our London Landmarks Half Marathon runners, Amy, Ashley, Craig, Emma, and Holly, who all took part in support of MND Scotland, and together, raised over an incredible £4000! Well done, and thank you all for your support 💙

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❗LIMITED SPACES | Port of Leith Distillery | Saturday, 9 May 2026❗

Spaces are filling up fast for our Port of Leith Distillery Abseil next month in Edinburgh. This is a truly unique experience to ascend the 131 ft drop from the Port of Leith Distillery. Sign up today!

https://bit.ly/4c8KkEH

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Thank you to everyone who took part in 'Budgie's Mega Half Marathon for MND Scotland' at the weekend! It was a wonderful day, and it was lovely to meet so many people taking part. We are so grateful for your support 💙
https://bit.ly/4cIS4yF

1 week ago 0 0 0 0
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“He never let MND get him down, even when he knew what was coming.”

Zoe MacDonald, 18, from Oban, will take on an incredible 10,000 feet skydive challenge in St Andrews on 27 June 2026 in honour of her firefighter uncle, Brian MacDonald.

Read her story here: https://bit.ly/4cvWLvF

1 week ago 1 0 0 0
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❗ Round 2 voting for the Smiley Charity Awards 🏆 is closing on 23 April - please support MND Scotland by voting for our Bereavement Support Services video: https://bit.ly/4pySgol Thank you for your support 💙

#SmileyCFA #CharityFilmAwards #TheSmileys #FilmAwards #CharityFilm

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“I hope my story creates more awareness of the challenges faced by those living with MND and those caring for someone with MND. Increased awareness and funding will hopefully lead to more funding, and eventually one day a cure.” https://bit.ly/4t30FC1

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“The decision-makers should really speak to people affected by or living with MND. Unless it’s a direct family member or loved one, you really don’t understand how difficult it is.” Katie is urging the government to increase investment into MND research: https://bit.ly/4t30FC1

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“It’s a difficult condition to understand until you see it firsthand." Katie Syme lost her mum, Karen, in October 2024 following her diagnosis of PBP. Katie is urging the government to increase investment into MND research:
https://bit.ly/4t30FC1

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Today, we are sharing the story of NHS physiotherapist, Katie Syme, who lost her mum, Karen, in October 2024 following her diagnosis of progressive bulbar palsy (PBP). Katie is urging the government to increase investment into MND research. https://bit.ly/4t30FC1

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We would like to wish the very best of luck to everyone who's taking part in the London Landmarks Half Marathon today for MND Scotland! You've got this 💪 https://bit.ly/3yHsuJc

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Kelowna Rock Band has released their incredible anthem for the Scotland World Cup, "Faith in the Gaffer - with all profits from downloads going directly to MND Scotland to help make time count for families affected by motor neuron disease (MND) across Scotland 💙 https://bit.ly/4slKvCE

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We want to wish good luck to everyone who's taking part in "Budgies Mega Half Marathon' in Edzell on Sunday! Thank you to Alan "Budgie" Budge for your continued support 💙 We hope you all have a great day! 😎

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🪣💦 Dive into 'Dip A Day in May' and make a splash for MND Scotland! 💧🌊 Raise £100 or more, and you’ll get an MND Scotland t-shirt as a thank‑you for your incredible support! 🪣💦 Sign up today https://bit.ly/4t4ynr6 #MNDScotland45 #MNDScotland #MakingTimeCount1981

1 week ago 0 0 0 0
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One of our dedicated supporters, Andy Huxtable, is hosting 'An Evening with Kevin Sinfield CBE' 🏉 next month in Ayr in support of MND Scotland and My Name'5 Doddie Foundation 💙 https://bit.ly/4qfnznM

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If you care for someone living with motor neuron disease (MND), we are here to support you too 💙 Find out more about our support services: https://mndscotland.org.uk

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Johnstone man takes on Dunoon Ultra in memory of colleague who lived with MND. Read Mark's story here: https://bit.ly/3QghdI9

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Feel on top of the world with this exciting abseil event! 🥳 Support MND Scotland by joining us on Saturday, 9 May 2026, for a 131ft abseil down the Port of Leith Distillery with stunning views of Edinburgh💙

No experience needed ➡️ Spaces are limited, so sign up today!

https://bit.ly/4c8KkEH

2 weeks ago 0 0 0 0
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Thank you to the Kemnay Panto Group in Aberdeenshire for their generous donation of £1,200! Each year, the group hosts a charity pantomime fundraiser. During their production of "Jack and the Beanstalk" at Kemnay Village Hall in December 2025, the group chose to support MND Scotland💙

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Thank you to Claire Wilson and Catherine Scott. and everyone who helped to raise an incredible £1840 for MND Scotland at their recent charity fun day at Inchinnan Masonic Social Club! Thanks for your support and for helping make time count for families affected by MND in Scotland 🩵

2 weeks ago 0 0 0 0
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We want to say thank you to Barrhead Housing for their continued support over the last year as their Charity of the Year. The team has raised a wonderful £2,200 to help families affected by MND across Scotland, and we are so grateful for their support 💙

2 weeks ago 1 0 0 0
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Before his diagnosis, Bill Gilroy was experiencing falls, severe pain, foot drop, and a sudden decline in mobility. By January 2025, just three months after diagnosis, he had lost the ability to walk and required a wheelchair full‑time: https://bit.ly/4uXy82a

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“It took a year for the bathroom to get finished. My husband couldn't shower for all that time". Read Lynda's story here: https://bit.ly/4uXy82a

#MNDScotland #MakeTimeCount #MNDScotlandManifesto2026

2 weeks ago 1 0 0 0
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“People with MND don’t have a year to wait. We don’t even have months. The system moves at the pace of paperwork, but my husband is losing his mobility every week.” Lynda’s Fight for Home Adaptations for People with motor neuron disease: https://bit.ly/4uXy82a

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It was a pleasure talking about how our work in the lab can lead on to therapies in clinical trials, thanks @mndscotland.bsky.social for having me!

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