Thank you for the update

Also.
Any #LongCovid charities @longcovidkids.bsky.social

Does anyone know if any of the ME/CFS charities have prepared a response to the #SEND reform consultation at all? @actionforme.bsky.social @meassociation.org.uk

Oh the irony indeed. This is the reality of pacing done well isn't it. I'll message you

There’s much more to discover, but the evidence base is growing that wearables may be a useful tool for some people living with ME/CFS and/or Long Covid.

Thank you to the Richmond & Kingston ME group for inviting me and for some excellent questions. 5/5
www.richmondandkingstonmegroup.org.uk

This AI generated infographic below summarises our
@physiosforme.bsky.social
feasibility study of heart-rate monitoring to support pacing, which found the protocol was feasible, well tolerated and well received, with high levels of continued use after the study ended. 4/5

to capture what clinic visits often miss: fluctuation, delayed recovery & PEM. ME/CFS research needs the same quality & scale but the direction of travel matters: better measurement & more objective outcomes can support more realistic pacing conversations & larger scale trials 3/5

work using heart rate, HRV & recovery patterns to better understand physiological strain over time. What’s encouraging is the progress in Long Covid (thanks to
Rob Wust @putrinolab.bsky.social & others): more studies are using continuous, real-world data (HR/HRV/sleep/activity patterns)..2/5

Today I had the pleasure of speaking with a knowledgeable patient group about pacing in ME/CFS, with a particular focus on how wearables might support pacing and symptom management.

In preparing the talk, I looked at the emerging research on wearable-supported pacing including.. 1/5

Update on our latest publication
@physiosforme.bsky.social @claguenjc36.bsky.social @sunsopeningband.bsky.social

Went to Manchester for the #hsjpatientsafety awards - so proud to have won the education and training category with our amazing Frailty Academy #frailty

Good plan - thank you for the advice 🙏🏻

a small white dog wearing a pink tutu is standing on a gravel road ALT: a small white dog wearing a pink tutu is standing on a gravel road

Taking some time to find my way round @bsky.app Anyone got any top tips for me as I am still trying to work out how to get the best from being here! Thank you

Pleased to have assisted @thecsp.bsky.social to write this piece for their magazine, which goes out to all chartered physiotherapists in the UK.

It is #SevereMEDay

Physios in any specialism may meet people (adults or children) with severe ME during a hospital admission.

We can play a key role in education of other health professionals, to advocate for safe management and care

@thecsp.bsky.social

www.physiosforme.com/severe-me

Proud to be part of the RoyalSurrey frailty team heading for @rcphysicians.bsky.social awards this evening- finalists in two categories for the #EPCA2025 awards

A fab weekend spent with like minded colleagues who I well and truly count as friends!

Michelle Bull - Living with ME/CFS and Long Covid - Managing symptoms (Norwegian subtitles) YouTube video by Norges ME-forening - Rogaland Fylkeslag

youtu.be/vv0pUwoF9J0?si…
Well done @michelleb4.bsky.social you represented @physiosforme.bsky.social so well. Some great #ME talks, well done all at the ME/CFS conference, digging deeper - Norway.

Proud to stand alongside colleagues in supporting the need for evidence based science to improve care for people living with #ME and or #LongCovid

There is no place for the outdated nonsense in recent BMJ article

Patients with severe ME/CFS need hope in the form of evidence-based interventions, not opinions.

Our evidence-based rebuttal to *that* BMJ opinion piece published last week.
This has been authored by a coalition of 19 doctors, scientists and patient advocates from around the world, with now 80+ signatures of support from the scientific community.

www.bmj.com/content/389/...

Great response from @naomidharvey.bsky.social

www.bmj.com/content/383/...

Feel very privileged to have spent time with @putrinolab.bsky.social & others in the last week discussing actual evidence based robust science relating to ME and Long Covid. There is no room for this sort of nonsense @bmj_latest

The 2025 Berlin International ME/CFS Research Conference is Almost Here! - Health Rising For the third year in a row, Dr. Carmen Scheibenbogen and the Charité Fatigue Center (CFC) at Charité —Universitätsmedizin (a good German tongue twister :)) in Berlin are bringing us an ME/CFS and lon...

Tomorrow the 3rd International ME/CFS Research Conference of Charité will take place in Berlin. You can still register for free.

Thank you Cort Johnson for the announcement.

www.healthrising.org/blog/2025/05...

Plus the cycling was truly fantastic & I'm already planning my next trip. Would highly recommend Stavanger all round as a beautiful place to visit😎🚵🚴 3/3

Was made to feel so welcome by the hosts - inspirational patient advocates. Feel very privileged to have been able to spend 3 days talking about ME with people who want to make change. Planning a more detailed update on
@physiosforme.bsky.social
v soon 2/3

Just back from a wonderful week in Norway
for the @meforeningen.bsky.social Digging Deeper conference & took the opportunity to ride my bike somewhere a bit different.
Fantastic to meet @putrinolab.bsky.social
@bmhughes.bsky.social in person along with others who I can't find to tag
...1/3

What a great letter. Thank you

@bmhughes.bsky.social it was a pleasure to share the platform with you @meforeningen.bsky.social conference

@rthonwesstreeting.bsky.social @ashleydaltonmp.bsky.social
I'm an ally for people with ME - they deserve better from us as health professionals #FundThePlan

A new international survey has been released exploring the experiences of athletes with ME / Long Covid (with PEM)

Please share widely - all info on our website here

www.physiosforme.com/athletessurvey