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Posts by AusBREATHE

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Recently at AusBREATHE ⚡

3 weeks ago 0 0 0 0
Development and validation of a parent proxy bronchiectasis child quality of life instrument: The BC-QoL BackgroundQuality of life (QoL), the highest prioritised outcome by children with bronchiectasis and their parents, is a patient-reported outcome measure increasingly considered essential when evaluating health and interventions. Despite this, there are no validated instruments that specifically measure QoL related to bronchiectasis in children. We aimed to develop and validate a new bronchiectasis child-specific parent-proxy QoL instrument (BC-QoL).MethodsWe developed a draft 44-item BC-QoL and subsequently conducted a prospective cohort study where 142 parents completed draft BC-QoL and six other measures: two validated cough scores, parent-proxy children's acute cough-specific QoL, depression, anxiety and stress 21-item scale, RAND-36 and paediatric QoL (PedsQLTM4.0) to assess the convergent and discriminant validity of the BC-QoL. The questionnaires were completed over three weeks at different phases of their child's illness (stable state, exacerbation and/or recovery). Responses were analysed using psychometric and clinical impact techniques to reduce items and determine the instrument's reliability and validity. Minimally important difference (MID) was also calculated.ResultsThe final 23-item BC-QoL instrument with its three domains (emotional, physical, social well-being) demonstrated high split half reliability (0.95), Cronbach's alpha (0.97), repeatability (intraclass coefficient=0.74, 95%CI 0.62–0.82), validity and responsiveness. BC-QoL's domains significantly correlated with that of PedsQLTM4.0 (Spearman correlations: emotional=0.43, social=0.41, physical=0.47). BC-QoL's MID ranged from 0.74 to 1.32.ConclusionBC-QoL, the first bronchiectasis child-specific QoL instrument, has evidence demonstrating its validity and reliability, and can be used to evaluate the impact and effectiveness of interventions and better understand the disease burden in children with bronchiectasis.

A new Bronchiectasis QoL survey for children has been developed! Dr Jack Roberts and the CRE team have published a paper identifying and developing a world-first paediatric quality of life tool to measure patient-related outcomes 🌐

publications.ersnet.org/content/erjo...

3 weeks ago 0 0 0 0
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A new paper has been published by the CRE team! The article highlights practice info to aid clinicians in providing culturally safe healthcare to First Nations people. Read the article in the Frontiers in paediatrics journal by following the link

pubmed.ncbi.nlm.nih.gov/40599895/

1 month ago 1 0 0 0
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Written by members of the CRE, a new article titled “The impact of child and adolescent health on adult respiratory health: the evidence, gaps and priorities” has been published. Read the article at the link below 🫁🩺

pubmed.ncbi.nlm.nih.gov/40835395/

8 months ago 0 0 0 0
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A reminder about the Child BEAR Net Registry’s first paper, which is available now on PubMed! Check out the link below to read the paper 🫁🩺

pubmed.ncbi.nlm.nih.gov/40757932/

8 months ago 0 0 0 0
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A big thank you to the whole CRE group!! Signing off for the end of the conference, full of inspiration and renewed ambition to help all children have healthy lungs 🫁🩺

#lunghealth #inspiration #bronchiectasis #health

9 months ago 1 1 0 0
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CRE Members spoke about #future grants, a new science-based CRE led by A/Prof Robyn Marsh & an extension of the SUNFISH #study via a new grant application to follow children to 12yo. Prof Maree Toombs gave an inspiring talk on First Nations perspective on #lung health. What a great afternoon!

9 months ago 0 0 0 0
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Prof Julie Marchant spoke about the new CARE study on treating #exacerbations in children with #bronchiectasis. Dr Miriam Cameron spoke about aspiration & #respiratory muscle health. Jack Roberts discussed the use of PC-QOL. Dr Jeremy Kok presented results of the HOPE RCT 🫁🩺 #lunghealth

9 months ago 1 0 0 0
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On Friday, Profs Chang & Yerkovich gave us an overview of CRE achievements with grants, fellowships & almost 200 scientific papers published.

Dr Hannah O’Farrell spoke about progress to understand gene expression in Bronchiectasis. A/Prof Vikas Goyal gave preliminary results of the REPEAT study.

9 months ago 2 0 0 0
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Our CRE meeting kicked off on Thursday!

We were thrilled to have Profs James Chalmers & Amelia Shoemark, world experts in Adult #Bronchiectasis share their groundbreaking #research in the first novel bronchiectasis-specific therapy, Brensocatib.

James’ & Amelia’s talk certainly inspired us all.

9 months ago 1 0 0 0
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The World Bronchiectasis Conference happened last week in Brisbane! CRE members heard from world experts, presented their research and shared ideas with clinicians from around the world about the latest trends in bronchiectasis 🫁🩺

#bronchiectasis #lunghealth #AusBreathe #CRE

9 months ago 4 1 0 0
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In their recent annual report, Menzies School of Health Research published a “Researcher Profile” on Professor Anne Chang which highlights her impactful work. We have included a few sections in the above post, so please have a read through 🩺🫁

9 months ago 0 0 0 0
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Very exciting news!!

The International Child BEAR Net Registry has published their first paper. Check it out at The Lancet Respiratory Medicine and linked below 🫁🩺

www.thelancet.com/journals/lan...

10 months ago 0 0 0 0
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CRE Member Prof Anne Chang recently recorded a podcast episode with Health Ed discussing Chronic Wet Cough in children.

Click the link below to check it out! 🩺🫁

www.healthed.com.au/podcasts/chr...

1 year ago 0 0 0 0
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Indigenous views of wellbeing are holistic and extend beyond just physical health. They are rooted in connections to land, culture, spirituality and community. Check out this post for more info!

1 year ago 0 0 0 0
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Our next “Meet the Researcher” is here!

For today’s post, we are introducing Hannah O’Farrell, a post-doctoral scientist in QUT’s Cough and Airways Research Group (CAARG) 👩🏼‍🔬🔬

#cough #research #AusBreathe #PhD #COPD #lungcancer #QUT

1 year ago 0 0 0 0
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Welcome to a new content series on our page…

Meet the Researcher!

The idea of this series is for you all to get to know our team a little bit better. First up, we have Steph 👩🏼‍⚕️🩺

1 year ago 0 0 0 0
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When a child's cough doesn't stop

Real Focus QUT highlighting some of the research done by our team here at AusBreathe!

www.qut.edu.au/news/realfoc...

1 year ago 0 0 0 0
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A powerhouse medical doctor and researcher, #AusHSI Prof Anne Chang AM has led the way in setting the international standard for the treatment of #chroniccough in children. Learn about her pioneering and impactful work in a #QUTRealFocus feature story: bit.ly/3BVjhyN @ausbreathe.bsky.social

1 year ago 2 1 0 0
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Acute Bronchiolitis is a viral infection of the lungs that is common in young children.

Check out the above post to find out more 🫁😷

1 year ago 0 0 0 0
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Welcome back to AusBreathe!

If you are new to our page, here is a quick overview of who we are and the types of content we will be posting in 2025.

Check out our other socials (Threads, Instagram and X) to stay even more up to date 👏🏼

1 year ago 0 0 0 0
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Happy New Year from the AusBreathe team!

We can’t wait for all of the exciting research to come in 2025 🎉

1 year ago 0 0 0 0
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Has your child had a wet cough for more than 4 weeks? 😷

Wet cough can progress to bronchiectasis, so get them checked out by your local clinic or GP! 🫁🩺

1 year ago 0 0 0 0
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AusBREATHE (@ausbreathecre) • Threads, Say more 4 Followers • 22 Threads • The overarching aim of our Centre of Research Excellence is to improve the respiratory health of children, especially First Nations children. See the latest conversations...

Follow our new account on Threads to keep up to date! 🫁🩺

I'm on Threads as @ausbreathecre. Install the app to follow my threads and replies. www.threads.net/@ausbreathec...

1 year ago 1 0 0 0