A thousand times yes! These pompous 21st-century Typhoid Marys infuriate me; it’s a scalding display of ego, or maybe it’s willful ignorance. Either way, it’s a power play, forcing your patients to request a bare minimum standard of care.
How many times we gotta say it?? Nothing about us without us. FFS!
I’d roll my eyes, but my doctor says if don’t quit, my eyes will get stuck back there, and then how will I make my snarky little comments?
Oh, don’t worry—it’s just hell freezing over. Nothing to see here!
I thought so too. We as users are already marketing data goldmines. Observed (tracked) user behavior is one thing. Manipulation via retail catfishing? I can see dollar signs replacing their eyeballs while they float toward a pile of cash!
I think about this all the time! The benefits of accessibility aren’t even limited to just disabled people. But indeed, people would much rather be ash holes.
I can’t make myself go there but a Facebook group for HOCl fans does exist if you’re so inclined: www.facebook.com/groups/18340...
So what I did was get a small hydrolysis thingie that’s for travel, so I could test it out. I haven’t needed to get anything bigger. I got this one: Ecoloxtech Micro, Portable... www.amazon.com/dp/B0CK8P6XK... pH strips, and some opaque spray bottles.
Just one note about it: there are a few companies that sell proprietary machines and “pods” to make at home, they are generally overpriced and a little cult-y, and the pods are just vinegar and salt. Reddit has tons of good info.
I just started making and using this. I am 💯 a convert. It works so well! It is quite the rabbit hole. I found this piece was a good explainer: pmc.ncbi.nlm.nih.gov/articles/PMC...
It was one month, my friends. ONE MONTH and we are in the “my body your choice” era.
Outside, everything is scary, yes. But this does make it a little better.
Hey you’ll never guess what… it’s a month later, another cardiologist appointment and still no improvement from last month. I just want to leave my house without having a babysitter in case I fall (again and again).
Will get “lost” and then denied, and then lost again. So this is how we torture people who need to use the benefits they pay for. As usual the cruelty is the point, but damn it, we all gotta do a gfm to get our basic care needs now? For truly we are already in hell. /9 end
So what-what-what does a person need to have happen, what preventable disaster must befall me, before I can beg my insurance for the privilege of being repeatedly denied? Ofc no doc wants to write a scrip for something that is a sentence to months of writing and rewriting authorizations that 8/
I’m the only one who will acknowledge that there’s been either a decline in function or efficacy of treatment.
Don’t ask if it’s time for something to help me get out of bed and out of my house though. Why would anyone “enable” that? 7/
And they act like I’m the one who’s given up here, as if I want to spend my days waiting for one of them to do their damn job and not just keep cashing my checks.
Meanwhile I can’t reliably drive myself to appointments. I can’t feed myself. I can’t bathe without supervision. And somehow… 6/
But—dare to ask for something as simple as renewing an already permanent disabled placard, which I’ve had again, for a decade, and it’s like I’ve activated some sleep agent.
All the sudden zombie doctor is forcefully arguing against something that is so unnecessary as a mobility device?? 5/
And when I ask for thoughts, treatment plans, anything at all to ease this ridiculous increase in symptoms… it’s like there’s a glitch in the matrix. It’s just blank, or a recitation of the same old advice that isn’t working, hasn’t worked, and is why I dragged myself in to darken their doors 4/
On the regular since June and dutifully record my vitals, cluck at how unstable they are, and send me on my way. Even specialists who I’ve seen for a decade or more look like they are moving through pudding.
They open their little computers and record how not-normal and very-not-good I am 3/
I do and have done for years, well before the pandemic. #postviral #autoimmune lifestyle, babes. Now I’ve added on 1-2x weekly IV fluids, and upped dosage on the beta blockers and midodrine on repeat.
I’m followed by cardiology, and a bakers dozen other specialists, all who have seen me 2/
Let me tell you a tale of complex medical needs in a time when coordination of care is an absolute pipe dream.
I’ve spent all summer battling pericarditis (presumed, no echo to confirm, ofc), with chest pain, dyspnea, and endless POTS/OI. In addition to all the usual interventions 1/
When I get a flare up it’s what goes through my head anyway 🤣 “Oh my god it’s back again.”
Do I sing this to the Backstreet Boys? If so, rock your body right, my friend. Rock your body right.
Dark speculations: How long, do you think, before the covid cognitive declines start to manifest in the domestic violence and child abuse statistics?
Sitting in the cardiologist’s office, 40 minutes after my appointment was to start. And the nurses still haven’t processed my infusion paperwork. I’ve been waiting two months and paying out of pocket. I’m broke, still sick, and now I’m paying for a second useless office visit?!
Tweet by Coco, @MarvinCori In healthcare, a bare-faced practitioner asking a (sic) you, masked person, if you prefer they mask is a power-play to make you say the words. They want you to know that they don’t think it’s necessary, that it’s a favor. That you are weak and they are strong. All under the radar.
Hot take: If after five years of a pandemic you work in healthcare and you haven’t absorbed the concept of viral aerosols, you are too self-centered, ego-driven, and ill-informed to work in a position caring for others. Wear a mask; prove me wrong.
Do we have the same immunologist?? [Cries, has allergic reaction to own tears]
But srsly I am so sorry you are also dealing with an outdated practitioner also. I should buy stock in an epipen company probably.
Tweet from @ayotristan Being able-bodied is temporary, you will age, you will get injured, you will get sick and you will wish you’d fought more for the system to protect the vulnerable. Quote tweet from @Populism Updates Tell me your most radical position that cannot be placed on the left-right political spectrum.
One reason why able-bodied folk fear and want to hide away disabled people is because we function as a sort of Ghost of Christmas future, unsettling harbinger of what’s to come. Transferring blame for lack of access is also much easier when you don’t have to say it to anyone’s face.
Ht @ayotristan
I do take my mask off indoors & I’ve grown indifferent to the risk of eating out specifically. Getting dressed and eating is one of my fave things to do. I gave up team sport, choir, volunteer work, theater for covid safety but yall won’t take my dinner rezzy from me sry Image is the smoking duck meme, with the duck wearing a fedora and fur coat
In magical thinking today: the “but it’s my favorite” excuse.
Look, we are all grieving our lives from the before times. Sad to say, but Covid doesn’t give one sh!t about what you love in this world. You can’t bargain with an airborne virus.
Every high-risk activity is someone’s favorite.
This is why You. Must. Rest. You’re not going to feel mitochondrial damage until the damage is done.