https://ow.ly/nkUz50YrW6T

I’m Aware That I’m Rare: Sherry Rouse (568) the phaware® interview

She Was Prepared for Breast Cancer Not for a Rare, Incurable Disease. At 30, Sherry Rouse expected one diagnosis. She got another—idiopathic PAH. Hear how shock turned into strength, advocacy, and hope. @phaware.bsky.social podcast ep 568 phaware.medium.com/im-aware-tha...

Lung transplant doesn’t mean “now” - it means being ready. Dr. Nicholas Kolaitis explains why early referral can save lives, improve quality of life, and keep options open for PH patients. 🎧
phaware® podcast ep 567 phawarepodcast.libsyn.com/site/episode-557-dr-nich...

https://ow.ly/xI4z50YrW3J

I’m Aware That I’m Rare: Nicholas Kolaitis, MD (567) the phaware® interview

Lung transplant doesn’t mean “now” - it means being ready. Dr. Nicholas Kolaitis explains why early referral can save lives, improve quality of life, and keep options open for PH patients. 🎧 @phaware.bsky.social podcast ep 567 @UCSFHospitals @LungTxptMD medium.com/p/im-aware-t...

https://ow.ly/wVEl50YrW1P

"I'm Aware That I'm Rare the @phaware podcast... All-New dynamic stories All this April from PH patients, caregivers and medical professionals from around the world.
Like, Subscribe and Follow us at: https://www.phawarepodcast.com/

Thank you, CVS. Your support and collaboration allows phaware® to raise global awareness and accelerate research for pulmonary hypertension through innovative technology and storytelling that amplifies the voices of patients worldwide as we forge a new course to a cure. https://ow.ly/QAlV50YAMH4

Thank you, Johnson & Johnson. Your generous 2026 support allows phaware® to raise global awareness and accelerate research for pulmonary hypertension through innovative technology and storytelling that amplifies the voices of patients worldwide. https://www.jnj.com/innovativemedicine/

Thank you, Gossamer Bio. Your generous 2026 support and continued collaboration allows phaware® raise global awareness and accelerate research for pulmonary hypertension through innovative technology and storytelling that amplifies the voices of patients worldwide. https://www.gossamerbio.com/

I’m Aware That I’m Rare: Lala Juarez (566) the phaware® interview

The Most Dangerous Phrase in Rare Disease, “You look fine,” nearly cost her life. Lala Juarez shares what it’s like to be dismissed, misdiagnosed, and fighting for breath - until a double lung transplant changed everything. @phaware.bsky.social podcast ep 566 medium.com/p/im-aware-t...

Thank you, Liquidia. Your 2026 support and continued collaboration allows Phaware Global Association to raise global awareness and accelerate research for pulmonary hypertension through innovative technology and storytelling that amplifies the voices of patients worldwide. https://ow.ly/mcOC50YrVXp

Thank you, @Merck. Your generous 2026 support and continued collaboration allows phaware® to raise global awareness and accelerate research for pulmonary hypertension through innovative technology and storytelling that amplifies the voices of patients worldwide. https://outnumberpah.com/

phaware® is grateful to @elevenlabsio to leverage their #ElevenLabs technology within our “I”m Aware That I’m Rare” phaware podcast series and across our Heart Works Research and Resource Mobile app in an effort to reach patients and families who need it most.

The Daily Discipline of PH. Most people don’t count every sip or grain of salt. With PH, it’s survival. Angela Brown shares the daily discipline behind living with fluid & sodium intake limits. phaware® podcast ep 565 @phacanada phawarepodcast.libsyn.com/site/episode-565-angela-...

https://ow.ly/Ebaa50YrVXi

I’m Aware That I’m Rare: Angela Brown (565) the phaware® interview

The Daily Discipline of PH. Most people don’t count every sip or grain of salt. With PH, it’s survival. Angela Brown shares the daily discipline behind living with fluid & sodium intake limits. @phaware.bsky.social podcast ep 565 @PHACanada medium.com/p/im-aware-t...

Two Rare Diagnoses, One Powerful Partnership 💙 Neal McDermott and Dr. Steve Mathai share how trust, early action, and personalized care can change outcomes for patients living with scleroderma and PAH. phaware® podcast ep 564 @HopkinsMedicine LIKE, SHARE, FOLLOW

https://ow.ly/vu7M50YrVVr

I’m Aware That I’m Rare: Neal McDermott and Steve Mathai, MD (564) the phaware® interview

Two Rare Diagnoses, One Powerful Partnership 💙 Neal McDermott and Dr. Steve Mathai share how trust, early action, and personalized care can change outcomes for patients living with scleroderma and PAH. @phaware.bsky.social podcast ep 564 @hopkinsmedicine.bsky.social medium.com/p/im-aware-t...

The Untold Struggles of PH Patients. Beyond test results and procedures, PH patients fight silent battles every day. Dr. Khushboo Goel discusses how support groups are changing how she treats the disease. phaware® podcast ep 563 #phawareMD Cedars-Sinai Health Sciences University

https://ow.ly/tN7H50YrVTs

I’m Aware That I’m Rare: Khushboo Goel, MD (563) the phaware® interview

The Untold Struggles of PH Patients. Beyond test results and procedures, PH patients fight silent battles every day. Dr. Khushboo Goel discusses how support groups are changing how she treats the disease. @phaware.bsky.social podcast ep 563 #phawareMD @CedarsSinai medium.com/p/im-aware-t...

TBX4 holds clues to life-threatening lung disease starting before birth. Ripla Arora, PhD explains how her foundational research is shaping a worldwide push to understand and prevent pulmonary hypertension. 🌍 phaware® podcast ep 562 @TBX4_Life @PHatStanford Michigan State University

I’m Aware That I’m Rare: Ripla Arora, PhD (562) the phaware® interview

TBX4 holds clues to life-threatening lung disease starting before birth. Ripla Arora PhD's foundational research is shaping a worldwide push to understand and prevent pulmonary hypertension. @phaware.bsky.social podcast ep 562 @TBX4_Life @PHatStanford @michiganstateu medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Jeffery Whitsett, MD (561) the phaware® interview

Cracking the Code: How Genetics Is Rewriting Neonatal Medicine. Dr. Jeffrey Whitsett reflects on 50 years in neonatal care and how TBX4 and other rare genes are transforming lung development research. @phaware.bsky.social podcast ep 561 @TBX4_Life medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Luke Stockdale (560) the phaware® interview

From Knee Pain to Gene Discovery 🦵➡️🧬 Luke Stockdale shares how a routine family knee issue led to a TBX4 mutation diagnosis and its link to PAH. A story of genetics, advocacy, and hope. @phaware.bsky.social podcast ep 560 @TBX4_Life medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Matina Prapa, MD, PhD and Olivier Danhaive, MD (559) the phaware® interview

How a Global Team Is Rewriting the TBX4 Playbook: Drs. Matina Prapa and Olivier Danhaive on how @TBX4_Life is connecting rare disease experts worldwide to drive newborn screening, genetic testing & real-time change for patients. 🌍 @phaware.bsky.social podcast ep 559 medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Anton Morkin (558) the phaware® interview

One Dad’s Mission to Cure His Son’s Genetic Disease: Anton Morkin shares his fight, hope, and vision for the future of PH and rare disease care. It's an inspiring story of advocacy and resilience. 🎧 @phaware.bsky.social podcast ep 558 @TBX4_Life medium.com/p/im-aware-t...

I'm Aware That I'm Rare: the phaware® podcast: Episode 557 - Gaurav Choudhary, MD How an AI Stethoscope Could Transform Global Healthcare What if diagnosing PH didn’t require an echo or heart catheterization—but just a AI powered stethoscope? Dr. Gaurav Choudhary talks real-w...

Portable. Affordable. AI-powered. Dr. Gaurav Choudhary discusses how next-gen stethoscopes could revolutionize PH screening in under-resourced regions and how it could transform global healthcare @phaware.bsky.social podcast ep 557 @brownmedicine.bsky.social phawarepodcast.libsyn.com/site/episode...