Join us for HDSA's 5th Annual Golf for a Cure on Monday, May 11th 2026!
HDSA members Janelle Johnson and Melissa Stefanowich did a fantastic segment with Mass Appeal, raising awareness and supporting Golf for a Cure! Check out (and share!) the TV interview below:
www.wwlp.com/video/mass-a...
Buy spring flowers! 50% donated
---
It’s spring and time to get some flowers/bulbs to plant in your gardens! With this link you are also helping the HDSA MA/RI Chapter raise money to help us find a cure for HD! Please get your orders in by May 15th!
www.flowerpowerfundraising.com/index.php/ma...
On February 28, the MA & RI Chapter hosted Curling for a Cure with 62 curlers competing for medals and Red Sox gift cards. A silent auction and great food kept everyone energized. It was a fun day supporting the HD community! Enjoy the photos, and see if you can spot Dr. Sam Frank in the photos!
On November 15th, 2025, at Bentley University, the New England Regional Education Day will bring together researchers, caregivers, and families! Discovery begins with compassion, and behind every trial lies a story.
Register with the link here: massri.hdsa.org/.../2025-edu...
Huge welcome to our new Social Worker for the HDSA MA & RI Chapter!
#CureHD #LetsTalkAboutHD #HDSA
ℹ️ Contact: Michele Austin
📧 micheleaaustin@gmail.com | 📞 508-241-4576
🔗 Register and learn more: massri.hdsa.org/newenglandedday
💙 Empowering families. Advancing knowledge. Strengthening our community.
🏌️♂️ Join us for an exciting day at TopGolf Canton on Sunday, October 19th! Enjoy a brunch buffet, 3 hours of golf, and great company, all while supporting the Huntington’s Disease Society of America! ⛳
Watch the newest installment of the Disability Tips vlog here! Learn that Social Security Disability Attorneys do not cost money upfront! #cureHD #hope
Briden Roth, 13 years old, is the son of a member of the Prilenia team. He wanted to raise awareness of HD and created this short film of the team’s participation at the Boston Walk.
Let's work for more awareness of HD, a devastating disease with no cure or treatment to slow progression. #CureHD
Brittany Brown, Game Events & Services Coordinator, joins Tom Caron to highlight the importance of tonight’s Disability Pride Celebration at Fenway Park 👏
Many families affected by HD suffer in silence. HDSA isn't just about fundraising; it’s about showing up for those who are often unseen
#CureHD
Register here:
app.dvcomms.net/api/Communic...
Email Joey.Fredericks@gmail.com if you are interested in volunteering!
Register here:
app.dvcomms.net/api/Communic...
Email Joey.Fredericks@gmail.com if you are interested in volunteering!
Saturday, June 7, 2025
Registration Opens - 9:00 AM
walk Begins - 10:00 AM
Castle Island
2010 William J. Day Boulevard
South Boston, MA, 02127
Questions? Please contact:
JoEllen Fredericks
Joey.Fredericks@gmail.com
Join us at the scenic Castle Island on June 7 as we walk together—taking strides toward hope for Huntington’s Disease. Every step makes a difference. See you there!
Saturday, June 7, 2025
Registration - 9:00 AM
Walk Begins - 10:00 AM
2010 William J. Day Boulevard
South Boston, MA, 02127
🎉 Save the Date! 🧬
Join us for the 2025 Rhode Island Team Hope Walk in support of families affected by Huntington’s disease 💙
🗓️ Saturday, September 27, 2025
📍 Colt State Park, Bristol, RI
👕 Music, lunch, shirts, raffles & community!
Together, we walk for hope. Together, we fight for a cure. 💪
🚨 BREAKING NEWS 🚨
The FDA has just granted Breakthrough Therapy Designation to uniQure’s gene therapy candidate AMT-130 for Huntington’s Disease — a major milestone for the HD community and a leap forward in the fight for a cure. 💙🧬
👉 www.globenewswire.com/news-release...
🏌️♂️ Join us for the 4th Annual Golf for a Cure ⛳
📅 Monday, May 12, 2025
📍 Springfield Country Club, MA
Exciting MassApeal broadcast!
www.wwlp.com/.../golf-for...
📣 HDSA is hiring a part-time social worker in MA/RI! 💼
💲$50/hr | 15 hrs/month | Mostly remote
Support families w/ HD, run support groups, connect to care.
MSW req., LCSW pref.
📩 Send resume to jmarsolek@hdsa.org
#NowHiring #SocialWork #HDSA #HDcare
🧠✨ Attention HD Providers & Staff! ✨🧠
Join us for the Huntington's Disease Webinar Series, co-hosted by UMass & BIDMC HDSA Centers of Excellence.
🔗 Register here: forms.gle/qGZcnUCSmoZ8...
🧠💙 We’re planning our Education Day on Nov 15th, and we want to hear from YOU!
What HD-related topics would you like to learn more about?
Let us know through this quick anonymous survey ⬇️
docs.google.com/forms/d/e/1F...
On March 6, four HDSA MA & RI Board members toured the Brain Bank at McLean Hospital with Dr. Sabina Beretta, a key supporter of HD research. Meet Dr. Beretta at our Team Hope Walk on June 7 at Castle Island to learn about HD & brain donation! 💙 #HDSA #BrainDonation #TeamHopeWalk
