The association of physical function with psychosocial patient-reported outcomes in people with systemic lupus erythematosus. Graphical abstract created using BioRender

In two distinct cohorts of adults with lupus, several patient-reported outcomes, including fatigue, depression, perceived stress, coping, & self-efficacy, were consistently associated with physical function, reinforcing their relationship with overall health in SLE

AC&R
doi.org/10.1002/acr....

Psychosocial PROs assoc with physical function in SLE
doi.org/10.1002/acr....

Maintaining HCQ levels (750-1150 ng/mL) improves long-term SLE outcomes
doi.org/10.1002/acr....

Ahh you’re coming to EULAR!? Best news!!

Thank you for introducing me to those cute Boston ducks, @rheumcat.bsky.social! Loved them 😍

Missed you @kristenyoung.bsky.social!

I can absolutely vouch for this sushi, thank you @rheumcat.bsky.social !

I somehow managed to miss the puppies! 😩

Thank you @rcphysicians.bsky.social for featuring our work on health literacy

My summary on the GLP-1 data presented at #ACR25

Yes absolutely! This was discussed during the session.

🔗 Link to watch the session on-demand: lnkd.in/dPAhAyFK

🟣 Communication, trust & collaboration across the MDT are necessary.

Unless we tackle barriers to SDM, we can't facilitate good outcomes.

Huge thanks to #ACR & chairs for the invitation to speak, to mentors and collaborators, & all patients who provided input and inspiration for this presentation.

🔑 Key messages
🟣 Health literacy underpins SDM: without understanding, there is no true partnership.
🟣 Social context matters: decisions are not made isolated from patients’ daily realities.
🟣 Equity & empathy must guide SDM: tackling bias and barriers ensures everyone can participate meaningfully.

Implicit bias was another key focus- how unrecognised assumptions about age, race, gender, or socioeconomic background, to name a few factors, can influence clinician–patient dialogue and, ultimately, care. Acknowledging and addressing bias is essential if shared decision making is to be equitable.

Health literacy is a critical determinant of outcomes and patients’ ability to participate in SDM. Health literacy is not a single skill but a spectrum, influenced by education, social support and opportunity. Recognising this variation allows us to tailor care and communication effectively.

Patients may face barriers such as limited health literacy, competing demands, or cultural & language differences. Clinicians may struggle with time pressures, communication challenges or unconscious bias. At the system level inequities in access and fragmented care can further undermine engagement.

Chaired by Dr Jillian Rose-Smith & Eileen Davidson, and featuring Dr. Jennifer Barton, Dr. Karine Toupin April, and myself, the discussion explored how SDM can be strengthened across the multidisciplinary team.

A recurring theme was SDM depends as much on context as on conversation.

At #ACR25, the session “Enhancing Shared Decision Making in Rheumatic Disease Management” brought together clinicians, researchers & patients to reflect on what it means to share decisions in rheumatology, not as an abstract concept, but as lived practice shaped by communication, trust & equity.

Yes!! Unfortunately I had conflicts during your sessions, but I have the health literacy one to watch on demand. 😀

This was the highlight of my day!!

👉 5 clusters based on health literacy Q scores:
-highest health lit: older, fewer female, more comorbidities
-lowest health lit: younger, more anxiety & depression

🤔 Implications: older, more comorbidities were people with more healthcare engagement and pt education?

#ACR25

Abs 0190 @drminidey.bsky.social

📊 Data source: UK NEIAA
👨‍👨‍👦 Survey in 2024, n=995 respondents

💻 Cluster analysis to study relationship of health literacy & comorbidities

#ACR25

I get excited for this talk every year- looking forward to hearing Dr Tamika Webb-Detiege’s pearls of wisdom on #WorkLifeBalance to remind us that, as much as we love it, life is more than just about work.

A great start to #ACR25!
@rheumnow.bsky.social

Yes indeed- a totally surreal but brilliant experience. A great honour! Huge thanks to @kristenyoung.bsky.social for her question, always lovely to hear a familiar voice ☺️ See you all later this week!

#ACR25

From the UK @drminidey.bsky.social has focused on comorbidities & SDOH for people with rheumatic disease, and now focusing quite a bit on health literacy

acrabstracts.org/abstract/hea...

Thank you for sharing our work, much appreciated! #ACR25

Thank you for amplifying our work! 🙏🏼 #ACR25

Health Literacy diversity among rheumatology patients: insights from a tertiary rheumatology centre - ACR Meeting Abstracts Background/Purpose: Health literacy is a potential social determinant of health, fundamental to patient engagement, clinical communication, and long-term outcomes of disease. Understanding health…

#ACR25 countdown

More from @drminidey.bsky.social & colleagues; health literacy clustering analysis

acrabstracts.org/abstract/hea...

Health literacy and comorbidity burden: a cluster analysis in a national cohort of people with inflammatory arthritis - ACR Meeting Abstracts Background/Purpose: Health literacy is a social determinant of health in people with chronic diseases, including inflammatory arthritis (IA). We aimed to assess the association between health…

#ACR25 countdown

@drminidey.bsky.social 's work employing a cluster analysis

acrabstracts.org/abstract/hea...

#rmds #comorbidities #multimorbidity | Mrinalini Dey Last week, I was delighted to be invited to speak at the AGORA FEDERATION OF ASSOCIATIONS FOR PATIENTS WITH RMDs Annual Conference in Athens, bringing together patient-led organisations from across So...

Last week, I had the privilege of being invited to speak at the AGORA Annual Conference, bringing together patient organisations from across Southern Europe.

Read more about my experience and reflections here 👇🏼

#Multimorbidity
#RMDs

www.linkedin.com/posts/mrinal...

Association of health literacy with disease outcomes in inflammatory arthritis: a systematic review This study aims to conduct a systematic literature review (SLR) to summarise associations between health literacy and inflammatory arthritis (IA) outc…

Improving health literacy is likely to contribute to better disease control, mental health & patient experience.

Watch this space for further work in this area!

Huge thanks to all co-authors.

🔗 www.sciencedirect.com/science/arti...

@healthliteracyuk.bsky.social