Awareness
Limb Girdle Muscular Dystrophy (LGMD) is a rare genetic condition causing progressive muscle weakness in shoulders & hips.
⚠️ Early signs:
• Difficulty walking or climbing stairs
• Frequent falls
• Muscle weakness
🤝 Let’s raise awareness & support affected families.
We’re excited to announce the launch of our Professional Registration System! 🎉
Register now to get your unique ID and access future services, support programs & opportunities.
Be part of this important initiative 👇
musculardystrophypakistanform.netlify.app
#MuscularDystrophy #RareDisease
On behalf of Muscular Dystrophy Pakistan, I am honored to convey my message on the occasion of the Rare Disease Event held at Aga Khan University Hospital (AKUH), Karachi.
Grateful to Rare Diseases International (RDI) for welcoming Muscular Dystrophy Pakistan as an Associate Member 🇵🇰
🇵🇰 Proud moment!
Muscular Dystrophy Pakistan (MDP) joins RDI as an Associate Member 🌍
A big step for rare disease advocacy in Pakistan—strengthening global collaboration, patient support & access to care.
#RareDiseases #MDP #RDI #Pakistan
May the light of Eid illuminate your path and bring peace to your home. Sending prayers of health and joy to every MD patient and caregiver.
Eid Mubarak from:
Muscular Dystrophy Pakistan.
Eid Mubarak to our beloved MD community of entire universe...
Today we organized the Fundraising Run for Rare Pakistan 🏃♂️ to support the rare disease community, especially people living with Muscular Dystrophy.
Grateful to the communities in Pakistan 🇵🇰 and India 🇮🇳 for joining and supporting. All funds go to Muscular Dystrophy Pakistan.
Promising news for the LGMD community. announced encouraging interim results from the Phase 3 FORTIFY trial for LGMD2I/R9.
The investigational therapy BBP-418 showed improvements in walking, motor, and pulmonary function in people living with .
More: investor.bridgebio.com/news/news-de...
Let's Run For Rare Pakistan on 15 March
A Fundraising Run For Rare Community of Pakistan...
We are less than a week away from the MDA Clinical & Scientific Conference! I can't wait to reconnect with colleagues, exchange ideas, and dive into the latest breakthrough.
Join me:
i.snoball.it/p/T4hBjE/b/4
#MDAconference #Neuromuscular #MuscularDystrophy #MDA
Warm congratulations to Dr. Salman Kirmani on being invited as a distinguished speaker at the upcoming global webinar on Rare Disease Centers organized by Rare Diseases International (RDI).
Proud to see Pakistan represented on this important global platform.
🏃♂️ Run for Rare Pakistan – 15 March 🇵🇰
Participants across Pakistan are running and walking to support Muscular Dystrophy Pakistan and families living with rare diseases.
💙 Donate to support the cause:
Account Title: Muscular Dystrophy Pakistan
IBAN: PK46MPBL0184067140141180
Bank: Habib Metro Bank
🎥 Call for Video Clips – Run for Rare Pakistan 🏃♂️🇵🇰
Joining our 15 March – Run for Rare Pakistan? Send us your short video clip by 15 March to be featured.
Alone we are rare, together we are strong 💚
#RunForRarePakistan
#MuscularDystrophyPakistan
#RareButStrong
#15March
We extend heartfelt congratulations to the EveryLife Foundation for Rare Diseases for a successful Rare Disease Week at Capitol Hill.
Your leadership in advocacy, policy engagement & amplifying patient voices strengthens the global rare disease movement.
#RareDC2026
28 Feb – #RareDiseaseDay 🌍
Muscular Dystrophy Pakistan stands with millions of rare disease patients.
Rare is not weak. Rare is strong. 💪
Together, we raise awareness, promote early diagnosis & support families.
No patient should feel alone. ❤️
#MuscularDystrophyPakistan
Rare diseases are rare individually — but together they affect millions.
In Pakistan, families face delayed diagnosis & limited support.
Muscular Dystrophy Pakistan stands for early diagnosis, newborn screening & national awareness.
Rare is not weak. 💜
#RareDiseaseDay #MDPakistan #RareButStrong
Join us on March 15, 2026.
As we prepare for #RareDiseaseDay (Feb 28), Muscular Dystrophy Pakistan proudly stands with the EveryLife Foundation for Rare Diseases—empowering advocates, advancing research & amplifying patient voices worldwide.
@rare_advocates #StrongerTogether #RareDC2026
At 18, a fall during cricket changed my life. Years later, I was diagnosed with LGMDR1, a rare form of Muscular Dystrophy. There’s no cure — but there is purpose.
In 2021, I founded Muscular Dystrophy Pakistan to ensure no patient walks alone.
Rare is not weak. 💪
#RareDC2026
Donate This Ramadan & Earn Reward...
Ramadan kareem Mubarak
Support Newborn Screening for Muscular Dystrophies in Pakistan
We invite national and international donors and partners to support this critical initiative. Your contribution will help expand early diagnosis, strengthen local capacity, and provide affected families with timely guidance and care.
🌍 Rare Disease Day – 28 February 💙💜
Rare diseases are not as rare as we think. Today, over 5% of the world’s population lives with a rare disease — affecting millions of children, adults, and families globally.
Join us for Run for Rare Pakistan on 15 of this March.
Thank you for sharing this exciting update! 🎉
We at Muscular Dystrophy Pakistan warmly welcome the reauthorization of the Rare Pediatric Disease PRV Program.
The whole credit goes to our very kind Organization EveryLife Foundation For Rare Diseases to lead this one.
