Dawn Grandell volunteers as a support group leader to raise awareness for #pulmonaryhypertension and help others feel less alone.
This #VolunteerAppreciationWeek, learn more about the benefits of PHA support groups and how you can get involved:
buff.ly/KaLjZso
PHA recently hosted a workshop in Puerto Rico to increase #PH awareness.
More than 125 people were in attendance, including #patients and #caregivers, Puerto Rican care health officials and PH specialists.
Learn more about the event: buff.ly/0tmA8iN
April is Sjögren’s Awareness Month.
About 16% of Sjögren’s patients have pulmonary complications.
Common signs of Sjögren’s-related PH include cough, shortness of breath, leg swelling, chest pains and fainting.
Learn more: buff.ly/DNOV0Hu
In the latest issue of Pathlight, PHA celebrates its 35th anniversary!
In the cover story, founders Judy and Ed Simpson reflect on the founders’ goals and the organization’s history. The new issue also explores the evolution of patient education.
Learn more: buff.ly/FgZM9mZ
Cheryl Dehoney was diagnosed with #PAH in 2021.
Since then, she has spent thousands of dollars on airfare, traveling from Hawaii to California in search of the right care team and treatment.
Learn more about her story: buff.ly/qG3eE8C
Join us tonight at 8 p.m. EDT for our monthly virtual Young Adult Support Group.
Connect with other young adults with #pulmonaryhypertension and share experiences, support and tips to thrive with #PH.
Register now: buff.ly/kRh9hWY
During Capitol Hill Day, one of PHA’s goals was securing additional co-sponsors for the Safe Step Act.
As a result of these efforts, the bill gained three new co-sponsors: U.S. Reps. John Rutherford, Shomari Figures and Joe Wilson.
Learn more about the bill: buff.ly/V429vT3
Join us tomorrow, April 15, at 7 p.m. EDT for our monthly virtual Caregiver Support Group meeting.
Connect with others who understand what it’s like caring for someone with #PH and share caregiving strategies and advice.
Register now: buff.ly/WjuCCrx
Looking for a way to get involved at #PHA2026? Become a conference volunteer!
Volunteers are needed to provide translation support in the Research Room, assist with wheelchair services and pass out t-shirts at registration.
Register now to sign up as a volunteer. buff.ly/O5Epwgp
Today is the last chance to save on #PHA2026 registration. Register by 11:59 p.m. EDT to join the #pulmonaryhypertension community in Dallas, June 11-14. We’re PHixin’ to make PHA 2026 the best conference yet. Register now. buff.ly/O5Epwgp #PHixinToFindaCure
PHA Board of Trustees member Nicole Creech leads PHA’s Lexington, Kentucky, Support Group with Evelyn Mitchell.
Each year, they dedicate one meeting to caregivers who share their time and love with support group members.
Learn more about the importance of caregivers: buff.ly/F1ySLHC
Clinical trials play an important role in advancing #PH care.
Anna Hemnes, chair of the Department of Medicine at Vanderbilt Health, says without clinical trials, there would be no FDA-approved therapies for #PAH, #CTEPH and ILD-associated PH.
Learn more: buff.ly/R2yL5Wp
On the latest episode of PH Insights, host Jolie Lizana speaks with Mary Jo Farmer, a pulmonary, critical care and sleep medicine specialist, to discuss how #sleep can dramatically impact #pulmonaryhypertension.
Listen now: buff.ly/XwYGPAj
Researchers can now submit letters of intent to apply for the PFF-PHA ILD-PH Joint Research Award.
This grant supports research focused on #PH related to interstitial #lung disease, offering $100,000 of funding for two years.
Letters of intent are due May 29. Submit now: buff.ly/M6qO2Jk
After leaving New York City, Matt’s on his next adventure on route to #PHA2026 in Dallas this June.
His next stop is a windy city, home to two #PHCCs, a #PHA support group and #O2breatheWalk.
Can you guess where he is? Drop your guess in the comments below.
Sawanda Cornett was 22 years old when she received her #PH diagnosis. Twenty years later, she’s not just surviving; she’s thriving.
Your gift today ensures that PHA can continue to provide #resources, #community and #hope for every person affected by PH.
Donate now: buff.ly/JFzri3f
PHA is now accepting letters of intent for the Health Access & Outcomes Award.
This award supports research addressing health inequities in #PH, including early #diagnosis, #treatment outcomes and access to #care.
Letters of intent are due May 27. Submit now: buff.ly/M6qO2Jk
Are you PHixn’ to save on registration for #PHA2026?
Register by Monday, April 13, to score the best prices for PHA 2026, June 11-14, in Dallas.
Make sure your #PHA membership is valid through June 14 to receive member-only register rates.
buff.ly/ETJgR8c
#PHixintoFindaCure
A new research study found that the number of patients with methamphetamine-related pulmonary arterial hypertension nearly doubled from 2018 to 2022.
This finding is disproportionate to the rise in the estimated number of adults with past-year methamphetamine use.
Learn more: buff.ly/lTpOuEs
There is still time to submit your nomination for #PHA’s Outstanding Member Awards.
Recognize a fellow #PHcommunity member by nominating them for one of PHA’s nine awards. Visit the #PHA2026 website to view award descriptions and submit your nomination by April 20.
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The Greater Washington, D.C. O2breathe Walk is one month away!
Join the local PH community on Saturday, May 2, at Franconia Park in Alexandria, Virginia for a morning of celebration, connection and movement towards a cure.
Register now: buff.ly/aRRdntV
The SoCal O2breathe Walk is one month away!
Join us at Don Knabe Park in Cerritos for a Star Wars themed O2breathe Walk on Saturday, May 2, at 10 a.m. PST.
The PHorce is strong when we walk together. Register now: buff.ly/XxODBaN
The AnMed O2breathe Walk in Anderson, South Carolina is two weeks away!
Join us to celebrate the #pulmonaryhypertension community and to spread #PH awareness.
The event is held in memory of Tina Lisenby, founder of the Anderson #PH Support Group. Register now: buff.ly/S4gCF3w
In early March, 43 advocates attended PHA’s Capitol Hill Day to advocate for supplemental oxygen access for people with PH.
Three days after the event, Rep. Shomari Figures cosponsored the SOAR Act as a direct result of our efforts.
Learn more: buff.ly/Pmr3EID
Sawanda Cornett struggled to cope with her #PH diagnosis but found community and connection through PHA’s Houston Support Group.
Your gift today helps PHA provide support groups, educational resources and connections that transform isolation into community.
Give today: buff.ly/JFzri3f
The next PHORWARD webcast recording is now available.
Learn more about balancing work with personal responsibilities, setting expectations and building support systems.
The Women’s PHorum is sponsored by @gossamerbio.bsky.social with support from PHA.
Watch now: buff.ly/wJ4sIXt
#PHA president Matt Granato is on his way to Dallas for #PHA2026 this June.
After a stop at PHA HQ in #Washington, D.C., he’s heading to a city of bright lights, big entertainment and six #PHCCs.
Do you know where he is? Post your guess in the comments below!
The latest issue of “Advances in Pulmonary Hypertension” focuses on pediatric #PH.
Topics include congenital #heartdisease and other causes of PH, key differences from adult #PH, emerging therapies and more.
Read the issue: buff.ly/yVVvY5T
Did you know the Fashion Show has been a staple at #PHA conference since 2002?
Sign up for the #PHA2026 Fashion Show when you register for conference, set for June 11-14, in Dallas.
Register by April 13 to secure early bird rates.
buff.ly/4Jzdkb8
#PHIxintoFindaCure
PHA is now accepting letters of intent for the Pediatric PH Research Award.
The grant supports pilot #research projects aimed at advancing the understanding, #diagnosis and treatment of #pediatric #PH.
Letters of intent are due by May 4. Learn more: buff.ly/Pnd1j8K