My father joined the ancestors Sunday.The last few years I’ve stepped away from everything to care for him, to wake in the night, feed & change him while #ALS took his body, nerve by dying nerve. I am shredded. I’m grateful I chose to be by his side, to pour love into him. Rest well my Papa.

We’ve spent over 2 months trying to get a medication for my dad that would thin the mucus he can no longer clear. It isn’t available anywhere so I spend hours of my day daily w a suction tube in his mouth while he screams/chokes/cries. The system is so broken. One simple med, unavailable.

WORKING FAMILIES PARTY STATE OF THE UNION RESPONSE WORKING PEOPLE'S STATE OF THE UNION Given by Congresswoman Lateefah Simon March 4th at 8:30pm easter, 5:30pm Pacific

While Trump and Musk cut our healthcare, social security, and veteran's benefits — We fight. We're hosting our annual response to the president's joint address to Congress.

Given by Congresswoman Lateefah Simon and co-streamed by @underthedesknews.bsky.social

Sign up: wfpus.org/WFPSOTU

We have been careful to avoid using the word coup, but it’s time to call it what it is—this is a coup. Trump signed an executive order granting only the attorney general or the president the authority to interpret laws executed by the executive branch.

I’ve been influenced too! I love it. I do tret every other night and butt paste slugging the off nights over my moisturizer. I’ve noticed my neck is so much smoother when I use the butt paste, the crepe texture has totally minimized.

If I have any credibility or goodwill among you, please please please read this.

REVIVING THE FEDERAL DEATH PENALTY AND LIFTING THE MORATORIUM ON FEDERAL EXECUTIONS, applying to “aliens, who traverse our borders and remain in the United States without legal status.”
www.justice.gov/ag/media/138...

This is what revisionist history looks like, in real time. And this also is why it might appear that archaeologists and historians have to dig deep to discover the existence of powerful women and marginalized groups -- because their legacies are so often erased.

follow up: TRANS FOLKS, DONT GIVR THE GOVERNMENT YOUR PASSPORT!

they are holding ANY passport that’s trying to get a gender marker change/update, ARENT letting you renew if they know you’re trying to, and they are HOLDING PASSPORTS THAT REQUEST A GENDER MARKER CHANGE.

www.tiktok.com/t/ZT22nUxY5/

Spiritually and emotionally revisiting my dystopic short story “The Wall.”

It feels more prescient now than it did when I wrote it in 2017. The story isn’t online but it’s in a great collection “A People’s Future of the United States” edited by @johnjosephadams.com & @victorlavalle.bsky.social

A stone brick wall with a doorway in it, in the frame of the doorway the sun rises fiery orange in the haze of the border 2 fire

Sunrise with #border2fire
My phone buzzed with evacuation alerts from 1-5am. Not in the evacuation zone but it’s still too close

A small selection of diverse fantasy book recs so you can get a feel for the vibes here!
(Tagging the authors in the comments)
@skylight.social
#booksky #authorsky #readdiverse

Happy and feeling whiplashed. I was fully facing my coming dopamine drought with resolve and now it’s just back?

It felt like the last place on the internet where play was allowed and celebrated, organically and in fully unexpected ways 🥺

I was there until the last moment. So deeply bummed.

My world is small these days as I live with/care for my dying dad. TikTok is where I connect, laugh, play every day. I have friends there. I learn so much. It brings joy and levity to a pretty hard season of life and I’m devastated it’s being taken away. Millions of us will be in grief, and rage.

Dad's having terrifying choking episodes several times a day and my cortisol levels have me wrecked. ALS is the cruelest disease. We start in-home hospice next week; I'm deeply sad and ready for help. Pissed off dying Mexican dad choking and screaming chingada madre is a lot. It all is.

I have a story featuring a dystopian dentist called “mouths” at @lightspeedmagazine.com
Dentists and plumbers keep showing up in my short fiction, the insides of things fascinate me 🦷

😍 If you want to try the best vegan tacos EVER, check out Herbívora. I’ve thought about their oyster mushroom milanesa every day since September 🌮🍄‍🟫🌱

🫶🏽🙏🏽🫶🏽

Love and ease to all caretakers. I see you, I love you. This is a sacred act, hard and holy. May we one day be cared for with as much love as we offer.

Things will ease up when we start hospice, we’ll have more support and even thought I look forward to more support it’ll mean he’ll be closer to joining the ancestors and I’m not ready for that either. It’s all emotional whiplash, I feel like I’ve stepped outside of time.

I’m tired. I’m lonely. I’m unhealthy. I think this is called ambiguous grief. I had another heartbreak this week when a close friend told me “pain and suffering” is repellant to them. Noted. Another door closed.

I’ve been forcing myself to write a little. When I can, I get to the gym, when I move the words come, I get so excited then I get home and all love, all creative energy goes back to care, to cooking, cleaning, laundry. I used to cook/eat very clean and immigrant parents want their food, their way.

I’m living in a death portal and it has completely changed me. I love my father so much. I’m grateful I have the ability to care for him and my mom and I feel lost and scared every day. I have no fucking idea who I’ll be on the other side of this. I’ve gone so inward I’ve disappeared.

There’s this awful feeling of not being allowed to share what I’m living. I don’t want to be the crisis friend but I’ve become the crisis friend. Friends have quietly eased away, family members say it’s too hard see him like this. Only one friend of his comes by anymore. I feel so bad for dad

Moving back into my childhood home has brought up a lot.
Old wounds have opened up and my inner child is showing me how much I still carry: religious trauma, invisibility, judgement, being too emotional and sensitive for those around me so I’ve gone stoic, silent, dishonest about my feelings

I depleted the little savings I had and had to quit therapy, my one luxury expense, because I couldn’t afford it anymore. The support groups are hard to access, either online during active care hours or across the county during rush hour. I feel like a vortex of rage and grief and frustration.

He’s choking a lot, which is terrifying. I’ve learned to use a suction machine, on top of the other machines, to clear his throat. He’s scared and pissed off all of the time, and he wants to be here. He isn’t ready to die and I admire his will, even as I grieve. I haven’t been working.

Navigating the health care system is 😫. Example: we needed new masks for his ventilator, were explicitly specific to which ones. Xmas eve we got the wrong masks but we’ve had to use. They cut up his nostrils and face. Now there’s wound care on top of everything else. Still waiting for right masks.