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Posts by The PSP Association

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Join us at Neuro2026: The PSP & CBD International #Research Symposium with #CurePSP on 5–6 Nov 2026 at Hilton London Bankside for the latest in PSP & CBD research. Open to all researchers and #medical professionals. More info & tickets: ow.ly/fWsP50YMthA #Neuro2026 #Research

1 day ago 1 0 0 0
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Nature Partner Journals are seeking essays from clinicians, researchers & advocates on all forms of Dementia. Help shape “The Human Connection” journal. Find out more & submit your experience: ow.ly/CSNi50YIRfx #NeuroScience #BrainHealth #MedicalJournals

4 days ago 0 0 0 0
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We have a range of resources to help you support your patients living with PSP or CBD. From publications, to support groups, support grants to our Helpline, find out more about how you can best support your patients: ow.ly/oObr50YxZgn #HealthProfessionals #PatientSupport

2 weeks ago 1 0 0 0
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The new edition of PSPA Matters is here! 🎉 Featuring:
🔬 Our Research Strategy
🗣️ Partnership with ElevenLabs for Voice Banking
🧠 PSP & CBD research updates

👉Download now: ow.ly/4FJ950YxYWj #Magazine #Research #Updates #News #Neurology

2 weeks ago 1 0 0 0
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Take part in the study of a support app designed to help you manage acute stress, wellbeing, and emotional impact of challenging or traumatic incidents.
Participate here: hass.eu.qualtrics.com/jfe/form/SV_...
Or contact Bill Hodgson:
Hass-sentinelprojects@strath.ac.uk
Tel: 0141 548 5979

3 weeks ago 1 1 0 0
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Thank you to Ayoub Khan MP for bringing a Westminster Hall debate on Continuing #Healthcare. CHC funding should be a lifeline for people with PSP & CBD, but our State of CHC report shows the system is broken - fewer than 1/4 applications are successful. Report: tinyurl.com/3abzdyhy #NHS #CHCFunding

3 weeks ago 1 0 0 0
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We’re in Lincolnshire today for our Regional Awareness event, supporting families living with PSP & CBD. Hear from our Helpline & Support Services Manager, Peggy, about what the day will include!

#Events #FreeEvents #Lincolnshire #HealthcareProfressionals #Research

3 weeks ago 0 0 0 0
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Diagnosing PSP & CBD can be tough. Our posters highlight key red flags to help professionals during consultations. Find them and more resources here: ow.ly/Znjw50YxuMH #PSP #CBD #Diagnosis #Resources #Downloads #MedicalPosters

4 weeks ago 0 0 0 0
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Professor Johannes Attems, Professor of Neuropathology and member of the PSPA Research Committee chaired a session and presented at #ADPD2026 yesterday. His session was called ‘Linking Pathology and Biomarkers across Neurodegenerative #Disorders’ which looked at PSP & CBD. #MedicalConference

1 month ago 0 0 0 0
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Our Helpline Care Navigator's Cathy and Kaysha had a great day presenting about PSP & CBD and meeting healthcare professionals at the #Neurodegenerative Conditions Awareness event with @inspireneuroc in Farnborough today! #Healthcare #Awareness #neurology

1 month ago 1 0 0 0
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Watch our Research Coordinator, Megan share more about PSPA's poster from #ADPD2026 #research #researchposter #medicalconference

1 month ago 3 0 0 0
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One of our Trustees and Consultant #Neurologist, Dr Boyd Ghosh joined our Research Coordinator, Megan Hodgson at the AD/PD - Advances in #Science & Therapy #Conference in displaying our poster on "The Diagnostic Odyssey and Impact on Quality of Life in People with PSP & CBD"📝 #MedicalConference

1 month ago 0 0 0 0
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Our Research Coordinator, Megan Hodgson, is attending the AD/PD International #Conference on Alzheimer’s, Parkinson’s Diseases and related neurological disorders. It focuses on improving treatments for #neurodegenerative conditions.

1 month ago 1 1 0 0
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We previously unveiled our Understood Fund and the recipients of the grants. ICYMI you can watch this video where they share more about their research projects and how they hope to improve diagnosis, treatment and care for people living with PSP & CBD: ow.ly/SxUR50YosWn #research #researchstudies

1 month ago 1 0 0 0
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On average it takes three years to get a diagnosis of #PSP which we know isn’t good enough. That’s why we developed this helpful Eye Red Flag poster to help #healthcare professionals identify signs of PSP in the eyes. Download and share the poster: pspassociation.org.uk/wp-content/u... #eyehealth

1 month ago 1 0 0 0
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#Physiotherapists: Want to learn more about PSP & CBD? 🧠 Download our guide for practical tips on assessment, intervention and symptom management. Share with colleagues to help raise awareness! ⬇️ ow.ly/SmYn50YkZ0u #PSP #CBD #Physiotherapy #Resources #Downloads #Guide #Neurology

1 month ago 1 0 1 0
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🚨 Registration is OPEN for Neuro2026: The PSP & CBD International Research Symposium! 🚨
Join us & CurePSP on 5–6 Nov at Hilton Bankside, London, for the latest in PSP & CBD research. Connect with global experts! 🎟️ Book: give.curepsp.org/event/neuro2... #Neuro2026 #PSP #CBD #MedicalConference

1 month ago 0 0 1 0
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PSP & CBD Masterclasses - PSPA

PSPA has announced a schedule of four Masterclasses for the coming year. The first session of 2026, “The Impact of PSP & CBD on Cognition and Mental Health,” will take place on 25 March at 6.30pm in Glasgow.

Register here: www.pspassociation.org.uk/information-...

1 month ago 2 1 2 0
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Thank you so much for sharing 💜🧡

1 month ago 0 0 0 0
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Book your free tickets to our Cognition and Mental Health in PSP & CBD online Masterclass on Wednesday 25 March at 6:30pm. Our speaker is Dr Susan O'Connell Consultant Clinical Psychologist. Register here: ow.ly/K0Ys50YgHtb #masterclass #webinar #onlinelearning

1 month ago 1 0 0 0
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Call for collaborators in AI and machine learning for multimodal precision brain health. Join an international DEMON Network review shaping methods for personalised interventions.

www.dementiaresearcher.nihr.ac.uk/call-for-col...

2 months ago 2 2 0 0
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We’re proud to launch our 2026–2030 Research Strategy: Research for Impact! Built with input from people living with PSP & CBD, we’re focusing on Diagnosis, Treatment & Care. Watch why research matters: youtu.be/KQhNuOi-e8o #ResearchStrategy #PSPResearch #CBDResearch

2 months ago 1 1 0 0
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US civil rights leader Jesse Jackson dies aged 84 - live updates Jackson, who marched with Martin Luther King Jr in the 1960s and later ran for president twice, died peacefully on Tuesday morning surrounded by his family.

We are sorry to hear of the passing of civil right leader, Jesse Jackson. He was diagnosed with Progressive Supranuclear Palsy (#PSP) last year. www.bbc.co.uk/news/live/c3...

2 months ago 1 0 0 0
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🌟 BOOKING OPEN! 🌟 Don’t miss our FREE Masterclass: “Cognition & Mental Health in PSP & CBD” with Dr Susan O’Connell, Wed 25 March, 6:30pm. Learn about cognitive changes & mental health in PSP & CBD. Sign up: ow.ly/Pgw150YgWt3 #PSP #CBD #Cognition #Webinar #Neuropsychology #Zoom

2 months ago 1 0 1 0
Red background with white text that reads, "Have you been affected by Carer’s Allowance overpayments?" Below the text is the Carers UK logo.

Red background with white text that reads, "Have you been affected by Carer’s Allowance overpayments?" Below the text is the Carers UK logo.

Have you experienced a Carer's Allowance overpayment?

We're gathering insights from carers and advisers to build strong evidence for why the system needs to change and better meet carers' needs.

Share your experience https://carersuk.pulse.ly/oj025pjk7w

2 months ago 2 2 0 0
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Discover strategies to support people with PSP & CBD. Specialist Physiotherapist Jade Donnelly covered clinical insights, mobility tips, and therapy approaches in our masterclass. Watch now: ow.ly/Sxqr50Y9c43 #PSP #CBD #webinar #healthcare

2 months ago 1 0 1 0
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Health and social care professionals in Lincolnshire: Join our FREE PSP & CBD Awareness Event! 🧠

📅 Wed 25 Mar 2026, 1:30–4pm
📍 Petwood Hotel

Learn to spot signs, support those affected and connect with peers. Book: bit.ly/PSPALincs2026

#events #lincolnshire #healthcare

2 months ago 1 0 0 0
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Are you a health or social care professional working with PSP or CBD? Our #free guides offer practical insights to help you provide the best care. Download and share with your colleagues to make a difference!
👉 ow.ly/WjWx50Y4W2a #PSP #CBD #Downloads #Guides

2 months ago 2 1 1 0
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🌟 Health and social care professionals 🌟

Join our first in-person event of 2026 to learn about PSP & CBD, how to spot the signs, and ways to support your patients.

🗓️ Wed 25 March | 1:30–4:30pm Book FREE: ow.ly/wVWY50Y4KK7 #Healthcare #Events #MedicalProfessionals

2 months ago 1 0 0 0
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Remember, the PSPA is here to #support you and your patients. Take a look at our helpful #poster that shows the different areas of support you can access for yourself and your patients. You can also find out more on our #Healthcare Professionals Hub: ow.ly/mZmX50Y09ix #resources

2 months ago 1 0 0 0