A friend of mine caught COVID from a high profile mini-celebrity on Twitter when he stayed with her and her husband on an organizing trip.
For her, it turned into long COVID and ruined her health.
Heading out on the road today, to keep spreading the word about Long COVID and the lives it destroys
I may have someone for you.
You may not know @taskmaster.tv. It's hilarious & joyful. I begged to do it, worked out my schedule a year ahead of time to make it happen & got to do the best show on TV w/ the loveliest ppl. Ep 1 is out &, trust me, you need this joy. All seasons free on youtube.
www.youtube.com/watch?v=oRfH...
I'm moonscrolling
I feel like an astronaut in the ocean
the emergency? it's FRIDAY!!
enjoying your bsky poaster era eush
And if you went to the (sadly closed) retail store he'd just be hanging out and eating lunch, always in the hat
The binocular vision dysfunction club to be precise
Dammit yet again I’m in the club
i keep being told this about the work i do too, and unfortunately i am learning how much people are satisfied with garbage
OH I have been on a whole CPAP/bipap journey recently and happy to share notes on my experiences if at all helpful. #1 tip is to put an SD card in your machine so you can look at the data yourself. Much more useful than the very basic statistics the machine displays.
Not a club I want to be in, but since I'm in it, I'm happy to be in it with y'all! 😂
I get weird transient ear congestion (it's like one ear is full of water) that never happened before COVID. It's near the bottom of my list of concerning symptoms but I do not like it one bit
Preprint: "Our findings indicate that SARS-CoV-2 maintains high household transmissibility and requires substantial medical resources in the post-pandemic era." (Over a third of Covid transmissions in the study occurred before infected people showed symptoms.) doi.org/10.21203/rs....
Unfortunately it looks like it won’t buzz you when you it a HR threshold - but it will change the color on the screen. Apparently things a technical limitation unless you put it in “activity” mode, which is the equivalent of what tachymon does.
Via reddit, I just discovered a free Garmin watch face designed for pacing - testing it out now and will report back! sites.google.com/view/pacing-...
I've been internet pen pals with a Japanese LC advocate and it's been nice (and hard!) to write in Japanese again. But same for me – it's a nice surprise to discover that I still remember some of it!
A screenshot of the part of the accessibility settings with the option of “Require alt text before posting” selected
Reminder: including alt-text on your images is helpful in many ways! It increases accessibility, can add context/detail, makes search more effective, & can improve your reach (a lot of us won’t re-share images without alt-text). If you set it as required in accessibility settings, you can’t forget!
Beautiful, gutting, and utterly relatable at the same time. I am so privileged to have been to Julie's home and to spend some time at Beth's shrine. The kind of knowing they shared with each other is just so powerful and important, especially in a world where it feels like there's so much distance.
they give it to me this way, too! I get ~3 months at a time by mail order and they just send me 3 stock bottles. I'm surprised because it seems they don't make bigger bottles??
Kira makes a compelling offer!!!
My allergist/immunologist told me their clinic is becoming overwhelmed with MCAS patients and they’re looking for an MCAS specialist but there’s really none out there.
Science Direct: "Elevated blood viscosity is associated with dysautonomia in long COVID symptoms"
By Nancy Klimas, Ana Palacio et al.
www.sciencedirect.com/science/arti...
right now the astronauts are calling houston because the computer on the spaceship is running two instances of microsoft outlook and they can't figure out why. nasa is about to remote into the computer
That was a real jolt
THE LANCET Infectious Diseases COMMENT • Online first, March 31, 2026 The case for routine patient review in long COVID research Letícia Soares . CH Romatowski . Gina Assaf . Chloé de Canson
Many Long COVID scientists fail to meaningfully draw on the insights of patient-researchers. In our Comment for @thelancetinfdis.bsky.social, we propose a solution: make all Long COVID papers undergo pre-publication patient review. 1/
