Finding reliable info on a rare disease shouldn't be a struggle. When Julian was diagnosed with #PSC, his family turned to us for answers. We provide expert-vetted, accurate information for the entire PSC community - patients, family, and friends.
We’re here for you: pscsupport.org.uk #LetsBeatPSC
Posts by Martine Walmsley
We welcome this important research from @icrlondon.bsky.social & St Mark's Hospital. They've found a way to predict #BowelCancer risk in people with #InflammatoryBowelDisease.
This could help guide treatment & colonoscopy frequency and may lead to more personalised care for those with #PSC-IBD
Starting to come up with ideas for #20kyourway #pscsupport #LiverSky #PSC
🎆Research granted🎆
Grants always carry a sense of responsibility, but receiving one from a patient organization takes this to a whole new level
PSC Support decided to support our project Multiomics data for personalised PSC prognosis
#PSCSupport #AI
#Personnalised_medicine #Hepatology
2025 is the perfect year to take your career to the next level🚀
There are also 6 positions to fill in the EASL Scientific Committee, Policy Public Health and Advocacy Committee, Ethics and Compliance Committee and Nurses & AHPs Task Force.
Apply by 20 January: easl.eu/leadership25
#LiverSky
Welcome to BlueSky Martine Walmsley, Head of Research Strategy PSC Support @f8martine.bsky.social.
Check out our growing PSC Starter Pack (I've added you!) go.bsky.app/6hLJsJT Please suggest any new PSC people to add.
#PSC
Thanks @katecoldwell.bsky.social Great Starter Pack! I'll tag some people here over the weekend!
New work from us:
Oral vancomycin is associated with attenuation in IBD activity in people with PSC. We also studied changes in gut microbiome profile, and key transcriptomic and metabolomic features.
academic.oup.com/ecco-jcc/adv...
Pleased that #FARGO - a randomised, multicentre, placebo-controlled phase IIa trial of #FMT to treat #PSC - is running and recruiting. Have a look at the protocol paper out now in #BMJOpen: doi.org/10.1136/bmjo... @pscsupport.bsky.social @cholestasisdoc.bsky.social