@tuffrey-wijne.com

Webinar recording day!!!
Here's the webinar production team!

Hundreds of people attended live.
Missed it? The recording will be on YouTube soon.

But nothing beats a live attendance, so don't miss our next webinar! 5th March 2026
You can already register here:
shorturl.at/AO3Ll

An amazing 700 people have signed up to our webinar on Thursday... but there's always room for more! Join the crowd at lunchtime!
Register here:
shorturl.at/crMpL

Ooooh that would be a early alarm clock! Would love to have you join us live but yes, we will record it!

Continuing our new webinar series! On 4th Dec (1pm), some of our amazing team will tell you about The DAPPLE Project and its early findings. Don't miss it! Sign up here:

shorturl.at/YCDmW

34. "Don’t keep assessing us for our benefits cos our learning disability will not go away!" Richard shares his thoughts on benefits for people with a learning disability.

“You have to always highlight the stuff that you can’t do. It makes you feel bad”

In this important blog, Richard explains what it feels like to be assessed again and again in order to keep his benefits and support

www.dappleproject.com/post/34-don-...

33. How do you take yours? We quite like making cups of tea in our office and we have a bit of a joke in the office about Jo’s tea-making skills. She hasn’t quite got it right yet and is still, after years of being at Kingston ...

www.dappleproject.com/post/33-how-...

Thank you for sharing!

Can you help us find study participants? I am part of the READY Study team. We want to listen to family or paid carers of people with a learning disability who died, learning more about people who died of something other than cancer or dementia. Get in touch if you want to find out more

WEBINAR: Talking about dying with people with learning disabilities YouTube video by Victoria & Stuart Project

Missed our webinar? The recording is now on YouTube, so you can catch up!

youtu.be/AK_2EtY8VXo

Kicking off our new webinar series…. Here we were in the office yesterday, hosting a webinar on our end-of-life care planning toolkit!
@mariecurieuk.bsky.social

Looking forward to kicking off our new webinar series tomorrow! We’ll show you how to use our toolkit for end of life care planning - and how to get your own free resources! You can still register:

shorturl.at/LgOPC

www.chapelgarth.com

www.chapelgarth.com

Academic writing retreat! I’d never heard of it, let alone been on one, but it was glorious. In Yorkshire, with 5 of my lovely colleagues, cut off from the world (no emails!), between us we worked on 2 grant applications and 4 academic articles. Also included: walks, lamas, yoga and great food!

Excellent name for the co-production group. It does what it says on the tin! As always, our colleagues with learning disabilities nailed it with unambiguous language

30. Order your FREE printed end of life care planning toolkit! We are taking a short break from our usual DAPPLE updates this week.  That’s because we’ve got some exciting news to share…The Print & Deliver service is LIVE!Everyone should get the chance to talk ab...

Spread the word! 📣

www.dappleproject.com/post/30-orde...

Can’t believe it’s a year already! What a great project & great team

Adults with learning disabilities die 20 years early, says report People with learning disabilities and autism die almost 20 years younger than the rest of the population.

My colleague Richard told the BBC he found the findings "really upsetting".
"People are still dying quite young and are not getting the right support and care. It could be me or it could be somebody I know and I want these deaths to be taken really seriously."

www.bbc.co.uk/news/article...

“It’s very important that people read this report”. Find it here: www.kcl.ac.uk/research/leder

LeDeR 2023 REPORT YouTube video by Staying Alive and Well

Easy read and accessible versions of the LeDeR 2023 report are available to ensure findings reach everyone. These materials make research accessible to people with a learning disability, their families, and carers.

Here is the video made by the Staying Alive and Well Group

youtu.be/qRUdWqz20jg

Learning from Lives and Deaths – people with a learning disability and autistic people (LeDeR) The latest annual LeDeR report in collaboration with our academic partners on behalf of NHS England.

The new LeDeR report is now available. The 2023 annual report analyses the deaths of 3,556 people with a learning disability & autistic people who died in 2023. The work is part of efforts to reduce health inequalities.

Access here: kcl.ac.uk/research/leder

FREE end of life care planning toolkit sent to your door YouTube video by Victoria & Stuart Project

Be one of the first to order. Launching today!

(UK only - other countries can still freely download and print at home)

Order link is in this short video. Please share!

youtu.be/VrntRIJCdXY?...

@andreabruun.bsky.social @mariecurieuk.bsky.social

Out with a bang, literally! Ours was the final presentation on the final conference day, and just as we finished, Utrecht’s church bells rang out
@asdsdeath.bsky.social
@victoria&stuart project

ASDS logo. Text: The Victoria and Stuart Project, 2025 ASDS Public Engagement Award winner.

"The remarkable project reaches an under-served community and provides numerous accessible resources around the often neglected area of end of life care planning with people with learning disabilities."

The Victoria and Stuart Project wins the ASDS Public Engagement Award. @tuffrey-wijne.com #ddd17

So proud of my team that has co-produced an amazing end-of-life care planning toolkit! Find it here:
www.victoriaandstuart.com

Got all excited to see this IKEA coffin at #ddd17 conference. A snip at €80. I want one! My family and friends can decorate it. I find the DIY approach helpful

Then I discovered it was a hoax. Alas! Perhaps we should start a please-sell-affordable-coffins-on-the-high street movement?

Brilliant book. Stories about life, not death - because everyone who dies, even if they have no-one in their life (anymore) who can organise their funeral, has a story. Loved listening to Evie King at the #DDD17 conference book group yesterday. Her talk, like her book, made me laugh, cry - and think

Not to be missed!

Arrived at the DDD Conference (Death, Dying & Disposal) in Utrecht, Netherlands! Accompanied, as usual, by our team mascot Pierre

Looking forward to hearing about research and experiences from cultures, societies and minoritised groups across the world
#ddd17