The JLA has supported many women's health PSPs to completion, centring women's experiences so researchers and funders know which research questions matter most.
Now, the Women's Heart Health PSP needs your help to identify priorities for future research. Take part in the PSP survey: buff.ly/5MXjprS
Help identify the most important research questions for about brain-computer interfaces.
People with motor neurone disease/ALS, spinal cord injury, stroke — and their families, carers and healthcare professionals — are invited to pick the 10 questions that matter most:
The Addiction Healthcare Goals PSP worked with healthcare professionals, people with experience of addictions or who use alcohol or drugs problematically, and their families, to identify and prioritise questions for future research to answer.
📄Learn more:
Professor Lis Neubeck, Clinical Research Champion for the NHS Research Scotland Cardiovascular Network, leaning against a wall and smiling at the camera, dressed in a red blazer and black top. A quote alongside her reads: "If we are to successfully bridge gaps in research and ultimately break down lingering inequalities around women’s heart health, then effectively capturing areas of greatest need is an essential first step." The NHS Research Scotland logo is visible.
Healthcare professionals, patients or those with lived experience of women’s heart disease, and carers across Scotland are invited to get involved in a @jameslindalliance.bsky.social research survey which is open for 12 weeks. @heartresearchuk.bsky.social
Read more 🔗 https://tinyurl.com/k5yynba8
The Child and Adolescent Cancer (Australia) PSP shared the priorities for future research. The PSP worked with children and adolescents who were diagnosed with cancer, their families, and the health care professionals who support them.
📄Find out more in their latest report: buff.ly/dfxfQri
📢 Free event - Sickle Cell & Me: Genomics research & Theatre production
Join for genomics research insights and an immersive theatre production. The Sickle Cell Genomics PSP is proud to showcase the research priorities identified through the PSP.
Sign up here: buff.ly/jBGN1DH
Only a few wks left to add your voice to the future of women’s❤️health research @jameslindalliance.bsky.social
We’re gathering input from across the UK & ROI all ages, backgrounds, communities
Please share with colleagues, friends & family every perspective counts
🔗 forms.cloud.microsoft/e/UdYkKRnDua
📄New journal article.
The Polycystic Ovary Syndrome (PCOS) PSP has shared the top priorities for future research. Find out more about the priorities for PCOS research and how they were identified in this publication:
Professor Lis Neubeck, Clinical Research Champion for the NHS Research Scotland Cardiovascular Network, leaning against a wall and smiling at the camera, dressed in a red blazer and black top. A quote alongside her reads: "If we are to successfully bridge gaps in research and ultimately break down lingering inequalities around women’s heart health, then effectively capturing areas of greatest need is an essential first step." The NHS Research Scotland logo is visible.
Healthcare professionals, patients or those with lived experience of women’s heart disease, and carers across Scotland are invited to get involved in a @jameslindalliance.bsky.social research survey which is open for 12 weeks. @heartresearchuk.bsky.social
Read more 🔗 https://tinyurl.com/k5yynba8
Professor Lis Neubeck, Clinical Research Champion for the NHS Research Scotland Cardiovascular Network, leaning against a wall and smiling at the camera, dressed in a red blazer and black top. A quote alongside her reads: "If we are to successfully bridge gaps in research and ultimately break down lingering inequalities around women’s heart health, then effectively capturing areas of greatest need is an essential first step." The NHS Research Scotland logo is visible.
Healthcare professionals, patients or those with lived experience of women’s heart disease, and carers across Scotland are invited to get involved in a @jameslindalliance.bsky.social research survey which is open for 12 weeks. @heartresearchuk.bsky.social
Read more 🔗 https://tinyurl.com/k5yynba8
Explore the priorities for future research into Diabetic Eye Disease in Low- and Middle-Income Countries (LMICs): buff.ly/oRQl9Bv
The priorities identified aim to be of relevance to LMICs globally. Find out more on the PSP page: buff.ly/LyWZDtE
CCLG: the Children & Young People's Cancer Association, has launched a report which maps funding of childhood cancer research in the UK from 2020 - 2025 against the top 23 Priorities from the JLA PSP in Children's Cancer.
📄Read their findings:
The Adolescent and Young Adult Cancer (Canada) PSP identified the Top 10 priorities for adolescent and young adult cancer research.
📄Find out more about the PSP's findings in their latest journal article: buff.ly/ogZsNOz
📢Help shape childhood fracture research in the UK.
What research do you think is needed to improve the the experiences of young people with fractures? Your ideas will help researchers study the most important issues to patients and healthcare professionals.
Take part here:
📢New Top 10!
The Diabetic Eye Disease in Low- and Middle-Income Countries (LMICs) PSP has announced the top priorities for future research to improve prevention and care of diabetic eye disease in LMICs.
📄Find out more in our latest news article:
Many of the guidelines also fit into the @jameslindalliance.bsky.social/SRF top 10 research priorities and we continue to call for research funders to look to fund studies that address these priorities to enable better evidence-based guidelines in the future.
The Essential Tremor PSP recently launched the top priorities for future research, but some questions that were important to the essential tremor community fell outside of the PSP's scope.
In our latest news article, the Essential Tremor PSP addresses these out-of-scope questions:
📢New PSP report!
The Childhood Deafness and Hearing Loss PSP worked with a wide range of adults and children with experience or professional understanding of childhood deafness. Together, they identified the top priorities for future research.
Read the PSP's report here: buff.ly/FPGS7nC
The Forensic Mental Health and Neurodiversity PSP worked with service users, their support networks and service providers to identify priorities for research into forensic mental health and neurodiversity.
The top research priorities are now available on the JLA website: buff.ly/32ZvcZi
📢What's new on the JLA website?
The Sickle Cell and Genomics PSP introduced innovative engagement activities to make the process more inclusive and accessible for the sickle cell community.
Find out more in our latest news item:
The Problematic Hip Replacement PSP identified unanswered questions about the assessment, management & rehabilitation of patients with problematic hip replacements from patient and clinical perspectives.
🔗Find out more about the PSP in this open access journal article:
💭What are the most important questions about the Allied Health Professions (AHP) workforce that research should try to answer?
To have your say on which questions should be a priority for future research, please complete the following survey:
The Developmental Coordination Disorder PSP worked with people who have lived experience, carers, educators, employers, academics and health and social care practitioners to identify and prioritise uncertainties about dyspraxia.
🔗Check out the Top 10 priorities for future research:
The @jameslindalliance.bsky.social Research Priorities Exercise on Problematic Hip Replacement Research now out - bmjopen.bmj.com/content/16/3...
🤔 What do you think are the most important questions about shoulder osteoarthritis?
If you have lived and/or professional experience of shoulder osteoarthritis, and you are based in Australia or New Zealand, complete the survey to share your views:
buff.ly/fWcW0Lh
Yesterday was #WorldDeliriumAwarenessDay. Today we are pleased to share the second survey from the Delirium (Australia & New Zealand) PSP.
Share your thoughts on the key questions that should guide delirium research:
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📢What's new on the JLA website?
Find out more about newly started JLA Priority Setting Partnerships (PSPs) on our website:
- Canadian Network for Psychedelic-Assisted Cancer Therapy (CAN-PACT) PSP
🔗 buff.ly/Ms5zBo0
- Childhood Limb Fractures PSP
🔗 buff.ly/85KQrVk
The final workshop of a Priority Setting Partnership (PSP) enables patients, carers and healthcare professionals to agree the Top 10 priorities for future research. All PSP Top 10s are on our website.
🌟We encourage researchers and funders to align future work with these priorities: buff.ly/I8594a9
📢 Have you worked in or used same day and urgent care services?
What questions do you think research should answer about the same day and urgent care workforce? Have your say to help shape future research.
🔗https://buff.ly/43aswhM
🗓 Survey closes 31st March
We need your help! As part of our priority setting partnership in association with the @jameslindalliance.bsky.social we are opening our second survey to determine the highest priority questions for research! 💡
⭐Open to professionals, patients and carers!
uwe.eu.qualtrics.com/jfe/form/SV_...