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3/3
Posts by Two Faces of MS š
From COVID lessons to global perspectives, this is an honest discussion about how science, media, and policy collide, and why it matters for all of us. 2/3
Tune in and share your thoughts.
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Episode 3 of #PatientToPurpose dropped today
Vaccines. Trust. Politics. Public health.
In this episode of Patient to Purpose, we dig into the complex (and often chaotic) conversation around vaccines, whatās fact, whatās fear, and whatās at stake. 1/3
#VaccinesWork #TrustScience #HealthcareForAll
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Vaccines shouldnāt be this confusing, but here we are.
New #PatientToPurpose episode on Wednesday dives into:
⢠science vs emotion
⢠misinformation & algorithms
⢠politics shaping health decisions
Itās messy, real, & important
š§ Listen + think critically
#TrustScience #VaccinesWork #HealthcareForAll
@petermorley.bsky.social have you seen this?
open.substack.com/pub/healthca...
www.blbglaw.com/news/updates...
This is SO bad. Shame on the org for giving voice to harmful people.
Episode 2 #PatientToPurpose just dropped. Smash that like & subscribe
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Watch this space Wednesday, March 18 for the latest episode of #PatientToPurpose where we chat about Access, Equity, & Engagement: Designing Care Around Patients
Donāt forget to like, share, & follow on your favorite podcast platforms.
I've had the WORST time trying to fill my RXs for my health w/PAs after dealing with this for MANY years. Sure there was a snag or 2 but this year I'm up to 7. My time & energy have been devoted to calling my insurance plan, the approval plan and my doctors offices. This is why you haven't seen me.š
I just wrote a piece about access. Most people just donāt get it.
open.substack.com/pub/healthca...
I wrote a piece for @wendellpotter.bsky.socialās #HealthcareUncovered about the business of healthcare
āThe $10,000 Deductible and the Myth of āAffordableā Careā
#HealthcareForAll #Access
open.substack.com/pub/healthca...
If you appreciate what you hear, please smash those like and follow buttons, subscribe to the show on your favorite listening app, and feel free to share.
We're also looking for guests. If you, or someone you know, would be a good fit, please reach out and / or send in ideas. FIN/
Season 1, Episode 1 now available on your preferred platform 7/
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Introducing Patient to Purpose where an individual's experience with illness, injury, or a health crisis leads them to discover a new, meaningful mission or purpose in life. We will launch a new episode twice a month. Stay tuned... 6/
erohealthcommunications.com/patient-to-p...
On this first anniversary of losing my mom I want to honor her memory by fulfilling a goal that she knew I could do before I did. Itās bittersweet, but I can hear her voice in my head saying, āgood job kiddo.ā
5/ youtu.be/oJTY46ZJk6w
Going back about 20 years, I did an outline for a book with a similar theme. She absolutely thought it could be published, but it wasn't the right time for me. As they say, sometimes the journey is more important than the destination. 4/
As usual, the first person I called to tell / discuss it with was my mom.
Me: I think I'm going to do a podcast
Mom: What? That's terrific.
Me: But there are SO many podcasts, why would anyone listen?
Mom: Because your storytelling is different. Just do it.
www.legacy.com/person/Jane-... 3/
I thought, "oh right, just what everyone needs, another podcast." Instead I said, "what do you have in mind?" He gave me some food for thought and off I went to scan the usual platforms. And to my surprise, no one was doing our idea. Some have facets of it, but not exactly what we are doing. 2/
PATIENT TO PURPOSE
In the fall of 2024 a former colleague, now friend, from my Roche days approached me about doing a podcast. At that point he'd had his own show for a few years talking about market access for medicines. 1/
www.linkedin.com/in/stefanwal...
Exactly! We were all stymied. And it all reports up to the NY DoH. They literally could have flipped a switch in October when it first surfaced.
Watch this space š
Coming soonā¦
#PatientToPurpose #Advocacy #Engagment #AccessToHealthcare
She has been covering for them for over 20 years.
Keeping in mind that all of the agencies that oversee HC in NY report into the DoH. They finally did a hard reset on my account & pushed it through. We need single payer. Because if someone like me canāt do it, muggles have no chance. 2/2
Iāve worked in healthcare for 30 years, lived with MS for 16, & am a board certified patient advocate. NY screwed up my ins so bad this year (exchange) that it took me & three other ppl, including 1 from my state assembly memberās office, four months & about 100 hours, to fix it. 1/2
Coming soonā¦watch this space š
#Patients #Engagement
As a precursor to launching my podcast, Patient to Purpose, next month, I was recently on my co-host's show; a soft launch as it were. Give a listen when you can. I'm still getting used to my recorded voice, so be kind. It's also available on a podcast platform near you.
#NoDecisionForUsWithoutUs