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Posts by Two Faces of MS šŸ’‹

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3/3

1 week ago 1 0 0 0
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From COVID lessons to global perspectives, this is an honest discussion about how science, media, and policy collide, and why it matters for all of us. 2/3

Tune in and share your thoughts.

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1 week ago 1 0 1 0
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Patient to Purpose - ERO Health Communications Patient to Purpose Hosts Listen to us on your favorite podcast platformApple Podcasts Spotify Amazon Music YouTube MusicReach out for questions or episode ideas The phraseĀ ā€œFrom Patient to Purposeā€Ā or...

Episode 3 of #PatientToPurpose dropped today

Vaccines. Trust. Politics. Public health.

In this episode of Patient to Purpose, we dig into the complex (and often chaotic) conversation around vaccines, what’s fact, what’s fear, and what’s at stake. 1/3

#VaccinesWork #TrustScience #HealthcareForAll

1 week ago 0 0 1 0
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2 weeks ago 0 0 0 0

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2 weeks ago 0 0 0 0
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Vaccines shouldn’t be this confusing, but here we are.
New #PatientToPurpose episode on Wednesday dives into:
• science vs emotion
• misinformation & algorithms
• politics shaping health decisions
It’s messy, real, & important
šŸŽ§ Listen + think critically
#TrustScience #VaccinesWork #HealthcareForAll

2 weeks ago 0 0 1 0
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Express Scripts Just Got Sued for Racketeering. Here’s What That Means. Plaintiffs say a shadowy offshore entity helped Cigna and its PBM quietly siphon money meant for employers, unions and patients.

@petermorley.bsky.social have you seen this?

open.substack.com/pub/healthca...

www.blbglaw.com/news/updates...

3 weeks ago 0 0 0 1

This is SO bad. Shame on the org for giving voice to harmful people.

3 weeks ago 3 0 0 0
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Patient To Purpose Business Podcast Ā· Updated Biweekly Ā· The phrase ā€œFrom Patient to Purposeā€ or ā€œPatient to Purposeā€ often describes a transformative journey where an individual’s experience with illness, injury, or a ...

Episode 2 #PatientToPurpose just dropped. Smash that like & subscribe

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1 month ago 0 0 0 0
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Watch this space Wednesday, March 18 for the latest episode of #PatientToPurpose where we chat about Access, Equity, & Engagement: Designing Care Around Patients

Don’t forget to like, share, & follow on your favorite podcast platforms.

1 month ago 0 1 0 0

I've had the WORST time trying to fill my RXs for my health w/PAs after dealing with this for MANY years. Sure there was a snag or 2 but this year I'm up to 7. My time & energy have been devoted to calling my insurance plan, the approval plan and my doctors offices. This is why you haven't seen me.šŸ™

1 month ago 139 26 22 2
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The $10,000 Deductible and the Myth of ā€˜Affordable’ Care How disappearing ACA subsidies, soaring premiums, and bureaucratic chaos nearly left a consultant with multiple sclerosis uninsured.

I just wrote a piece about access. Most people just don’t get it.

open.substack.com/pub/healthca...

1 month ago 0 0 0 0
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The $10,000 Deductible and the Myth of ā€˜Affordable’ Care How disappearing ACA subsidies, soaring premiums, and bureaucratic chaos nearly left a consultant with multiple sclerosis uninsured.

I wrote a piece for @wendellpotter.bsky.social’s #HealthcareUncovered about the business of healthcare

ā€œThe $10,000 Deductible and the Myth of ā€˜Affordable’ Careā€

#HealthcareForAll #Access

open.substack.com/pub/healthca...

1 month ago 0 0 0 0
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If you appreciate what you hear, please smash those like and follow buttons, subscribe to the show on your favorite listening app, and feel free to share.

We're also looking for guests. If you, or someone you know, would be a good fit, please reach out and / or send in ideas. FIN/

1 month ago 0 0 0 0

Season 1, Episode 1 now available on your preferred platform 7/

Apple Podcasts
podcasts.apple.com/.../patient-...

Spotify
open.spotify.com/show/7EWTpXl....

Amazon Music
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YouTube Music
youtube.com/@patienttopu...

1 month ago 0 0 1 0
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Patient to Purpose - ERO Health Communications The phraseĀ ā€œFrom Patient to Purposeā€Ā orĀ ā€œPatient to Purposeā€Ā often describes a transformative journey where an individual’s experience with illness, injury, or a health crisis leads them to discover a...

Introducing Patient to Purpose where an individual's experience with illness, injury, or a health crisis leads them to discover a new, meaningful mission or purpose in life. We will launch a new episode twice a month. Stay tuned... 6/
erohealthcommunications.com/patient-to-p...

1 month ago 0 0 1 0

On this first anniversary of losing my mom I want to honor her memory by fulfilling a goal that she knew I could do before I did. It’s bittersweet, but I can hear her voice in my head saying, ā€œgood job kiddo.ā€
5/ youtu.be/oJTY46ZJk6w

1 month ago 0 0 1 0

Going back about 20 years, I did an outline for a book with a similar theme. She absolutely thought it could be published, but it wasn't the right time for me. As they say, sometimes the journey is more important than the destination. 4/

1 month ago 0 0 1 0

As usual, the first person I called to tell / discuss it with was my mom.
Me: I think I'm going to do a podcast
Mom: What? That's terrific.
Me: But there are SO many podcasts, why would anyone listen?
Mom: Because your storytelling is different. Just do it.
www.legacy.com/person/Jane-... 3/

1 month ago 0 0 1 0
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I thought, "oh right, just what everyone needs, another podcast." Instead I said, "what do you have in mind?" He gave me some food for thought and off I went to scan the usual platforms. And to my surprise, no one was doing our idea. Some have facets of it, but not exactly what we are doing. 2/

1 month ago 0 0 1 0
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PATIENT TO PURPOSE
In the fall of 2024 a former colleague, now friend, from my Roche days approached me about doing a podcast. At that point he'd had his own show for a few years talking about market access for medicines. 1/
www.linkedin.com/in/stefanwal...

1 month ago 0 0 1 0

Exactly! We were all stymied. And it all reports up to the NY DoH. They literally could have flipped a switch in October when it first surfaced.

2 months ago 0 0 0 0
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Watch this space šŸ‘€

Coming soon…

#PatientToPurpose #Advocacy #Engagment #AccessToHealthcare

2 months ago 1 0 0 0

She has been covering for them for over 20 years.

2 months ago 2 0 0 0

Keeping in mind that all of the agencies that oversee HC in NY report into the DoH. They finally did a hard reset on my account & pushed it through. We need single payer. Because if someone like me can’t do it, muggles have no chance. 2/2

2 months ago 2 0 0 0

I’ve worked in healthcare for 30 years, lived with MS for 16, & am a board certified patient advocate. NY screwed up my ins so bad this year (exchange) that it took me & three other ppl, including 1 from my state assembly member’s office, four months & about 100 hours, to fix it. 1/2

2 months ago 3 0 2 0
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2 months ago 0 0 0 0
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Coming soon…watch this space šŸ‘€

#Patients #Engagement

2 months ago 0 0 0 0
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No Decisions for Us, Without Us: Why Patient Advocacy Matters in Market Access, Erica Bersin? Quickly and easily listen to MAP - Market Access Podcast for free!

As a precursor to launching my podcast, Patient to Purpose, next month, I was recently on my co-host's show; a soft launch as it were. Give a listen when you can. I'm still getting used to my recorded voice, so be kind. It's also available on a podcast platform near you.
#NoDecisionForUsWithoutUs

3 months ago 0 0 0 0
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Tell your senators to act now to lower healthcare costs Health insurance premiums are doubling for more than 22 million Americans, and up to six-million people have already, or will soon, lose coverage because Republicans made Affordable Care Act tax credi...

Tell your senators to act now to lower healthcare costs act.indivisible.org/sign/tell-yo...

3 months ago 0 0 0 0