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Posts by Mark Fleury

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Cancer Disparities: An American Cancer Society Cancer Action Network Chartbook Cancer impacts everyone, but it doesn’t impact everyone equally. For the American Cancer Society (ACS) and its advocacy affiliate, the American Cancer Society Cancer Action Network (ACS CAN), health e...

Cancer affects everyone, but it does not affect everyone equally. @acscan.bsky.social report showing current cancer #disparities www.fightcancer.org/policy-resou...

12 hours ago 0 0 0 0
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Like ‘driving to San Francisco and back, every week’: In rural America, cancer patients face tall hurdles to get care | CNN As cancer care becomes both more advanced and more specialized, options in rural areas have shrunk.

Distance is a barrier to getting good cancer treatment or enrolling in clinical trials for much of the U.S. www.cnn.com/2026/03/29/h...

1 week ago 0 0 0 0
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Trends and Disparities in the Use of Next-Generation Sequencing for Cancer This cohort study evaluates trends and disparities in the use of next-generation sequencing among patients with common advanced and/or metastatic cancers.

Patients with cancer still aren't getting the biomarker testing they need. jamanetwork.com/journals/jam... That is why @acscan.bsky.social works to ensure coverage through its biomarker campaign www.fightcancer.org/biomarkers

1 week ago 0 0 0 0
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The Geography of Pharmaceutical Innovation China’s rise as a major center of drug development represents one of the most consequential shifts in the global life sciences landscape in a generation. From the patient perspective, a key policy que...

Globalization of cancer research and drug development is here, the question is how to adapt. Rick Pazdur provides perspective. jamanetwork.com/journals/jam...

3 weeks ago 0 0 0 0
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New state law requires insurance coverage for biomarker testing for Alzheimer’s, cancer patients Now, with the passing of House Bill 565, also known as Jill’s Law, all Mississippians will have access to biomarker testing without paying out of pocket.

Important to celebrate policy wins, and Mississippi recently became the 23rd state to pass @acscan.bsky.social model biomarker coverage legislation. www.wlox.com/2026/03/19/n...

4 weeks ago 1 1 0 0
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American Cancer Society Cancer Action Network ACS CAN makes cancer a top priority for elected officials and candidates at the federal, state and local levels.

In a tough year for public health, @acscan.bsky.social ACS CAN has made a positive impact. Read about our accomplishments and join us to advocate for a world where we end cancer as we know it for everyone. www.fightcancer.org/advocacy-acc...

1 month ago 2 1 0 0
NIH-Wide Strategic Plan [Enter summary here]

NIH seeking input on developing its next 5-year strategic plan. A chance for stakeholders to weigh in on what NIH is (and is not) doing. Meetings Monday March 16, and Wed April 8. www.nih.gov/about-nih/ni...

1 month ago 1 0 0 0
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U.S. was only country in a worldwide survey to say most fellow citizens are bad people A new Pew survey shows that other countries’ citizens tend to look more favorably on their neighbors.

Such a disheartening finding... wapo.st/4d4DgLi

1 month ago 0 0 0 0
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Opinion | The FDA shifts the goalposts on rare disease drugs Agency leaders say the right things, but their actions tell a different story.

Backtracking on its advice has unfortunately become common at FDA. It's one thing to miss the mark, and altogether different if the mark keeps moving. wapo.st/4b0NGsW

1 month ago 1 2 1 0
Table showing patient willingness to enroll in clinical trials with/without conditionally approved drugs (N=1597). It lists willingness levels from 1(Not likely) to 7(Very likely), showing patient numbers and percentages for both scenarios.

Table showing patient willingness to enroll in clinical trials with/without conditionally approved drugs (N=1597). It lists willingness levels from 1(Not likely) to 7(Very likely), showing patient numbers and percentages for both scenarios.

Among cancer survivors surveyed, the presence of a conditionally approved drug reduced willingness to enroll in clinical trials, and many attributed higher levels of testing and efficacy to such drugs than warranted.

ja.ma/4qUd3m0

1 month ago 2 1 0 0

Trump’s envoy Jeff Landry said of Greenland that “small settlements are without permanent doctors, diagnostic tools, or specialist care — forcing residents to travel great distances for vital treatments that should be available at home.” That describes much of the U.S. Where is our hospital ship?

1 month ago 0 0 0 0
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Trump cites health care issues in Greenland saying he's sending a hospital ship. His claims are off President Donald Trump has said the U.S. is sending a hospital ship to Greenland because people there are not getting care, but the claim faces pushback.

Spending millions of dollars to send a hospital ship to another country to serve a population of 57,000 people while simultaneously passing policies that kick 15 million plus Americans off of insurance. apnews.com/article/fact...

1 month ago 1 0 1 0

Unpredictability of late has come from the top down.2/2 www.iqvia.com/locations/un...

2 months ago 0 0 0 0

Sen. Cassidy report on reforming FDA written for a different FDA than we have now. He writes "...disconnect between the forward-leaning rhetoric and thought leadership of senior FDA officials and cautious reviewer practice creates further unpredictability." 1/2 www.help.senate.gov/imo/media/do...

2 months ago 0 0 1 0
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Rural Populations Face Greater Barriers as Non-Medical Costs Hinder Clinical Trial Access Today, the American Cancer Society Cancer Action Network (ACS CAN) was joined by 24 other organizations in proposing the Health and Human Services Office of Inspector General adopt a new regulatory sa...

Financial burdens keep too many people out of cancer clinical trials. 25 orgs ask the Trump administration for actions to ease those burdens. www.fightcancer.org/releases/rur...

2 months ago 0 0 0 0

A very big deal!

2 months ago 0 0 0 0
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Some mornings I wonder if it wouldn't be easier to organize and launch a polar scientific expedition than get my kids up and off to school.

2 months ago 0 0 0 0

The normal operation of the government and issuance of research grants is a layered interdependent process, such that there are many places for it to grind to a halt, whether caused intentionally or not.

2 months ago 2 0 0 0
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Mitigating Financial Toxicity for Participants in Clinical Trials Clinical trials are essential to advancing medical knowledge and care, but participation in trials can impose real financial burdens on participants and their families—from travel and time away from w...

Join the #MRCTCenter and #EACTProject on December 9 at 10 AM ET for “Mitigating Financial Toxicity for Participants in Clinical Trials,” a webinar on the financial burdens of trial participation and strategies to reduce hardship. Link to the registration: lp.constantcontactpages.com/ev/reg/x4bhu...

4 months ago 1 0 0 0
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Civic Engagement Microgrant Program - Research!America Civic Engagement Microgrant Program Read our report looking at the impact of the first four years of the Microgrant Program. Microgrants of up to $4,000 will be awarded, on a […]

Are you part of a STEM group seeking to take your public engagement to the next level? Research America offering $4k microgrants. Deadline Dec 1. www.researchamerica.org/civic-scienc...

5 months ago 2 0 0 0

We'll only know true impact in a couple of years when we see if these trials were ultimately completed and published. Broader takeaway, however, still stands that trials as well as research broadly (both ongoing and future) have been greatly impacted by this administration's funding cuts 5/5

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No way to know whether data analysis would continue as planned without parent grant. Would like to see additional analysis to understand if trials changed status to terminated after grant cancellation or if they continued anyway.4/5

5 months ago 0 0 1 0

Reminder that it is wonderful if participants receive benefit from research, but underlying premise of research is that benefit accrues to future patients based on learning, thus potential harm is lost opportunity to gain knowledge as well as ethics of not learning from those who volunteered. 3/5

5 months ago 1 0 1 0

Article states "...more than 74 000 trial participants were affected." but should have said "Terminated grants funded trials in which 74,000 people had taken part." Depending on indiv circumstances-e.g. whether still getting treatment-patients might have not felt any individual impact. 2/5

5 months ago 0 0 1 0
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Consequences of Grant Termination in Clinical Trials In March 2025, the National Institutes of Health (NIH) announced that it would be terminating $1.8 billion in grant funding unaligned with the agency’s priorities.1 The proportion of grant funding tha...

Eye-catching headlines from recent JAMA paper exploring effects of funding cuts on trials. I'd argue some problems with characterization of data and how reported in press. No question, the cuts had big impacts, but need to characterize those impacts accurately. 1/5 jamanetwork.com/journals/jam...

5 months ago 1 0 1 0
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The cheap health insurance promoted by Trump officials has this catch As millions brace for higher insurance prices, plans touted by the Trump administration are attracting attention. They are cheaper, but coverage is often skimpy.

Short-term plans are not traditional insurance. People buy insurance to protect them from unmanageable medical bills and short-term plans don't do that, which is why @acscan.bsky.social opposes them. www.washingtonpost.com/health/2025/...

5 months ago 2 0 0 0

End of an era, but cash in general is quickly falling out of use.

5 months ago 1 0 0 0
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FDA taps oncology expert Pazdur as nation’s top drug regulator Richard Pazdur, a longtime Food and Drug Administration employee, will lead its center that oversees over-the-counter medicines and the majority of prescription drugs.

Consequential change to see Dr. Pazdur take reigns at CDER after initially turning it down. He's enormously qualified and a more traditional pick for this post, but in this administration not expected. Will he inject stability and predictability? www.washingtonpost.com/health/2025/...

5 months ago 1 0 0 0
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Peanut Allergies Have Plummeted in Children, Study Shows

The thing about science is that sometimes you get it wrong the first time, but the scientific process is unending, so there is still time to get it right. The fact that our understanding of science isn't perfect is not reason to abandon it. www.nytimes.com/2025/10/20/w...

6 months ago 2 0 0 0

I love the fact that a Nobel prizewinner was the last to learn of his award because he was hiking...www.nytimes.com/2025/10/07/health/nobel-...

6 months ago 0 0 0 0