my second son

has had his breathing tube removed today

where do we go from here
how do we get there from here
when it seems he wants
quit
i tell him I love him
over
and
over
it’s all i’ve got
to paper
over the hole
in my middle

#TacoTuesdayParties 🌮🍻🎉
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Continued parties 🎉 👇

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I carry your heart . . .

I carry your heart ~

Love > Hate

Because guilt will appear like a jealous dragon that will eat away at my peace of mind ~ without Justification. I’ve seen him at least once a week for 3 years. He wants more. Always more. I’ll leave early in the morning.

I have missed a week ~ he calls each day to see if I’m coming, even though I have explained I am not feeling well and cannot make the hour drive there and back and wait on him in between. I am better at letting go of the guilt.

Happy New Year!
Saw this guy today. Like I do every week- but I hit the holiday this week! Yay!
Here’s to keeping Medicaid benefits! Cheers!

Democratic Wins Media (@demwinsmedia) BREAKING: Veterans from every branch are speaking out against Donald Trump’s threats against Senator Mark Kelly for reminding our troops their oath is to the Constitution, not a president. This is so ...

substack.com/@demwinsmedi...
Veterans from every branch are speaking out against Donald Trump’s threats against Senator Mark Kelly for reminding our troops their oath is to the Constitution, not a president. This is so powerful.

Is this not perfectly presented?

🖤 Black Out Black Friday Part of the national economic blackout: November 25–December 2, 2025. Seven days. No spending. No labor. No fuel for the machine.

They are blitzing Black Friday early. Panicked about boycotts? Maybe. Either way, when all is said and done, we should all be able to say that we didn’t fund this with our dollars. Fuck these ghouls. substack.com/@psychopete1...

This is how I feel going to see my son! I never know what awaits me nor how many days it will take to clear up whatever hellscape issues that occur.
This captures the fear and the optimism. A light hearted way to explain the feelings.

Just finished setting up his new room. Exhausted. He is non-verbal and a quadriplegic- so unexpected stuff happens all the time! His clothes are gone. Like every stitch of clothing. And someone used his account to order a boatload is Dickies. Nowhere to be found! They even took his shoes! WTF.

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Stop calling it the Trump “administration.” It‘s an authoritarian regime, a fascist coup, a hostile takeover!

My spelling and grammar need work but the point stands. Of the people I have come to know in the last year, the men don't get accused, the women don't lie about it. It's not fucking funny. It's not a fucking game. All of my family are women and I will handle this if he peeps out and says anything.

They’ve moved my son to another ward. His behaviors are completely acceptable now. He has, for the most part accepted his fate. It’s been 3 years. He used to walk the parks and streets because of his acute claustrophobia. He is confined to a room and a sunless ward.
Day in and day out.

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Good night from Arizona💙

🤟🏼

Saw this guy this weekend-as I -do most weekends. I captured a pic of him that is
‘Normal’ as if time turned back. As if he wasn’t non-verbal and a quadriplegic. As if he weren’t severely mentally ill. I see his love for me. I love this picture. 💕💥

Take care of yourself this weekend! 💕

So! The Republicans want to take Medicaid from this guy and others like him. When did cruelty become who we are?

I’m of the age where my peers are jealous of state-of-the-art medical procedures! They used to be envious of the concerts I attended ! Oh. Boy. Life gets weird.

This guy got new wheels!!! So cool! It actually steers-not everything is disabled accessible so getting through the bathroom doors was an ordeal with the old wheelchair. I got this guy in and out and still had room for me to squeeze by.
It’s victories like this that give me optimism.

Trying to give him some visual comfort. Difficult went they constantly change his room and lose his pictures and posters. We start over from scratch every few months it can be disheartening, but he is my son. I will never give up trying to give him some sense of normal-some comfort.