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Posts by Karen van Gorp

Hello Bluesky is fun. And not the other place!

1 year ago 2 0 0 0
Cancer Voices South Australia #WorldCancerDay #UnitedByUnique
Cancer Voices South Australia #WorldCancerDay #UnitedByUnique YouTube video by Head and Neck Cancer Forum

@Cancer Voices SA #WorldCancerDay
#PatientAdvocate youtu.be/1hCl-_MIyss

1 year ago 2 0 0 0

@juliepringle.bsky.social hello you!

1 year ago 0 0 0 0

Brilliant! I will add equity of access to treatment and supportive care. Support in the community (return to work etc). The American scenario of insurance is terrifying. We fight to continue our medicare and HTA process in Australia.

1 year ago 1 0 0 0

Is this an American group or intended to be world wide?

1 year ago 1 0 1 0

Thanks @cancervoices-sa.bsky.social for sharing. Really proud of this presentation and the consumer/patient involvement at this conference was brilliant! #ACTA2024

1 year ago 3 0 0 0

@shona22.bsky.social @juliemccrossin.bsky.social

1 year ago 0 0 0 0
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I dont really like icecream but i love cheese.
Most proud of my presentation at #ACTA2024 this week Australian #HTAReview #ClinicalTrials Early #Comsumer imvolvement. EarlyConsumer

1 year ago 0 0 1 0

Great thread and starter pack. Would you please add me melanoma stage IV 2013 clinical trial pembro super responder, choroidal melanoma 2021 brachytherapy - fingers crossed. Chair Cancer Voices SA Deputy Chair Melanoma Patients Aust

1 year ago 1 0 2 0

πŸ˜‚

1 year ago 0 0 0 0

πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚

1 year ago 1 0 0 0

NerΓ k a new cushion cover that only fits one shape of cushion soon to be discontinued.

1 year ago 1 0 1 0

Do not obey in advance.
PASS IT ON.

1 year ago 103 34 3 0

#Melanoma is Australia's cancer, embarrassing but true. Well done @mikecarlton01.bsky.social for keeping up your skin checks, early detection is key.

1 year ago 2 0 0 0

Oh and @gilliosa.bsky.social

1 year ago 0 0 0 0

Please add @melanomaau.bsky.social

1 year ago 0 0 0 0
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Oh I realise now it was that cat owner who pointed out the date! Oh this migration is messy!

1 year ago 1 0 0 0

Lol, thanks. Hope she didn't give the poor cat the ointment

1 year ago 1 0 1 0

Please don't, if it can be cut out or off that would be the best option for animals and humans.

1 year ago 0 0 2 0

Hi I am a stage IV melanoma survivor. I managed to get on a clinical trial for keytruda in 2013. I have had a complete response.

1 year ago 7 1 1 0

You might like to look at some Facebook support groups, especially in Australia. So sorry to hear it has spread, such a rare occurrence.

1 year ago 1 0 1 0

I had worked so hard on my twitter account. I rarely saw ads but I didn't miss any news from the areas I am interested in (melanoma, cancer, gut microbiome, some HTA). I would like to reclaim linked in for my day job!

1 year ago 3 0 0 0

@jay.bsky.team also apologises for the lack of drafts, but we have love. I will have to draft n paste

1 year ago 1 0 0 0

Brilliant if it increases their choices to access clinical trials!

1 year ago 1 0 0 0
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I wish you luck. I am stage 4 melanoma and I was a super responder to pembro. Few side effects but i know many who have had pituitary and adrenal glands effected.

2 years ago 2 0 1 0