Accepting a feeding tube: https://bit.ly/3LoaU39
Nancy Muirhead shares how choosing a PEG feeding tube, lovingly nicknamed “Pegster,” is helping her reconnect with food and joy rather than struggle.
#ALS #Bionews #ALSNewsToday #ALSCommunity #LifeWithALS #PegTube #ALSSupport #AdaptiveLiving
There is value in every way you show up
#ALSsupport
Setting Intentions: https://bit.ly/4oA7dpi
Columnist Dagmar Munn shares how a daily intention helps her stay grounded while living with ALS.
#ALSNewsToday #LivingWithALS #ALSToolKit #SelfCare #Mindfulness #ALSSupport #ALSCommunity #Bionews
Accepting a feeding tube: https://bit.ly/3LoaU39
Nancy Muirhead shares how choosing a PEG feeding tube, lovingly nicknamed “Pegster,” is helping her reconnect with food and joy rather than struggle.
#ALS #Bionews #ALSNewsToday #ALSCommunity #LifeWithALS #PegTube #ALSSupport #AdaptiveLiving
Know your state laws: https://bit.ly/3OQdBMg
Cannabis regulations vary widely across the U.S., so understanding what is permitted where you live can help you make informed decisions.
#ALS #MedicalCannabis #HealthPolicy #ALSSupport #RareDisease #PatientEducation #Bionews #ALSNewsToday
Connect through your story: https://bit.ly/4oww4dV
#ALSNewsToday #Bionews #ALSCommunity #ALSAwareness #LivingWithALS #ALSCaregivers #EndALS #ALSResearch #ALSSupport #RareDiseaseCommunity
Support is available: https://bit.ly/3MOay6Q
Emotional distress can become overwhelming, but help exists through professionals, support networks, and crisis resources when needed.
#ALS #MentalHealthSupport #CaregiverSupport #ALSSupport #RareDisease #PatientSupport #Bionews #ALSNewsToday
There is value in every way you show up
#ALSsupport
Take one step: https://bit.ly/4qHWn16
After diagnosis, the path ahead can feel uncertain. Focusing on practical next steps and building a care team can help create a sense of direction.
#ALS #NewDiagnosis #ALSSupport #ALSCommunity #CaregiverSupport #RareDisease #Bionews #ALSNewsToday
There is value in every way you show up
#ALSsupport
There is value in every way you show up
#ALSsupport
Accepting a feeding tube: https://bit.ly/3LoaU39
Nancy Muirhead shares how choosing a PEG feeding tube, lovingly nicknamed “Pegster,” is helping her reconnect with food and joy rather than struggle.
#ALS #Bionews #ALSNewsToday #ALSCommunity #LifeWithALS #PegTube #ALSSupport #AdaptiveLiving
There is value in every way you show up
#ALSsupport
Kitchen safety tips: https://bit.ly/4p0uAIi
Practical adjustments and supportive tools can help make cooking and mealtimes safer and more manageable for people living with ALS.
#ALS #ALSSupport #LivingWithALS #ALSResources #AdaptiveLiving #ALSNewsToday #Bionews
There is value in every way you show up
#ALSsupport
Accepting a feeding tube: https://bit.ly/3LoaU39
Nancy Muirhead shares how choosing a PEG feeding tube, lovingly nicknamed “Pegster,” is helping her reconnect with food and joy rather than struggle.
#ALS #Bionews #ALSNewsToday #ALSCommunity #LifeWithALS #PegTube #ALSSupport #AdaptiveLiving
Accepting a feeding tube: https://bit.ly/3LoaU39
Nancy Muirhead shares how choosing a PEG feeding tube, lovingly nicknamed “Pegster,” is helping her reconnect with food and joy rather than struggle.
#ALS #Bionews #ALSNewsToday #ALSCommunity #LifeWithALS #PegTube #ALSSupport #AdaptiveLiving
Infographic on kitchen safety with ALS: safe setup tips, cooking aids like non-slip mats, adaptive eating tools, and extra support options.
Kitchen safety tips: https://bit.ly/3Ywitb4
Practical adjustments and supportive tools can help make cooking and mealtimes safer and more manageable for people living with ALS.
#ALS #ALSSupport #LivingWithALS #ALSResources #AdaptiveLiving #ALSNewsToday #Bionews
To all the caregivers in the ALS community—thank you. Your strength, love, and tireless dedication make an incredible difference every single day.
Take a moment this month to celebrate the caregivers in your life—you deserve it. 🌟
#ALSUnited #NationalCaregiversMonth #ALSSupport #ALS
A diverse group of people seated in a circle, discussing ALS. Text asks about comfort in discussing ALS and any untouchable topics.
Connect through your story: https://bit.ly/3WCTEJQ
#ALSNewsToday #Bionews #ALSCommunity #ALSAwareness #LivingWithALS #ALSCaregivers #EndALS #ALSResearch #ALSSupport #RareDiseaseCommunity
Quote by Dagmar Munn on self-care, emphasizes incorporating simple, daily actions to cut through sensory overload. ALSNewsToday.com
Setting Intentions: https://bit.ly/4o1CL7p
Columnist Dagmar Munn shares how a daily intention helps her stay grounded while living with ALS.
#ALSNewsToday #LivingWithALS #ALSToolKit #SelfCare #Mindfulness #ALSSupport #ALSCommunity #Bionews
Illustration of surgeons in an operating room with text asking if people with ALS have had surgeries or complications. ALSNewsToday.com at bottom.
ALS and surgery: https://bit.ly/4mRpT2r
An important topic that often goes unspoken. Have you had any surgeries since being diagnosed? Share your experience or learn from others in this community discussion.
#ALS #ALSCommunity #ALSSupport #ALSPatients #ALSForums #ALSNewsToday #Bionews
Genetic testing can provide answers for you and your family — from understanding risk to exploring future health care choices.
Learn more in our ALS & Genetic Counseling and Testing for Family Members Guide.
Read here: lesturnerals.org/als-genetic-...
#GeneticTesting #ALSSupport #ALSResearch
The Foundation offers ramps, wheelchairs & communication devices through our Equipment Loans Program.
Available if insurance won’t cover, approval is pending, or access is out of reach.
📧 supportservices@lesturnerals.org
#ALSsupport #LesTurnerALS
Navigating ALS Together – Free virtual support group for people and families living with ALS.
📅 Sept 27 | ⏰10:30–11:30 AM CT
RSVP: supportgroup@lesturnerals.org
#ALSsupport #LesTurnerALS #ALSCommunity #NavigatingALS
Young Adult Support Group.
📅 Sept 16, 2025 | ⏰ 7–8:30 p.m. CT
💻 Virtual
🎙 Facilitated by Michelle Shaker, LCSW
Free group for young adults impacted by ALS in their families.
📧 RSVP: supportgroup@lesturnerals.org
#ALSsupport #LesTurnerALS #YoungAdultCaregivers
Group of kids and teens doing yoga at Camp HLC, with text overlay: “Hope Loves Company Supporting Kids of ALS Families.”
Hope Loves Company: https://bit.ly/41ntGwy
#ALS #ALSCommunity #HopeLovesCompany #CampHLC #ALSSupport #ALSFamily #ALSCaregivers #ALSNewsToday #BioNews
Need help getting to ALS clinic appointments?
The Stuart Rosen ALS Transportation Grant Program offers reliable rides to and from the Lois Insolia ALS Clinic.
Contact: supportservices@lesturnerals.org | (847) 679-3311
#LesTurnerALS #ALSsupport
“Navigating ALS Together” – a free support group for people & families living with ALS.
🗓 August 9, Saturday | ⏰ 10:30 AM - 12 PM CT
💬 Led by Karen Raley Steffens, RN, CHPN, CCM
📧 RSVP: supportgroup@lesturnerals.org
#ALSsupport #LesTurnerALS #CaregiverSupport
Living After Loss – a free bereavement group for anyone who’s lost someone to ALS.
🗓 July 28 | ⏰ 6 PM –7:30 PM CT
💻 Virtual
🎙 Facilitator: Easton Stevenson, LCSW
📧 RSVP: supportgroup@lesturnerals.org
#ALSsupport #BereavementSupport #GriefSupport #LivingAfterLoss
