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"Toughing it out" can be common in endurance sports, but it almost cost T.L. Wright her life. After years of undiagnosed Crohn's, she had to completely pivot her diet and athletic goals to heal.
Hear to her journey on the latest #AboutIBDPodcast: bit.ly/AIBD199
#CrohnsDisease #IBD #SCDDiet

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🎯 What are your goals? Remission isn't the only one.

I sat with Drs Sonia Grandi and Cristina Longo to discuss the BIONIC Study on #AboutIBDPodcast, which uses data to learn how immune-mediated conditions affect pregnancy & babies.

We have 5 tips for navigating health conditions & family planning.

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"Patients are the experts in their own disease trajectory, the healthcare system, and the challenges that they face. This is an expertise that most, if not all, research projects need." — Dr. Cristina Longo

"Patients are the experts in their own disease trajectory, the healthcare system, and the challenges that they face. This is an expertise that most, if not all, research projects need." — Dr. Cristina Longo

You’re more than a diagnosis. You’re an expert. 🧬

In #AboutIBDPodcast Ep 198, Dr. Longo explains how the BIONIC Study is using data to keep mothers in remission & babies safe—by listening to experts: YOU. 👩🏼‍🍼✅

🎧 Listen on Apple, Spotify, YouTube, or AboutIBD.com: bit.ly/AIBD198

#IBD #MaternalHealth

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Should we use AI to manage #IBD? The answer: Maybe. For #AboutIBDPodcast, I asked my husband, Mike, to explain how AI works, how to use it responsibly, and where it may not be ready for prime time. Get Episode 196 in your podcast app, on YouTube, or on my website: bit.ly/AIBD196

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🪞Body image issues are common in #IBD. Symptoms change our bodies & stigma doesn’t help with dating and intimacy.

On #AboutIBDPodcast Ep 195, sex coach Dr Stacy Friedman shares how to build a better relationship with your body & your partner.

Listen, watch, or read on my website: bit.ly/AIBD195

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💟 63% of women, 34% of men & 75% of LGBTQ+ people with IBD struggle w/ intimacy. If you are dissatisfied with your intimate life, please know help is available! Learn from #intimacy coach @drstacyfriedman.bsky.social how you can bring sexy back on #AboutIBDPodcast ep. 195: bit.ly/AIBD195

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💭 I’m inspired by the idea of leaving people better than we find them.

On Episode 193 of #AboutIBDPodcast, Lisa Zawrotny of Positively Productive Systems shares her philosophy: improve the things and people she touches. Find this episode in any podcast app, on the YouTubes, or here: bit.ly/AIBD193

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🍾 #IBD shows up even on our biggest days. In Episode 190 of #AboutIBDPodcast, Katryna Loewen shares how she navigated #UlcerativeColitis, flare-ups, a colectomy, and an ileostomy during major life milestones. Her courage, creativity, and community spirit shine through. Get it here: bit.ly/AIBD190

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See episode 189 of #AboutIBDPodcast to get more perspective on this topic and how the #gastroparesis and #IBD communities can support one another. In your podcast app, on YouTube, or use my episode homepage for easy access to everything here: bit.ly/AIBD189

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🚽 New symptoms are frustrating. Whether it’s brand new or something your team hasn’t diagnosed yet, getting help takes time. But ignoring it risks an emergency. On #AboutIBDPodcast, Samantha Sauer of G-PACT reminds us: keep advocating! 🌟 Ep 189 is out now! bit.ly/AIBD189

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🌼 You deserve respect, answers, & proper care. On #AboutIBDPodcast: Samantha Sauer, BCPA of G-PACT, shares why self-advocacy is key for people with digestive conditions. If you're not being heard, keep pushing & seek other opinions. Episode 189 is live now in podcast apps, YouTube, & bit.ly/AIBD189

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🍽️ Gastroparesis can cause nausea, fullness, and vomiting. Samantha Sauer, BCPA, president of G-PACT, helps us understand gastroparesis, how it differs from #IBD, and whether it's common to have both. 💕

Episode 189 of #AboutIBDPodcast is in your podcast app, on YouTube, or at bit.ly/AIBD189.

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The Truth About Stigma and Acetaminophen Use During Pregnancy Featuring Mariah Leach, JD, MS - About IBD Amber and Mariah discuss how women with chronic illnesses cope with advice on medication use in pregnancy—especially in light of the confusion around acetaminophen. Mariah shares her experiences with ...

The haphazard comments regarding acetaminophen open pregnant women to stigma about medication use. Listen, watch, or read episode 188 of #AboutIBDPodcast with Mariah Leach, JD, MS of Mamas Facing Forward. See the show notes for info, incl the FDA letter & medical society statements: bit.ly/AIBD188

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🪫 Staying active with #IBD is challenging, but it’s possible! Join me on #AboutIBDPodcast as I chat with Sean Lochran, an #ostomy fitness coach who shares practical tips for managing nutrition, hydration, and exercise. 🌿Listen, watch, or read here: bit.ly/AIBD187

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🫥 #IBD is invisible, so people don't understand. Stories like “The Mouse Who Couldn’t Eat Cheese,” help kids (& grown-ups) feel seen. 📖 Learn more about the book, who inspired it, and author MB Mooney on #AboutIBDPodcast 181! Get it any podcast app, or watch the VIDEO on the YouTube! bit.ly/AIBD181

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🧐 Curious about IBD research? On #AboutIBDPodcast, I talk with Propel a Cure president & CEO, Angela Clark. Propel a Cure funds research into causes of Crohn's and updates the community on progress. Listen in any podcast app, see a video on YouTube, or use my website to choose either: bit.ly/AIBD180

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🫁 On this episode of #AboutIBDPodcast, in real time, you can hear Elizabeth Coldrick of Wildly Brave Wellness teach me a breathing technique for stress management. You can even breathe along with us! Check your podcast app or get it at: bit.ly/AIBD177

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🧘‍♀️ Chronic illness is a never-ending cycle of acceptance. People with IBD can enjoy the outdoors, but may need to make adaptations. For #AboutIBDPodcast Ep. 176, I spoke with Jonathan Stewart of EverGreen Adventures about reconnecting with nature. Get it in your #podcast app or at: bit.ly/AIBD176

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🌻 It's not easy to get outside with #IBD, but the benefits to our emotional and physical well-being are crucial! For #AboutIBDPodcast Ep. 176, I spoke with Jonathan Stewart, co-founder of EverGreen Adventures, about ways to connect with nature. Get it in your #podcast app or at: bit.ly/AIBD176

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🎉 Cheers to 11 yrs of #GetYourBellyOut!🎈 I welcome Victoria of @getyourbellyout.bsky.social to #AboutIBDPodcast Episode 175! We discuss beginnings and endings in the #IBD community and how we make decisions regarding projects, opportunities, and challenges. In your #podcast app, or at bit.ly/AIBD175

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How Tech is Changing Gastroenterology, Featuring Neil D. Parikh, MD - About IBD About IBD Episode 174 Amber and gastroenterologist Dr Neil Parikh discuss technology’s impact on IBD management. Dr Parikh emphasizes the importance of patient diaries and open communication between p...

📱It's an exciting time in gastroenterology! On #AboutIBDPodcast Ep 174, Dr Neil D. Parikh, gastroenterologist, technophile, and podcast host at The Gut Doctor, shares what's coming in GI and how it may benefit people with #IBD. Hear it in your podcast app or at my website: bit.ly/AIBD174

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💖 Remember that you deserve pleasure in your life! On #AboutIBDPodcast Episode 173, I talk to Stacey Collins, MA, RDN/LDN. She helps people with #IBD understand nutrition and craft an eating plan, wherever they are in their disease journey. 🌼 Find my show in your podcast app or here: bit.ly/AIBD173

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🎙️ Excited to share this week's #AboutIBDPodcast, where we dive into the relationship between diet and #IBD. Join Stacey and me for a conversation filled with laughter and get her practical, real-world advice on nutrition! 💚 bit.ly/AIBD173 #AboutIBDPodcast

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⚖️ How do you balance chronic illness, school/work, and your passions? It's a challenge to get it all done while taking care of ourselves. On #AboutIBDPodcast Ep 172, Rachel Bee tells us how she manages health, school, and her hoodie business, Infusion Hero. In your #podcast app or at bit.ly/AIBD172

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Infusion Hero: Stylish Hoodies for Young Patients Featuring Rachel Bee – About IBD Podcast Episode 172 - About IBD IBD patients are innovative, resilient, and powerful. My guest, Rachel Bee, is an incredible example of all these virtues. Rachel is a remarkable 17-year-old entrepreneur who was diagnosed with Crohn'...

🎙️I had a wonderful conversation with Rachel Bee, a 17-year-old with #Crohns who helps young people through the hoodies she makes with her company, Infusion Hero. It's a fashionable way to take on infusion day! Hear her story and innovative spirit on #AboutIBDPodcast! 🌟 bit.ly/AIBD172

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💫 I switched to freelance 17 years ago. Freelance curious? This #AboutIBDPodcast is for you! I tapped @jenlucky.bsky.social of The Job Hopper to lay out a freelancing path. Episode 171 is in your podcast app or at bit.ly/AIBD171

Supported by @connectingtocure.bsky.social

My 5 Tips for Pivoting ⬇️

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💫 Ready to build community and start a freelance career? 💫 On #AboutIBDPodcast, @jenlucky.bsky.social shares how referrals lead to freelance gigs. Helping others leads to more support. Our talk, recorded over @squadcast.bsky.social, is on Ep 171 of About IBD. In your podcast app or: bit.ly/AIBD171

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🏆 Pressure to be "on" all the time is exhausting. Take a breath and step back! Otherwise, we get lost in endless "to dos." Lisa Zawrotny helps us understand where to focus efforts on #AboutIBDPodcast. Get Ep 170 in your podcast app by searching for "About IBD," or at my web site: bit.ly/AIBD170

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🧹 Are you overwhelmed by clutter? On the latest #AboutIBDPodcast, Lisa Zawrotny shares tips on managing physical and mental clutter, modified for people with chronic illness. Her guidance is invaluable! 🔥 Get it in your podcast app by searching for "About IBD," or head to my site: bit.ly/AIBD170

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🍝 Our real lives can get lost in the sauce of life with #IBD! Danielle is my guest on #AboutIBDPodcast Ep 169. She gives us encouragement to create a life that we love! Hear us in your podcast app, or you can listen and read a transcript at my web site: bit.ly/AIBD169

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