Richard Taubert and I had the pleasure talking with @heinerwedemeyer.bsky.social @mhh about the spectrum of #AutoimmuneHepatitis, #DILI and #DI-ALH @dgvs podcast. Thank you for having us to speak about current topics in this exiting field (in german). Feel free to listen!
lnkd.in/eAjZ7KX9
Yay - it's not diabetes!
It could be a rare side effect of the mycophenolate, though. So I'll receive a referral to a neurologist in the mail soon.
Permission to move down a dosage level of prednisolone. Still could be months from going off completely, but it's progress.
#AutoimmuneHepatitis #AIH
Blood test results this afternoon. Fingers crossed it's not diabetes. Fingers crossed I'll be allowed to lower my prednisolone dose. #AutoimmuneHepatitis #AIH
People criticise girls for carrying giant tumblers. But sometimes you really do need a visual reminder to drink water and to check where you are on your target amount.
Signed, chronically dehydrated lady with an autoimmune liver condition. #AutoimmuneHepatitis #AIH
RARE, BUT UNSTOPPABLE!
This #RareDiseaseDay, we stand with the warriors battling #RareLiverDisease! No more delays early detection, better treatments & life-saving research NOW!
These diseases may be rare, but our fight is mighty!
#PBC #PSC #AutoimmuneHepatitis #Alpha1 #LALD #BiliaryAtresia
I think connection is vital for those who live with a rare disease -- especially those of us whose disease is invisible to others. Kathi Timothy Myasthenia Gravis
Because of Sarcoidosis and other chronic illnesses, I can't do that anymore. But that doesn't mean I can't do anything. I just have to find different things to do and different ways to do them. Kerry Wong Sarcoidosis
The trauma of not being able to do anything -- other than meeting doctors and swallowing medicines -- was frustrating. Kalpen Shukla Hyper-IgE Syndrome (HIES, Job/Job's Syndrome)
Life becomes an endless cycle of finding strength to keep the faith. Ultimately, you realize that hope and strength come from sharing your story. Kristine DiDesidero Autoimmune Hepatitis
The writers in Kaleidoscope #RareDisease Stories show strength, courage, creativity, and, even through fear, hope.
~🦋
https://a.co/d/3HxjJ6P
Proceeds donated to NORD
#MyastheniaGravis #sarcoidosis #HIES #JobSyndrome #AutoimmuneHepatitis
#ChronicIllness #Rare #SpoonieSky #ZebraStrong
Do Turmeric Supplements Have a Downside? www.peoplespharmacy.com/articles/do-... via @peoplespharmacy
#turmeric #turmericsupplements #supplements #herbalsupplements #antiinflammatory #autoimmunehepatitis
While my background is mainly in English lit, I’ve also written on comics and pop culture studies. I’m also a poet, writer, and film nerd. I’m living with #AutoimmuneHepatitis, PTSD, C-PTSD, BPD, and undiagnosed chronic illness/pain.
