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#CHDWeek

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This #CHDWeek, please join me in honoring those living with congenital heart disease, their families, and the amazing physicians, researchers, and staff who constantly strive to better understand and treat CHD. Thank you for all you do!

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Today is Doctor’s! I wanted to thank all the doctors from the past and present who have taken care of me over the years with my heart conditions along with my many illnesses that affected my heart conditions too. Thank you again #chdweek

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By the end of it all you have to try to be positive or have someone by your side to be your positive while you can be negative all you need. But you need to try to see both but focus on the positive even though it’s the hardest thing to do sometimes! #chdweek

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Yesterday was wisdom Wednesday but it wasn’t Wednesday! So I waited for today. Honestly my wisdom is this journey is honestly a roller coaster of emotions and feelings especially when it comes to appointments and even simply procedures. #chdweek

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Some months it’s great while others it isn’t where they want it. You do any and everything they tell you but it seems like you sometimes fall short. I’m still learning to understand it’s Ok to fall short but at the end of the day you’re trying your best! #chdweek

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Today is facing setbacks. Which I completely understand!! Setbacks in life along with my health. Every time I felt like something was going well it felt like something fell apart. I have to get my Anemia checked every few months. Yay blood work! #chdweek

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But there it all most of my family has been there for me for surgeries, caths and appointments. Thank you everyone for being there for me Love ya! #chdweek

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3rd day of CHD week! Stay positive so I found a quote that I relate to from my favorite book! #CHDweek

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I’m glad I ended up with Shah and Jessica as an adult they are very kind and keep a close eye on me too! Thank you VCU Health Pauley Heart Center #chdweek

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Yesterday was heart hero’s! I got a little busy oops. But I have 2 heart hero’s but I can’t find a picture of my other doctor, Jessica. I have been seen by MCV/ VCU since I was born with many doctors along the way. #chdweek

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Congenital Heart Disease (CHD) Awareness Week - Raising Awareness for Little Hearts!

CHD affects many children & adults—this week, let’s spread knowledge & support heart health. Photo generated by chatGPT (openai.com) #CHDWeek #HeartHealth #SupportCHDAwareness #congenital #heartdisease #CHD #heart

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At the moment I see my cardiologist every 6 months and my liver specialist the same time to see how I’m doing. Overall it doesn’t seem that much but I know how it’s affected me and my family over the years. CHD has a very interesting story for each of us! #CHDweek

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So far so good a few hiccups with getting sick off and on affecting my health but overall my Frankenheart has been doing good! Especially with my pregnancy and after birth. That was an interesting for everyone to see how I would do. #CHDweek

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But had to start surgeries right away to fix my defects so I could have a semi normal life. Many surgeries, a few scary calls and a heart being tested in every which way I got thru it. I have had to have a few heart caths since my surgeries as a little girl. #CHDweek

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First day of CHD week!
Before I was born my mom’s doctor noticed something was off with me well into her pregnancy. They gave her a whole list of what could be wrong! When I was born I cut that list in half I believe. #CHDweek

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February is #heartmonth and I’ll be sharing my story with #CHD aka Congenital Heart Defects so if you’re interested in sharing your own story #CHDWeek starts the 7th so copy the photo! I can’t wait to see everyone’s stories

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