I guess that's it, folks! Once again thanks to @GICR_IARC for a successful #CancerRegistries2021 and until next time!
(Sorry if I didn't get your best angle, it is hard to do nice captures of video presentations)
The first day was a bit rough (I've never been a morning person), but what can you do. I definitely could have used a few more breaks between the #CancerRegistries2021 sessions
Overall, I enjoyed my first participation at #CancerRegistries2021 very much. It is inspiring, as well as humbling, to see all the hard work that cancer registries around the world are doing to improve patients' lives.
Time for the closure by Joanne Aitken (thank you for the shout out!). Kudos to the organizers, moderators, presenters, and everyone that made this (virtual) event possible
#CancerRegistries2021
They also concluded that care should be taken when interpreting QoL scores
#CancerRegistries2021
They used data from ~100 patients. They found 6 factors associated with QoL:
- Social functioning
- Role functioning
- Pain
- Education
- Health status perception
- Moderate urinary disorders
#CancerRegistries2021
Now Remi Houpert with results on QoL of prostate cancer patients in Martinique
#CancerRegistries2021
The plan is to roll out this type of portal to other types of cancer, as well as to the rest of Australia and New Zealand 🥝
#CancerRegistries2021
They allowed patients to compare their symptoms and sequels with other patients with similar characteristics, based on PBCR PROM data.
#CancerRegistries2021
In phase I (2020), they designed the portal with input from several stakeholders (clinicians, patients focus groups). They found men wanted to hear stories from peers, as well as have information presented in a mixture of formats
#CancerRegistries2021
Now onto Ben Shemesh and the development of a prostate cancer support portal in Victoria: #BroSupPORT (cool name 🤘)
#CancerRegistries2021
They got a tumor surveillance form and PBCR procedures manual approved by their Health Ministry (which is a great step). They will look into systematizing surveillance and optimizing data collection
#CancerRegistries2021
Although a PBCR was established in Paraguay in 1987, there's still work to do on implementing international standards for it. They focused into the Central Department (i.e., central area), where ~40% of the population lives
#CancerRegistries2021
Their work shows the feasibility of including residential history into cancer research
#CancerRegistries2021
Additionally, the used NATA data for pollution exposure, with a time-weighted assign exposure. This resulted in nice visualizations showing dynamic (excess) risk associated with residential history.
#CancerRegistries2021
They looked at ~1000 patients from the NY State cancer registry. They did some clever mapping from different data sources to get a consolidated address of a patient.
#CancerRegistries2021
They included quite a few countries in their analysis. In all types of cancer that they studied, they found that males had a higher incidence rate, as well as mortality rate
#CancerRegistries2021
Last plenary session: "Registries, Research and Policy/Collaboration and Innovation". We'll be starting with @UTwente's and @IKNL's Joanke Van Helden and her work on association between SES and sex-disparities in cancer incidence and mortality
#CancerRegistries2021
This is the current status of the NCCR. You can learn more about them right here cancercontrol.cancer.gov/research-emphasis/childh...
#CancerRegistries2021
Of course, linking and extending a dataset increases the risk of reidentification. They are working on mechanisms to reduce this, including a tier system of 5 levels
#CancerRegistries2021
They're also starting to include information from digital pathology images. Leveraging #deeplearning/#ai, they intend to extend the type of data they can register
#CancerRegistries2021
They're using #NLP for automated extraction of information from pathological reports (such as site, histology, laterality, etc.)
#CancerRegistries2021
This is especially important since many patients (42% [!]) of childhood cancer patientes received their treatment outside of their state of birth
#CancerRegistries2021
They host the National Childhood Cancer Registry by leveraging data of other sources (National Death Index, residential history data, Virtual Pooled Registry).
#CancerRegistries2021
Next session: Lynne Penberthy on US national childhood cancer registration
#CancerRegistries2021
Like many other registries, they found a reduced number of (colorectal) cancer surgeries, as well as elective surgical procedures due to COVID-19
#CancerRegistries2021
Last of this session: Qingwei Luo and projecting cancer incidence and mortality in Australia
#CancerRegistries2021
