One of the more profound moments in this hospice journey was when my mom looked at me and stated sternly, "I don't want to be treated like an invalid."
I could only stare in incredulously from my powerchair.
#CaregivingFromAChair
Today, the Littles come to visit.
Hopefully, that will cheer mom up a bit and give her some energy.
#Mom #CaregivingFromAChair
Day 38 of existing as a GNC person and Day 28 as disabled enemy as declared by a tangerine tyrant.
The tightrope I'm rolling on between current events & helping my mom manage her cancer gets thinner with unhelpful oncologists who keep information from their patients.
#Day38 #CaregivingFromAChair
I'm here to help where I can with the little things, hoping they won't become big. But I can't say my heart isn't hurting as much as her bone mets are, and no pain med will touch my #heartache
#CaregivingFromAChair
No, in-home-care person, I will NOT allow you to take my mother out into the freezing cold in her nightclothes to trial stepping up a stair.
Especially because you were set to discharge her without doing so ten minutes before.
It would take 6 hours to warm her back up again!
#CaregivingFromAChair
I woke up to mom not in her bed, although she had assured me she was getting there.
I'm just glad she wasn't on the floor.
What if she had been alone, like she wants?
At some point, I'll have to divorce myself from the responsibility for her, but I'm not sure how.
#CaregivingFromAChair