Alex TLC and our support is discussed within the report. The report also mentions the Inherited White Matter Disorders (IWMD) Service and our role as lead patient representative 💙
To read the report: alextlc.org/news/childhood-dementia-...
#ChildhoodDementia #Leukodystrophy

Our CEO, Sara, attended a parliamentary event today in Scotland
The Childhood Dementia Awareness Raising event was held at the Scottish Parliament. The event included a presentation about 'Childhood Dementia in Scotland 2025: A Report for the Scottish Government' 💬
#ChildhoodDementia #Leukodystrophy

Childhood Dementia: Understanding the Silent Tragedy of Childhood 🧠 Childhood Dementia: when dementia strikes children🌟 A surprising nameWhen we hear the word dementi

www.myscrappydays.com/news.php?slu... — 🧠 Childhood Dementia: when dementia strikes children🌟 A surprising nameWhen we hear the word dementi… #Childhooddementia #Rarediseases #Battendisease #Sanfilipposyndrome #NiemannPickdisease #Geneticdisorders #Dementiainchildren #Neurodegenerativediseases

Not just for the aged: What you need to know about dementia in young adults and kids KUALA LUMPUR, Sept 4 — When most people think of dementia, they picture a frail elderly person in their late 60s, struggling to recall a simple detail.But here’s the...

Not just for the aged: What you need to know about dementia in young adults and kids #alzheimer039sdiseasefoundationmalaysia #caregivingchallenges #childhooddementia #kualalumpur #liyananajwainchemat #youngonsetdementia

Not just for the aged: What you need to know about dementia in young adults and kids KUALA LUMPUR, Sept 4 — When most people think of dementia, they picture a frail elderly person in their late 60s, struggling to recall a simple detail.But here’s the...

Not just for the aged: What you need to know about dementia in young adults and kids #alzheimer039sdiseasefoundationmalaysia #caregivingchallenges #childhooddementia #kualalumpur #liyananajwainchemat #youngonsetdementia

Megan Maack of Childhood Dementia Initiative Women in RARE Megan Maack of Childhood Dementia Initiative - overcoming challenges and driving meaningful change in this field.

From heartbreak to global change! Join Megan Maack, CEO of @Child_Dementia, in uniting over 100 conditions for research! #ChildhoodDementia #RareDisease #Advocacy rarerevolutionmagazine.com/rare-insider...

Little brains to help our kids Dr Ann-Na Cho’s hBMS system harnesses the power of microfluidics to create realistic brain organoids to unlock the secrets of childhood dementia. Dementia doesn’t just affect adults; children and teen...

🧠 Tiny brains, BIG hopes! @sydney.edu.au Lecturer Ann-Na Cho's brain-on-a-chip tech could transform research into childhood dementia & more – no animal models needed. A breakthrough for young lives & big cures! 👶🔬
#NCRIS #ANFFNetwork #MedTech #BrainResearch #ChildhoodDementia #BiomedicalEngineering

🌟 Dr Chris Knifton discusses accessible training for neurodivergent carers & raises awareness of childhood dementia at the ARC East Midlands Symposium. @arc-em.bsky.social #DementiaCare #ChildhoodDementia #Accessibility

youtu.be/lx6Pdf6M4Jo

For info on childhood dementia check out this paper in the journal Brain published last year
#childhooddementia #research #genomics #neuroscience academic.oup.com/brain/articl...

Did you know that children may also suffer from dementia?
#childhooddementia

youtu.be/cP9PMJ2KyB8?...