Finally, we'd like to extend our sincere thanks to
@roysocmed.bsky.social for their wonderful hospitality in hosting us. And a special thank you to Katherine Cowan, whose exceptional organisation was instrumental for the success.
What a brilliant event!
#CongenitalHeartResearchNetwork
Mr. Nigel Drury @nigeldrury.bsky.social, Academic Consultant in Paediatric Cardiac Surgery, shared an overview of the #CongenitalHeartResearchNetwork. He discussed its inception, the goals, and future plans.
We'd like to congratulate Mr. Drury for his excellent work with the network and this event
Sonya Babu-Narayan (BHF Clinical Director) and @allysonarnold.bsky.social (our COO) shared how the organisations are dedicated to boosting collaboration and investing in vital clinical research aimed at improving the lives of individuals with congenital disease. #CongenitalHeartResearchNetwork
Fascinating to hear from Dr. Kristin Burns from the Pediatric Heart Network, NHLBI, Bethesda Maryland! She shared invaluable insights from the network's impressive 20 years of experience. #PediatricHeartNetwork #NHLBI #CongenitalHeartResearchNetwork
Our afternoon session kicked off with a second round of insightful discussions on #JLAPriorities. Informed by your interests from the registration forms, we delved into current work and brainstormed potential ideas for development in this area. #ResearchDevelopment #CongenitalHeartResearchNetwork
It was fantastic to hear from several researchers who presented on their projects that are in late-phase development.
It highlighted how important a network like this will help the collaboration and coordination to ensure higher impact research takes places. #CongenitalHeartResearchNetwork #CHD
Wrapped up our morning session with a productive group discussion on key elements for developing a network operations manual, including oversight & governance, project development & collaboration, authorship & publications and research training. #CongenitalHeartResearchNetwork #ClinicalResearch #CHD
Valuable insights today from Dr Abbas Khush (Paediatric Cardiologist) and Dr Louis Coats (Adult Congenital Cardiologist) on developing collaborative research for both paediatric and adult heart disease. #ClinicalResearch #Collaboration #CongenitalHeartResearchNetwork #CHD
Consultant Fetal Cardiologist, Anna Seale, shared her insights today on her work with the National Fetal Cardiology Working Group. #CHD #CongenitalHeartResearchNetwork
"Nothing about us without us" Rajwant Kaur Sing, Children's Heart Federation CEO highlighted why involving patients in research matters: opportunity to eliminate uncertainty is an option; all parents want their children to thrive and live their ultimate life. #CongenitalHeartResearchNetwork #CHD
Opening remarks:
Good research benefits all, and we owe it to our patients to ensure they receive the best treatment and care. Looking forward to collaborating with the wider community and build a research network for #CHD.
Michael Quail, BCCA Scientific Secretary.
#CongenitalHeartResearchNetwork
Today we are coordinating the #CongenitalHeartResearchNetwork Development Workshop, where we will listen to experiences, discuss relevant points, and learn about the future of the network.
#ClinicalResearch #Congenitalheartdisease #CHD