DLG4-related Synaptopathy | DLG4 SHINE Foundation The DLG4 Shine Foundation - dedicated to funding research and finding treatment for this rare disease, and providing family’s with community support.

Help raise money for this noble cause! There are only 190 known individuals with this condition!

#ShineFoundation #DLG4Synaptopathy
#Chromosomemutation
S- #SleepDisturbances
H- #Hypotonia
I- #IntellectualDisabilities
N- #NeurologicalDisorders
E- #Epilepsy

www.dlg4shine.org

Me (the dad) walking with a very tall, slender teenager along a path in a park. We're both wearing shorts and shoet-sleeves. I'm guiding David by gently holding his arm.

Here's me doing the dad thing with David. He needs a lot of dad, mum and big sister support.
#ShineSyndrome #DLG4Synaptopathy