Trevor Salomon, Chair of the European Dementia Carers Working Group, reveals the winners of the UK’s Longitude Prize on Dementia Towards the end of 2022 I received a call from the UK’s Alzheimer’s Society asking me if I would be interested in becoming a member of the Lived Exper

Trevor Salomon Chair of European Dementia Carers Working Group #EDCWG reveals winners of GBP 1-million-pound Longitude Prize on Dementia. He and other members of the prize's Lived Experience Advisory Panel attended the award ceremony in London on 18 March:
www.alzheimer-europe.org/news/trevor-...

Member of the European Dementia Carers Working Group Annick Germeys and her husband Geert Mathys collaborate on a project to create a “clear language box” I would like to share with you the text of an interview with Geert and myself regarding a project we worked on together.

Member of the European Dementia Carers Working Group #EDCWG Annick Germeys and her husband Geert Mathys recently collaborated on a project to create a “clear language box” together with staff at Jessa Hospital (Hasselt, Belgium) where Annick used to work.

www.alzheimer-europe.org/news/member-...

Discussion paper and guidelines for the ethical use of technology for and by people with dementia

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Geschlecht, Gender und Sexualität im Kontext von Demenz: Sensibilisierungsleitfaden für Fachkräft e im Gesundheitsund Sozialwesen

Sexe, genre et sexualité dans le contexte de la maladie d’Alzheimer et des maladies apparentées : Guide de sensibilisation à l’attention des professionnels de santé et du secteur médico-social

People with #dementia and carers are experts in lived experience. This #BrainAwarenessWeek, we recognise that #PublicInvolvement shapes research, policy and awareness. #EWGPWD #EDCWG

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Technology use:
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Sex, Gender and Sexuality
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“Travelers to Unimaginable Lands” – by Sertaç Hatice, member of the European Dementia Carers Working Group My mother was diagnosed with Alzheimer’s disease and vascular dementia in 2018 through a brain MRI — without my knowledge at the time — and then again

Sertaç Hatice, member of the European Dementia Carers Working Group #EDCWG recently read the book “Travelers to Unimaginable Lands: Stories of Dementia, the Caregiver and the Human Brain” by Dasha Kiper and was moved to share it with our readers and followers
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📣 New discussion paper on the use of technology for and by people with #dementia

Developed by European Working Group of People with Dementia #EWGPWD and the European Dementia Carers Working Group #EDCWG

Download it here: bit.ly/AE-Technolog...

A big thank you to the #CERV programme for funding

Huge props to the members of the European Working Group of People with Dementia #EWGPWD & European Dementia Carers Working Group #EDCWG for presenting the 1st plenary at #35AEC and for all the incredible work you do with us & with our members across Europe. We literally couldn't do it without you!