Duchenne Muscular Dystrophy (DMD) is a genetic disorder that causes progressive muscle weakness.
There’s no cure yet, but research is bringing hope closer every day.
Learn. Share. Support. 💙
#DuchenneAwareness #EndDuchenne
Duchenne may weaken muscles, but it never weakens the spirit. Here’s to strength, science, and love leading the way forward. 💙 #EndDuchenne #DMD #MuscularDystrophy
Maddy at the end of her 100k
Me at the end of my 50k
Done! 🤩
Any pennies would be so gratefully received for Duchenne UK 🙏🏻
#EndDuchenne #ThamesPathChallenge
Last night mostly be like
#EndDuchenne #ThamesPathChallenge
Maddy at 89km, tired and in pain. She’s sleeping with her head on the table at a checkpoint.
89km for Maddy; 39k for me
I’m blown away by how well she’s doing but I can see it’s a real struggle now…
#EndDuchenne #ThamesPathChallenge
Maddy at the 77km mark eating a toastie and feeling it a lot.
77km for Maddy. 27km for me.
Maddy is hurting and her gait is as you’d expect. Every step is a new distance for her. She’s amazing
#EndDuchenne #ThamesPathChallenge
www.justgiving.com/team/lygo
My daughter at kilometre 63 out of her 100. She’s sitting feeling somewhat weary but drinking tea before pushing on.
63km. She is nailing it 💪🏻
#EndDuchenne #ThamesPathChallenge
Me and my daughter at the 50 km mark of her 100k walk and the start of my 50 km walk
My 50 K night walk start line
Laters 👋🏻
#EndDuchenne #ThamesPathChallenge
Pic shows my daughter sitting eating at the 50km rest stop. She’s slightly weary and achey but still moving well
She’s done 50k and she’s moving well! 💪🏻 We head off together when she’s had food and a short rest
#EndDuchenne #ThamesPathChallenge
An event number on the back of my pack. It’s for the Thames Path 50k which I will be starting with my daughter when she reaches the 50k mark of her hundred. She’s currently at 46km! Wish us luck and please donate if you are able 🥰
Looks like I’m giving this 50k a bash then…
#EndDuchenne #ThamesPathChallenge
🤟🏻 “I’m doing iiiit!” 🤟🏻
She’s off! And I’m so proud of her
My daughter starts her first 100km challenge walk on the Thames Path. ❤️
#EndDuchenne
Thank you so much @superkev79.bsky.social for your fab donation! Properly stoked to see Maddy and I have hit our target! Thank you! 🙌🏻
Very much hoping this week’s viral infection doesn’t scupper me. Still determined 💪🏻
#EndDuchenne
www.justgiving.com/team/lygo
Aerial satellite view of my walk today encompassing many fields and a few Leicestershire villages
Boomshakalaka!
#EndDuchenne
A small country lane lined with hedges and yellowing grass verges telling the tales of our dry summer. The sky is cloudy and rain is on the way. One tree stands to the right of the lane up ahead
Rainy, cloudy skies on yesterday’s training walk
Renal function has dipped some more
Undeterred
#EndDuchenne
A waterfall surrounded by trees. The water is falling from a straight, wide ledge into a pool that doesn’t look very deep
A view from grass covered white cliffs looking down onto a turquoise-blue sea with a small lighthouse not far from the shore
My daughter, Maddy, out on a training walk. She is wearing headphones and a backpack. She has long brown hair that is tied back and she’s making a sideways victory sign and is smiling.
A small town seen from on a hill. The town has houses surrounding a quay filled with boats. The sea is a green-blue and the sky is dappled with clouds
My daughter is currently hoofing up and down the trails, training for her first 100km walk in September. She is fundraising for a charity that we have supported for a few years, raising just over £70k so far
Please do take a look, & support or share if you can? 🙏🏻
#EndDuchenne
bit.ly/41bsn3M 👈🏻 👈🏻
Help Request - This October, I'm running with Parent Project Muscular Dystrophy (PPMD) to help end Duchenne—the most common fatal genetic disorder in kids. Every dollar supports research & care (none goes to race fees). Grateful for any support or shares! 💙
donate.parentproject...
#EndDuchenne
My wonderful daughter in her running gear with a race bib on in a Park on a grey day
My daughter is doing her first ever race today. Wishing her all the luck in the world with the half in Richmond Park.
She’s continuing our family fundraising for Duchenne UK, if anyone has a few pennies to give 🥰 👇🏻👇🏻 🙏🏻
#EndDuchenne #HalfMarathon
www.justgiving.com/fundraising/...
8 years of family fundraising for Duchenne UK has seen us cover some big distances, but nothing comes close to the pride I feel in my children for the trails they did for the charity
This was my youngest’s turn. Not once did he take up my offer to stop. He showed me what strength is ❤️
#EndDuchenne
Photo shows a mirror selfie of a young woman, before and after interval training, with a caption reminder that she’s running the Brighton marathon for charity
My family and I have been fundraising for Duchenne UK for a number of years and my daughter is currently holding the mantle with an entry for Brighton marathon next year
She was out smashing the interval training this morning. Go Maddy! 💪🏻
#EndDuchenne
