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#AlexTLC #RareDiseaseDay #RareAware #EquityForRare
HI Katie, a young adult with Hyperinsulinism shares her thoughts on fairer access to Continuous Glucose Monitors. She highlights their benefits & shares her experience of using a CGM at Great Ormond Street Hospital to help get her on the right medication dose.
#RareDiseaseDay #EquityForRare
“Blue-to-purple gradient graphic for Rare Disease Day. White text reads ‘Rare diseases currently affect 5% of the worldwide population’. The Rare Disease Day logo appears at the top left, with the date ‘Feb 28 2026’ at the top right. Bottom text includes ‘rarediseaseday.org’, ‘#RareDiseaseDay’, and a 2019 European Journal of Human Genetics reference.”
🌍 Rare diseases affect over 300 million people, yet access to diagnosis & treatment still depends on where you live.
💜 Equity for rare diseases means is access to suitable care, regardless of where you live.
Learn more 👉 https://go.rarediseaseday.org/equity
#RareDiseaseDay #EquityForRare
“The 5-year survival rate is lower for rare cancer patients compared to those with common cancers. Feb 28, 2026. #RareDiseaseDay.” A blue and purple gradient background with bold white text. The Rare Disease Day logo (multicoloured hand) appears in the top left.
🎗️ Rare cancers often receive less attention, leaving patients and families with fewer options and more uncertainty. Equal funding isn’t enough.
💜 Equity for rare diseases means fair funding, equal care & real hope for all.
#RareDiseaseDay #EquityForRare #RareCancers #WorldCancerDay
“300 million people worldwide living with a rare disease. 28 Feb 2026. #RareDiseaseDay.” A smooth blue-purple gradient background with bold white text and the Rare Disease Day logo (a multicoloured hand) at the top left.
🌍 While 300 million people worldwide live with a rare disease, funding is limited.
💜 Equity for rare diseases means investing more where it’s needed most.
Learn more about equity: https://go.rarediseaseday.org/equity
#RareDiseaseDay #EquityForRare
Rare Disease Day logo, ‘28 FEB 2026’. In the centre, ‘70% OF GENETIC RARE DISEASES’, followed by ‘START IN’ ‘CHILDHOOD’. ‘rarediseaseday.org’. ‘#RareDiseaseDay’. Along the bottom is the citation: ‘Estimating cumulative point prevalence of rare diseases: analysis of the Orphanet database’, European Journal of Human Genetics (2019).”
👶 For children with genetic rare diseases, the rare disease journey often starts early.
💜 Equity for rare diseases means giving every child, everywhere, an equal start in life.
👉 Learn more:https://go.rarediseaseday.org/equity
#RareDiseaseDay #EquityForRare
“Equity means fair access to diagnosis, treatment, care and opportunities. Rare Disease Day – Feb 28, 2026.” The Rare Disease Day logo (a multicoloured hand) appears in the upper left corner. The background is a smooth blue and purple gradient.
Equality, three people with different heights are stood on the same size box and can see the football game at various quality.
Equity, all three people have different size boxes to stand on giving them an equal viewpoint to watch the football game.
💜 For people living with a rare disease, equity means recognising unique needs & breaking down barriers — so everyone can fully participate in life, education & work.
⚖️ Equity ≠ equality. It’s fairness in action.
https://go.rarediseaseday.org/equity
#EquityForRare #RareDiseaseCommunity
🦓 “Being rare shouldn’t mean being forgotten.” 💜
300M+ people live with a rare disease—many without a cure or proper diagnosis. Today, we amplify their voices.
🌍 Awareness drives research. Research saves lives. Let’s stand together!
#RareDiseaseDay #HopeForRare #EquityForRare
