Help us give children like Cara-Grace the gift of more time this Christmas. mikaerefoundation.org/christmas

#AlliWantForChristmas #NKH #NKHAwareness #GlycineEncephalopathy #NonketoticHyperglycinemia #ChristmasWish

With #NKH, severity is tricky to predict, and can’t be predicted from birth/initial presentation. Some children don’t reach milestones past that of a newborn. It's heartbreaking.

May 2nd is #NKHAwarenessDay - please donations for a cure:
www.justgiving.com/page/nkhawar...

#glycineencephalopathy