NIH saved my life. Their research helped develop treatments and raise awareness for my gene that causes kidney cancer #HLRCC. Dr Marston Linehan is my hero. I detest that these pathetic humans in out government are harming decades of research that have saved and extended lives.
I am an NIH patient & IL resident. I have HLRCC. My mother died of the disease in 1988 at 45. Nobody understood it then. NIH have been researching it for decades & because of that I’m alive & there is hope for my son who has the gene too. We are devastated by these cuts. NIH are heroes. #HLRCC #NIH
As an NIH patient whose hope clings to that research and has seen people surviving a disease that killed my mother at age 45, I am devastated they are doing this. Research is everything. There are incredible doctors like Dr. Marston Lineham whose work has extended and saved so many lives. #HLRCC.
A sane government wouldn’t do this. I am an NIH patient. Some of that research they are slashing is to help keep me and my son alive. #HLRCC. #NIH
I honestly can’t believe this is happening. Devastated.
Long but exciting day - on the first leg of my trip to FLASCO’s
Annual Puerto Rico Oncology Symposium! Can’t wait! #patientadvocate #kidneycancer #renalcellcarcinoma #HLRCC #stagefourneedsmore #oncsky
Before I get too carried away posting/skying?, more about me: dx in 2016 w/stage 4 papillary #kidneycancer. Discovered I have #HLRCC, a genetic disorder related to my diagnosis. #caregiver to my mom-who died in 2019-from RCC & #lymphoma. Marketer by day, #patientadvocate by night. #oncsky #medsky
