🔬 Dr. Jane Houghton & Professor Sarah Flanagan explain how genetic testing helps diagnose HI and guide treatment. Learn about 26+ genes, real family cases, HK1 discoveries, and research helping children still waiting for answers.
https://youtu.be/I_jISTUDMoQ
#HyperinsulinismUK
🌸 Key Facts About Hyperinsulinism! 🌸
This Spring, join us in raising awareness of Congenital Hyperinsulinism (HI) the leading cause of severe and persistent hypoglycaemia in newborns.
🌐 www.hyperinsulinism.co.uk
#HyperinsulinismUK #Hyperinsulinism #Hypoglycaemia
From the outside, life looks normal.
On the inside, HI can mean exhaustion, sleepless nights, constant checks, and endless “what ifs.”
At CHC, we listen to what families tell us life is really like, so we can tailor our support, resources, and advocate for them🥰#HyperinsulinismUK
Hyperinsulinism families describe the time around diagnosis as terrifying & overwhelming. Our packs are handed out to newly diagnosed families to access our support at the earliest opportunity
💖Support Group: https://www.facebook.com/groups/CHCharityUK
🌐www.hyperinsulinism.co.uk
#HyperinsulinismUK
💓 On 3 May, Martine and Kathleen will take on the Belfast City Marathon, running for someone incredibly special, HI Hero Aodhán, and raising funds for The Children's Hyperinsulinism Charity.
To donate: https://gofund.me/1ca3127d9
#BelfastCityMarathon #HyperinsulinismUK
🥺Babies show signs. Families speak up.
The question is... are you listening?
⚠️ Think Hypoglycaemia = know the signs.
⚠️ Think Hyperinsulinism = the leading cause of persistent low blood sugar in babies.
Listen to families. Early action saves lives.
#HyperinsulinismUK
🥰 We love seeing HI children and their siblings enjoying special moments together at our Fun Days.
Pippa had the best time driving her LEGO car at Legoland, moments like these remind us why connection, joy, and community matter so much.
A 2026 Fun Day announcement coming soon!
#HyperinsulinismUK
⭐Meet Cillian. Full of energy and joy, but behind the fun, he faces a constant, hidden battle with Hyperinsulinism. Every day means constant care: blood glucose monitoring, urgent treatment of hypoglycaemia, medications, and overnight feeds.
We support HI families #HyperinsulinismUK
😴Sleep is a constant challenge in Congenital Hyperinsulinism.
Night-time blood glucose checks and feeds are exhausting, but they save lives by preventing dangerous hypoglycaemia.
#WorldSleepDay #HyperinsulinismUK
@CHCharityUK is a member of Hidden Disabilities Sunflower, with a specially designed card to help Hyperinsulinism Heroes like Daisy access support🌻
📩 Order: enquiries@hyperinsulinism.co.uk
🔗 Learn more: https://youtu.be/4iMjQWXKndc
#BeSeenWithSunflower #HyperinsulinismUK
In babies, hypoglycaemia can be hard to detect. Look for signs like breathing difficulties, seizures, or unresponsiveness—they could signal low blood sugar. Early Detection & Prompt Intervention is essential to avoid neurological harm #CongenitalHyperinsulinism #HyperinsulinismUK
⬆️⬇️Congenital Hyperinsulinism has a very important opposite HIGH insulin / LOW blood glucose!
In Congenital Hyperinsulinism insulin keeps being produced no matter what the blood sugar levels are. Leading to severe & unpredictable hypoglycaemia
#OppositesDay #HyperinsulinismUK
🏥 A Hyperinsulinism diagnosis often means long hospital stays, keeping parents away from family, home, and work during a tough, uncertain time. 💓 Our Newly Diagnosed Support Packs are now in more hospitals, helping families find us early.
#HyperinsulinismUK #AimHI
January can be tough on family finances. Our YouTube video with Maria Wilson from Contact explains the support HI families can explore from DLA and PIP to grants, discounts, and council tax help or support with home adaptations.
📺 https://youtu.be/S0FIotEunKs
#HyperinsulinismUK
🥳 Happy New Year! Today, we are sending a huge thank you to the amazing Box4Kids.
Thanks to their kindness, our CHI Superheroes and their families enjoyed unforgettable VIP experiences throughout the year🥰
@BWellsTrust #Box4Kids #YearInReview #HyperinsulinismUK
🎁 Happy Boxing Day! Whether you’re relaxing or spending some time with family and friends, we hope today’s full of love & laughter. Thank you for supporting The Children's Hyperinsulinism Charity look out for our Year In Review posts from Monday 29th 🥰🎉#HyperinsulinismUK
Our website has advice & tailored resources
✔ Hyperinsulinism
✔ Education & care systems
✔ Money, travel, & well-being
✔ Self-advocacy skills
💖 Family stories, videos, & more!
🌐 www.hyperinsulinism.co.uk
YouTube @childrenshyperinsulinismUK
#HyperinsulinismUK
On #WorldDiabetesDay, our visual explores the differences and common ground between Hyperinsulinism and Diabetes 💙🩸
#CongenitalHyperinsulinism #HyperinsulinismUK
Hyperinsulinism can disrupt sleep, cause anxiety, and add constant worry.
👨👩👧👦 Our support group, guides & resources help families feel informed and less alone.
📲 Scan the QR code for practical advice & emotional support.
❤️ You’re not alone. #HyperinsulinismUK #StressAwarenessDay
🎃👻 This Halloween, let’s raise awareness for Congenital Hyperinsulinism (CHI).
Too much insulin = severe hypoglycemia, depriving the brain of glucose and leading to neurological harm.
Follow @CHCharityUK to learn more
#CongenitalHyperinsulinism #HyperinsulinismUK
🎤🎶 If I could turn back time… yes! Tonight you get to be Cher and turn your clocks back one hour ⏰💃
P.S. Don’t forget your blood glucose meters and medical equipment too! 😁
#HyperinsulinismUK #TurnBackTime
Navigating the Special Educational Needs System -Karen Hoe OBE, Contact Charity
✅ What qualifies as SEN
📜 The legal framework and your rights
🏥 Medical needs & reasonable adjustments
📘 SEN Support vs EHC Plans
⚖️ How to appeal
🌐 Local Offer
Watch the video: youtu.be/WFWIdI1nvHw
#HyperinsulinismUK
Do you know the difference between Hyperinsulinism and Diabetes?
They both involve insulin dysregulation. However, they are both distinct conditions,
👉 View our graphic to learn more.
#DiabetesWeek #CongenitalHyperinsulinism #HyperinsulinismUK
We are proud to stand alongside Children's Hyperinsulinism UK on #HyperinsulinismAwarenessDay
#AimHiTogether #AimHiforHyperinsulinism #HyperinsulinismUK #Hyperinsulinism
#Insulinoma #InsulinomaAwareness #InsulinomaCharityUK #RareDiseases
🩵 Understanding Congenital Hyperinsulinism (CHI)
Did you know there are two types of CHI = Focal & Diffuse and they affect the pancreas in different ways? These visuals explain the difference plus some information on incidence & presentation.
#HyperinsulinismUK
Hyperinsulinism can be unbelievably challenging, but CHI Superheroes and their families face it with Courage, Hope, and Inspiration, achieving more than we could ever imagine and inspiring us all.
💖We’re proud to represent them and be their patient voice.
#HyperinsulinismUK
🌍 Happy Earth Day
Today we celebrate the beauty of nature that bring so much joy and wonder to our CHI Superheroes and Siblings
Let’s protect our planet—for their future, and all the adventures still to come🌱💚
#EarthDay #HyperinsulinismUK
From worrying about blood sugars to wondering what their friends might think, there’s so much going on in CHI Superheroes' minds. That’s why we are helping schools to understand how Hyperinsulinism impacts learning and to recognise the psychological effect it can have. #HyperinsulinismUK
Normally when a body is low in glucose ketones are formed as an alternative fuel to protect the brain. However in #Hyperinsulinism there is an absence of ketones and therefore a reliance on the circulating blood glucose to protect the brain. #HyperinsulinismUK
Our first entry in our #SayHItoSpring competition!! #CHI Superhero Elsie and her sister Betsy have made this delicious Easter cake! #HyperinsulinismUK #SayHItoSpring🐰
