Tomorrow is #IPKUDay! Check out this great program from the NORD Rare Disease Center of Excellence at @emorygenetics.bsky.social.
NORD offers financial assistance to #PKU patients in need. Apply here: bit.ly/4czUzRE
If you live in #Canada, learn about the Canadian PKU Registry at pkuregistry.ca.
π’On June 1st, 2025 on the occasion of #IPKUDAY2025 we'll launch of 'Shades of PKU' campaign! It'll show all shades of living with PKU + unmet needs of patients with PKU. #shadesofpku
Use #IPKUDAY logo in your publications: espku.org/projects/pku...
We're excited to introduce the new hashtag for International PKU Day π #IPKUDAY! Watch this space π to stay updated and be the first to get information about this year's campaign for #IPKUDAY2025 πβ¨ Stay tuned! π
π¨ NEW Hashtag for International PKU Day!
From now on, use #IPKUDAY to share your stories, events & support for PKU!
π’ Get the official logo here: espku.org/projects/pku...
π BIG awareness campaign coming soonβstay tuned! π
π© Questions? Contact us at: pkuday@pkuday.org