👏Kudos to AMEND amenduk.bsky.social for launching a brand-new digital resource for registered members of the charity with #MultipleEndocrineNeoplasia type 1 (MEN1).
✅Find out more: incalliance.org/men1-patient...
#LetsTalkAboutNETs
👏Congrats to NeuroEndocrine Cancer Australia for the newly refreshed website! Explore the modern design, improved navigation, and enhanced accessibility.
✅Find out more: incalliance.org/newly-refres...
#LetsTalkAboutNETs
When NENs present in primary care, awareness makes all the difference.
The #ThinkNENs Global Educational Program supports PCPs in recognizing neuroendocrine cancer earlier.
✔ Free CME
✔ 60-minute module
✔ 13 expert videos
✔ 7 languages
Start today: incalliance.org/think-nens/
#LetsTalkAboutNETs
High-grade NENs are aggressive and early diagnosis is vital to receiving timely treatment.
✅We support clinicians to better understand high-grade NENs with #NETInfo factsheets on 26 types of NENs and related syndromes – available in 12 languages: incalliance.org/net-info-pac...
#LetsTalkAboutNETs
📌Dr. Justin Annes: “Classical immunotherapies are not likely to be effective with pheo & para – the immune system has a hard time in recognizing these tumors.”
📱Watch the insightful video on #pheo and #para: incalliance.org/dr-justin-an...
#LetsTalkAboutNETs
📢March is the European Colorectal Cancer Awareness Month.
👉Let’s put the spotlight on neuroendocrine cancer of the colon.
✅We empower HCPs with #NETInfo factsheet with а comprehensive snapshot of NEN of the colon in 12 languages: incalliance.org/net-info-pac...
#LetsTalkAboutNETs #ECCAM2026
Patient advocacy needs to be evidence-based.
📱Watch a video presentation guide on how to collect and analyze data and how to get published in scientific journals: incalliance.org/advocacy-ski...
👏Thank you to Prof. John Ramage for supporting patient advocates!
#LetsTalkAboutNETs
👏Kudos to Neuroendocrine Cancer UK @neuroendo-can-uk.bsky.social : The new report on Invisible Cancer had widespread media coverage across the UK, highlighting the urgent challenges facing people with neuroendocrine cancer.
✅Read the report: incalliance.org/ncuk-the-inv...
#LetsTalkAboutNETs
📌Para pacientes hispanohablantes: Un podcast médico de NANETS @nanets.bsky.social sobre el manejo del feocromocitoma y paraganglioma.
✅Escuche el podcast aquí: nanets.net/education/ne...
#LetsTalkAboutNETs #tumoresneuroendocrinos
Designed for busy primary care physicians.
The #ThinkNENs program delivers expert education on neuroendocrine neoplasms in short, practical videos—free, CME-accredited, and globally accessible.
• 7 languages
Start the free CME today: incalliance.org/think-nens/
#LetsTalkAboutNETs
📢NEW: Check out INCA’s new information resource on nutrition in NENs.
📌This new global resource makes it easy for NEN patients from around the world to find advice on nutrition in their language.
✅Check it out here: incalliance.org/nutrition-in...
#LetsTalkAboutNETs
There is a risk of hypercalcemia and neutropenic sepsis with high-grade NENs. Less than 10% of high-grade NECs will have symptoms of a NEN-associated syndrome e.g. carcinoid syndrome.
✅Download a #NETInfo on high-grade NENs in 12 languages: incalliance.org/net-info-pac...
#LetsTalkAboutNETs
📢Listen to the voices of the NEN patients!
📌Allison from Australia took part in the routine bowel cancer screening program and that colonoscopy turned out to be life-saving.
📱Watch and read Allison’s story: incalliance.org/stories/alli... #LetsTalkAboutNETs
Learn from NEN patients what it feels like to be participating in a NEN clinical trial.
📌Hear advice from Marie-Therese from the Netherlands, Cecilia from Mexico, Craig from UK and Anne from Australia: incalliance.org/patient-insi...
#LetsTalkAboutNETs
👏Kudos to Net Italy ETS for partnering with Sant’Andrea University Hospital in Rome in an innovative event on NENs. Experts and patients discussed diagnosis and personalized therapies.
✅Find out more in English and Italian: incalliance.org/net-italy-ro...
#LetsTalkAboutNETs
📌ENETS-INCA educational webinars gather NEN experts, NEN nurses and NEN patient advocates to provide valuable information on NEN patient journey in a patient-friendly language.
📱Watch all videos here: incalliance.org/net-educatio...
#LetsTalkAboutNETs
Neuroendocrine neoplasms (NENs) are often misdiagnosed.
We call on #PrimaryCarePhysicians to learn to detect them early.
Join the FREE Think NENs 60-min course
• CME-accredited
• 7 languages
• Endorsed by leading NEN societies
✅Start learning today: incalliance.org/think-nens/
#LetsTalkAboutNETs
High-grade NENs are represented by NET Grade 3 (Ki67 is above 20%,the cells are well-differentiated) and NEC Grade (Ki67 is above 20%, the cells are poorly-differentiated).
Early diagnosis is crucial.
✅We help HCPs to know NENs in 12 languages: incalliance.org/net-info-pac...
#LetsTalkAboutNETs
NEN patient advocates can prevent burnout with self-care strategies.
📱Watch a video with structured advice and practical strategies from Amanda Stork, Specialist NET Counsellor, NeuroEndocrine Cancer Australia: incalliance.org/self-care/
#LetsTalkAboutNETs
📢Listen to the voices of the NEN patients!
📌Leslie from USA went through genetic testing as part of her breast cancer journey - early paraganglioma diagnosis helped for timely treatment.
✅Watch Leslie’s story: incalliance.org/stories/lesl...
#LetsTalkAboutNETs
📌AI contributes to efficiency in NEN research and clinical care but responsible use is needed – this was the overall conclusion at the INCA-ENETS Symposium 2026 on March 5th.
✅Read the news report on the INCA-ENETS session:
incalliance.org/inca-enets-s...
#LetsTalkAboutNETs #ENETS2026
📌Here is a new resource helping NEN patients prepare for clinical trials:
✅Check out the questions you should ask while considering a clinical trial: incalliance.org/support-pati...
✅Find a NEN clinical trial: incalliance.org/find-a-trial/
#LetsTalkAboutNETs
📢Don’t miss the new webinar from NCF: Novel Targeted Therapies in Neuroendocrine Cancers on March 9th, 2026, from 8:30 am Pacific.
✅Read more and register: incalliance.org/novel-target...
#LetsTalkAboutNETs
Primary care professionals play a critical role in the early diagnosis of NENs.
#ThinkNENs Program is here to help – and it's completely FREE.
✔ 60-minute CME-accredited module
✔ 7 languages
✔ Endorsed by leading NEN societies
Explore here: incalliance.org/think-nens/
#LetsTalkAboutNETs
📌An opportunity to enhance your advocacy skills for making successful NEN awareness campaigns!
📱Watch a video on “Keys to Media Outreach & Advocacy” with best practice sharing from NeuroEndocrine Cancer Australia: incalliance.org/advocacy-ski...
#LetsTalkAboutNETs
👍Here we are at #ENETS2026 - meet us at INCA information booth at the ground floor of ICE Congress Centre!
📌Join @enets.org and INCA for the special session on AI and NEN care on March 5th:https://incalliance.org/inca-enets-symposium-2026/
#LetsTalkAboutNETs
📢2 days away: On March 5th, 2025, from 16:45 CET, in Krakow, INCA and ENETS @enets.org will discuss a very intriguing topic – the role of AI in NEN research and patient care.
✅Look at the agenda: incalliance.org/inca-enets-s...
#LetsTalkAboutNETs
High-grade NETs with a Ki-67 index of more than 20% are classified as grade 3. Poorly differentiated Grade 3 tumors are NECs. These tumors are aggressive and are treated differently than lower-grade NETs.
📌We help HCPs know NENs in 12 languages: incalliance.org/net-info-pac...
#LetsTalkAboutNETs
📌Today is #RareDiseaseDay! NENs are more common than you think. The prevalence is up at around about 30 or 30+ per 100 000 population. In the UK, for example, around 6,000 people are diagnosed with NENs every year.
✅We help HCPs to be aware: incalliance.org/net-info-pac...
#LetsTalkAboutNETs
📢COMING SOON: On March 5th, 2025, from 16:45 CET, in Krakow, INCA and ENETS @enets.org will discuss a very intriguing topic – the role of AI in NEN research and patient care.
✅Look at the agenda: incalliance.org/inca-enets-s...
#LetsTalkAboutNETs
