Thank you to the people who have been asking: Sissy Snagertooth and Phylis is now available to buy from our online shop.
All profits go to the Lewy Body Society!
Buy here: www.lewybody.org/product/siss...
#Lewybodydementia #Childrensbooks
Today is #WorldParkinsonsDay.
Over 166,000 people in the UK live with Parkinson’s. Between 70% to 80% of people with Parkinson's will eventually develop dementia.
#ParkinsonsDiseaseDementia #Lewybodydementia
Ahead of World Parkinson's Day tomorrow, we share how Lewy body dementia can present with parkinsonism symptoms including tremors, slowness (bradykinesia), and stiffness (rigidity).
#Lewybodydementia #WorldParkinsonsDay #Parkinsonsdisease
Our half-a-million-pound 20th anniversary grant round is closing this Friday, April 10.
Thank you to all our supporters whose donations have made this funding possible.
Apply here: www.lewybody.org/research/apply-for-a-grant/
#dementiaresearch #neuroscience #Lewybodydementia #researchgrant
Though my dad's neurologist indicated probable multiple system atrophy while my dad was alive, the neuropathology report came back as Lewy body disease and Alzheimer's.
Lena B.
#braindonation #lewybodydementia
We have one place remaining for the AJ Bell Great Manchester Run 10k, taking place on Sunday, May 31, 2026.
Please email us to secure your place on the start line for the Lewy Body Society: info@lewybody.org
#Manchester10K #TeamLewy #Manchester #Lewybodydementia
We are delighted to have been nominated as Charity of the Year for the Wigan Borough Business Awards!
#Wigan #Lewybodydementia #smallcharity Wigan Borough Business Awards
Dr. Chen-Plotkin and her team have developed two prototype tests for detecting elements of LBD, including measuring accumulations of alpha-synuclein proteins in in biofluids. This research could help in the development of blood-based biomarkers for the disease. Dr. Chen-Plotkin was also a recipient of an American Brain Foundation Next Generation Research Grant for ALS in 2008 and currently serves on the Foundation’s Research Advisory Committee.
Alice Chen-Plotkin, MD was awarded a #CureOneCureMany Award in #LewyBodyDementia.
Institution: @upenn.edu
This $1 million award is funded in collaboration with @alzassociation.bsky.social and The Michael J. Fox Foundation.
buff.ly/S0kbgYQ
Dr. Higginbotham and her team will employ machine-learning processes to make a comprehensive study of proteins in LBD plasma samples. This will help scientists better understand individual variability in LBD, and thereby help to improve precision in diagnosis, prediction, and treatment. Dr. Higginbotham was also a recipient of an American Brain Foundation Next Generation Research Grant for LBD in 2020.
Lenora Higginbotham, MD was awarded a #CureOneCureMany Award in #LewyBodyDementia.
Institution: @emorydeptofmed.bsky.social
This $1 million award is funded in collaboration with @alzassociation.bsky.social and The Michael J. Fox Foundation.
buff.ly/Ovw7kN5
Meet Dr David Koss, from University of Dundee, who we have supported in his investigation of the role damage to DNA plays in the development and progression of Lewy body dementia.
The deadline for current grant round applications: 5pm, Friday, 10 April.
#dementiaresearch #lewybodydementia
A special thanks to Emma for agreeing to speak to me about this issue. Best of luck!
'It might help somebody else get an earlier diagnosis': #Kildare woman will run in #VHIWomensMiniMarathon 2026 to raise awareness for Lewy Body Dementia
#KildareNews #LewyBodyDementia #DementiaAwareness #Marathon
Read about the recipients of the latest American Brain Foundation Cure One, Cure Many Awards in our latest blog! In the largest distribution of funding in ABF history, six researchers and their teams will study #neuroinflammation and #LewyBodyDementia. ⬇️ buff.ly/J98m8gY
Visual hallucinations are a symptom that is more commonly associated with #Lewybodydementia than other dementias.
For help with managing hallucinations: www.lewybody.org/information-and-support/information-leaflets/managing-hallucinations-and-changes-in-visual-perception-in-lewy-body-dementia/
Meet Dr Jay Amin, who the Lewy Body Society has supported to study whether inflammation in the body affects how quickly Lewy body dementia progresses: www.lewybody.org/lbs-funding-lewy-bodies-research-jay-amin/
Current grant round application deadline: 5pm, Friday, 10 April.
#Lewybodydementia
Inside Look: How Doctors Diagnose Lewy Body Dementia
Lacking a definitive biomarker, LBD is tough to tell apart from other dementias. For an accurate diagnosis, here are the symptoms, scans, tests, and other factors doctors rely on instead.
beingpatient.com/how-doctors-...
#lewybodydementia
#SamKieth, creator of #THEMAXX, dead at 63
Kieth, who also co-created #TheSandman, and various #Batman books, died following a battle with #Lewybodydementia.
www.comicsbeat.com/sam-kieth-ob...
The #CGTX team is presenting an analysis at #ADPD2026 showing that Phase 2 'SHIMMER' #DLB participants on #zervimesine had a 102% slowing of decline relative to placebo. #Pressrelease: tinyurl.com/26rh26be
#DementiaWithLewyBodies #LewyBodyDementia #Dementia #LewyStrong #Psychosis #Neuroscience
Our CEO Jacqueline Cannon is attending the NICE - National Institute for Health and Care Excellence conference at the Hilton Manchester today.
Looking forward to an interesting day.
#NICE #Lewybodydementia #Dementia #NICEConf26
Check out our Recombinant Alpha-Synuclein (Cat # S-1001) for your research needs!
www.rpeptide.com/product/alph...
Contact Sales@rPeptide.com for a quote or place an order online!
#Neuroscience #AlphaSynuclein #ASyn #LewyBodyDementia #Parkinsons #ResearchReagents #rPeptide
The Overlooked Dementia: Shedding Light on Lewy Body with Brandi Hackett - Episode 146
www.caregiverrelief.com/the-overlook...
#dementia #lewybodydementia #lbd
Weekend Watch:
LBDA: From Berlin to Breakthroughs
The Life of Dr. Lewy
The Lewy Body Dementia Association (LBDA) is proud to present "From Berlin to Breakthroughs: The Life of Dr. Lewy."
Watch: www.youtube.com/watch?v=Hjir...
#lewybodydementia
Many people with #Lewybodydementia experience sleep disturbance as one of their main symptoms.
Dr Paul Donaghy, Consultant Admiral Nurse Rachel Thompson, and Karen Young whose husband Alan has Lewy body dementia, talk about how the disease affects sleep.
#WorldSleepDay #Dementia #Sleep
It is World Sleep Day.
Did you know that up to 90% of people with #Lewybodydementia have problems with sleep? It can be one of the first symptoms, sometimes many years before any others.
Find out more about managing sleep disturbance: tinyurl.com/mc22nht7
#WorldSleepDay #dementiasymptoms
LBDA Clinical Trial Results Published: The SHIMMER Study
People living with dementia with Lewy bodies (DLB) often face a difficult mix of symptoms—changes in thinking, movement, behavior, sleep, and daily function.
lbda.org/clinical-tri...
#lewybodydementia
We know many people with #Lewybodydementia were told they had something else before they got the accurate diagnosis.
If you are a carer for someone who this happened to, would you have time to take part in a research interview?
Contact charlotte.marsden@liverpool.ac.uk
#dementiacarers
Esteban Luna, MD, PhD was awarded the 2026 Next Generation Research Grant in Lewy body dementia. Dr. Luna will explore if the decreased expression of the gene MPEG1 in the brain’s immune cells is associated with accumulations of the protein alpha-synuclein, which leads to conditions like LBD and Parkinson’s. If so, this could lead to new therapeutic approaches targeting MPEG1 to treat these conditions. This research is co-funded with the Alzheimer’s Association.
Esteban Luna, MD, PhD was awarded the Next Generation Research Grant in #LewyBodyDementia #LBD.
Institution: @upenn.edu
This research is co-funded with @alzassociation.bsky.social.
More ➡️ buff.ly/eBk1HYV
#LBDResearch
Ahead of #InternationalWomensDay on Sunday, we would like to recognise all the women living with #Lewybodydementia and all the women caring for people with the disease, the women working in health care and medical research and the female decision-makers working hard to change the future of dementia.
Great to see @liverpooluni.bsky.social's Dr Megan Rose Readman and her poster that The Lewy Body Society's Jacqueline Cannon collaborated on at the Liverpool Dementia and Ageing Research Forum Annual Conference today.
#Lewybodydementia #dementia #dementiainnovation
Today we are at the Liverpool Dementia and Ageing Research Forum Annual Conference, with Dr Clarissa Giebel opening.
The theme is innovations in dementia - excited to share our Dememnita Inequalities Games with the delegates. Come and see us if you are here!
#lewybodydementia #dementiainnovation
Can't believe it has been a month since our World Lewy Body Day reception in the Houses of Parliament.
What a way to start our 20th anniversary year. 💙
#lewybodydementia #lewybodysocietyat20
www.youtube.com/shorts/MFxsq...
