a woman sitting on a couch with the words i need your help on her face ALT: a woman sitting on a couch with the words i need your help on her face

@lupusencyclopedia.bsky.social Do you have research/knowledge/information on Gazyva?

Does anyone else? #LupusChat #nephritis

These are the times I REALLY miss #LupusChat

Happy birthday @caringforlupus.bsky.social! Love you so much! #LupusChat

Carly, Liz, Tiffany, Christèle. They are all wearing LupuChat shirts and purple scarves.

Dr Knight, Christèle, Li, Miah, attending the 2025 LRA gala.

Miah and Liz, speaking at 2024 ACR conference.

Hey everyone, please join us in wishing our amazing friend, fierce advocate, and awesome #LupusChat Co-host, @caringforlupus.bsky.social a Happy Birthday! Thank Liz you for all your hard work. It is an honor to advocate alongside you.
We love you and hope you have the best day and year! 🥳💜

Happy New Year #LupusChat family! We're another year stronger & we're looking forward to thriving together with each of you in 2026! 🥳💜

a purple christmas card with purple ornaments and the words happy holidays . ALT: a purple christmas card with purple ornaments and the words happy holidays .

Happy Holidays to everyone in the #LupusChat family! We wish you nothing but peace, love, and happiness. Remember to take some time for self-care. We love you all! 💜 🎄📯☃❄⛄

~ The #LupusChat Team

Just wrapped up a panel talking about disability in #GameAudio at #GameSoundCon, and I got to give a shout out to my favorite support group #LupusChat 💜

So excited about Dr. Daniel Whibley’s presentation at #ACR25 on Cognitive Dysfunction and how it Manifests in those living w/Fibromyalgia. He shared several ways to conduct baseline cognitive tests.

cc: @ladaorg.bsky.social @lupuschat.bsky.social #LADAorg #LupusChat

Absolutely thrilled to catch this #ACR25 session on the Cognitive Function in Rheumatic Diseases. The first presentation was given by, patient advocate, Mary Alore sharing her experience with brain fog.

Cc: @ladaorg.bsky.social @lupuschat.bsky.social #LADAorg #LupusChat

Random but...Prednisone really changed the shape of my face, but I'm used to it now. Heliocare improved my skin. Benlysta restored my hair to health.

Brought to you by the Spoonie Beauty Hour 🤭 #LupusChat #Lupus

Learning a lot in an #ACR25 session led by @ireneblanco.bsky.social & hearing Patient Advocate, Grayson Schultz speak on the many barriers LGBTQIA+ individuals face while trying to access healthcare & how to navigate rheumatology care as an LGBTQIA+ patient. #LADAorg #LupusChat @ladaorg.bsky.social

Surprise @lupuschat.bsky.social spotting in Dr. Martha Delgado’s #ACR25 session! An FYI, #LupusChat gave a presentation at the NIH NIAMS annual clinical research event in both 2019 and 2024 on the importance of utilizing digital tools to build communities and advance health literacy. #LADAorg

Dr. Martha Delgado gave a great #ACR25 presentation focused on improving patient participation in clinical trials in Latino communities. She shared barriers for both patients & providers as well current efforts to remove barriers.

cc: @ladaorg.bsky.social #LADAorg @lupuschat.bsky.social #LupusChat

If you see me at #ACR25 ask me for a #LupusChat sticker!

Patient experience researcher & advocate extraordinaire, Monique Gore-Massy gave a great presentation at #ACR25 on the importance of sexual health being an essential part of patient care! #LADAorg #LupusChat

cc: @ladaorg.bsky.social @lupuschat.bsky.social

Dr. Jillian Rose is giving a remarkably informative presentation on Sexual Health & Rheumatic conditions.

🔹 90% of women w/SLE have reduced arousal

🔹56% of women w/Sjogren’s experience vaginal dryness

🔹89% of men w/Systemic Sclerosis experience erectile dysfunction

#ACR25 #LADAorg #LupusChat

Up early at #ACR25 sitting in on sessions about sexual & reproductive health and rheumatic conditions. Sessions are being led by Dr. Lisa Sammaritano, Dr. Jillian Rose, and Patient Advocate extraordinaire, Monique Gore-Massy. #LADAorg #LupusChat

A multicolored archway designating a Hall of Posters. There are people walking under it

Spending some time in the Poster Hall at #ACR25! I’m excited to see the results of several studies as well as the Patient Prospectives posters.
#LADAorg #LupusChat

@ladaorg.bsky.social
@lupuschat.bsky.social

Two ladies standing in front of a lupus community booth

Representing @lupuschat.bsky.social at the lupus community booth at #ACR25 with @ladaorg.bsky.social! Stay tuned as I share updates on new and intriguing studies on lupus and rheumatic conditions!

Please visit our community booth in the Exhibit Hall at booth 2121! #LADAorg #LupusChat #ACR25

I've flown w benlysta! Happy to give advice! #LupusChat

a woman in a white lace top has her eyes closed and says so many questions ALT: a woman in a white lace top has her eyes closed and says so many questions

Need advice on #FlyingWithLupus, and if anyone has flown with benlysta and can give some advice, it would be appreciated. (Any first time flying advice is welcomed. #LupusChat

Headshot of Tiffany, with a green afroprint outfit, with pink glasses, hair out in a curly twist out.

Hey #LupusChat fam, please join us is wishing our Founder & CEO @tiffanyandlupus.bsky.social a very Happy Birthday!!! We are forever grateful for all you do for the community. You are a beacon of light and we appreciate you. We hope you have THE BEST day! 🎉🎂

Me at the rheumatologist today... So... COVID vaccine?

Rheum: welp, either it'll be restricted and I will make sure you receive it due to being severely immunocompromised or we will get nothing. And we don't know yet... but def gonna need your flu shot.

#lupus #lupuschat

a cartoon character from bob 's burgers is celebrating her birthday with her hands on her head . Alt: a cartoon character from bob 's burgers is celebrating her birthday with her hands on her head .

🎂💜 Happy Birthday to our colleague & #LupusChat co-host @syncenerdcarly.bsky.social! 🥳 Thank you for advancing lupus research & always showing up for the community. We celebrate you today & every day! 🎉

Got SLE? 💜 Been on a biologic? You could earn $150 for sharing your experience in a 90-min online lupus research interview! Ages 21–55, no Lupus Nephritis. Apply by TODAY Aug 8 👉 https://shorturl.at/GfJk5

Got SLE? 💜 Been on a biologic?
You could earn $150 for sharing your experience in a 90-min online lupus research interview!

Ages 21–55, no Lupus Nephritis.

Apply by TODAY Aug 8 👉 shorturl.at/GfJk5 #LupusChat

SELF: Strategies to Embrace Living with Lupus Fearlessly If you're living with lupus, our self-management app SELF is for you!

Anyone using this SELF App to manage/track their disease activity? #LupusChat @lupuschat.bsky.social

www.lupus.org/resources/self

a man says " it 's too much " in front of a window ALT: a man says " it 's too much " in front of a window

Having the worse #lupus flare you've had in 10 years is terrifying. I'm still not coping well emotionally, but I didn't want to burden others, so I've been dealing with it as best as I can. No to mention everything else I deal with as a Black disabled woman. #LupusChat

a black and white photo of a woman with her hands on her head and the words `` anxiety setting in ... '' . ALT: a black and white photo of a woman with her hands on her head and the words `` anxiety setting in ... '' .

I had to take a break from discussing my #lupus cuz it's causing debilitating anxiety due to a flare; to the point I just got my labs that were ordered in April by my rheumy and got my August labs from endocrinologist with them because I don't know when I can make myself do them again. #lupuschat

Cardiovascular Events in Lupus Nephritis: A Systematic Review and Meta-Analysis - PubMed CVE occurrence among individuals with LN is significant, and this disease entity increases CVE risk, highlighting the importance of implementing early therapeutic interventions to prevent poor outcome...

It’s not just the immune mediated and infections - we need to pay attention to cardiovascular disease in SLE

pubmed.ncbi.nlm.nih.gov/40539000/

Nice job synthesizing the data @saynanorouzi.bsky.social and team!

#NephSky #lupuschat

Please join us in celebrating all the wonderful Dads and Father figures in our community and across the world. Happy Father's Day to you all!!

~The #LupusChat Team 💜